Pain Relief Foundation’s Post

Why are we interested and focusing on RAi1? Past research into Smith-Magenis Syndrome suggests that correcting the dose of RAi1 cannot only be beneficial for those with the syndrome but in some instances may reverse some symptoms. We believe this may be the case for PTLS as well and are working to further research here. If you are interested in helping fund this research- consider donating to our cause. 💚

What one piece of advice would you give someone newly diagnosed with Juvenile Idiopathic Arthritis (JIA)? With around 20 children a week in the UK being diagnosed with this condition, we are passionate about ensuring that they have access to the support they need, when they most need it. That's why we provide our free Little Box of Hope support packs to families, offer 1:1 support, membership of our private peer-to-peer support network, and our quarterly parent zoom meetings. All of this helps families receive the information and resources they need as well as knowing they are not alone. We'd love to hear what advice you would give to someone who has just been diagnosed. Let us know in the comments. #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology

*** Fundraising News *** Today we are highlighting Saoirse's fundraise. Saoirse is 22 and fundraise for research into NF2 related Schwannomatosis (NF2). She says:- "I have chosen to fundraise for this cause as my best friend who is from Ballinrobe is currently battling with this disease. The condition is usually hereditary however it can occur spontaneously. Unfortunately in Lyn’s case it was hereditary. There is very little support in Ireland for people with nf2 in relation to charities / research groups. There is no charity in Ireland specifically researching nf2 which is why I have chosen a uk charity. This charity has helped Lyn in the past and will hopefully help other people around the country. It is important to me to raise money for this charity in order to better understand and support people who get diagnosed in the future with nf2." We are delighted to have you along Saoirse, you are such a special friend for Lyn and we thankyou for your support. If you are able to support Saoirse's fundraiser you can do here: https://lnkd.in/e_TUxDYr #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene #nf2chromosome22 #nf2trials #nf2diagnosis #nf2lifeexpectancy #nf2prognosis #nf2research #nf2ismyteam #nf2awarenessday #nf2journey #StrongerTogetherAgainstNF2 Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness.

What a fantastic smile on your face Georgina! We love seeing photos of children receiving their Little Box of Hope support packs from Juvenile Arthritis Research like this fabulous photo of Georgina. These boxes are put together by our volunteers and are packed with lots of helpful information and resources for children and families affected by Juvenile Idiopathic Arthritis (JIA) in the UK. We also have a plethora of resources available on our website too, but we know that families find that receiving a physical pack of information is particularly helpful to them and their child. Many thanks for sharing this photo with us. Find out more about the family support we provide at www.jarproject.org/hope In addition to the information available on our website, our volunteers can also provide 1:1 support where needed for families and schools, in addition to our regular Parent Zoom sessions. Keep an eye on your emails and in our peer-to-peer Facebook group to hear details of when each Parent Zoom session will be. #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology #ALBOH #ALittleBoxOfHope

Every quarter our team takes part in a charitable event and makes a quarterly donation from the overall billings at the end of each quarter, contributed by the hard work of each member of our passionate team. Last quarter wasn't an exception. We took part in Walk For Cure (thanks Alzheimer's Research UK for sharing this video with us!), and donated £2,217 to our charity partner. Among the leading causes of death, dementia is the fastest-rising health condition in the UK and the biggest long-term health challenge we face. Investing in research is crucial for achieving breakthroughs and delivering life-changing treatments. We've just hit 50% of our yearly target. You can support our team and make a donation on our JustGiving page to help us reach the £7000 target: https://lnkd.in/dgEVfJZ8 #alzheimer #alzheimerresearch #alzheimerdisease #charity #fundraising #lifesciences #lifescience #lifesciencesrecruitment Mark O'Brien

To my family and all my friends. For 30 days, this September I've challenged and accepted to run 60 miles. It's an average of 2 miles per day. I've started my 60-mile challenge. The more miles I record per day the less time for completion. I’m helping raise money for Crohn’s & Colitis UK! Support me at the fundraising link: https://lnkd.in/e4uNrgGR Please donate as much as you can: Want to join me in supporting a good cause? I'm raising money for Crohn's & Colitis UK and your contribution will make an impact, whether you donate a lot or a little. Anything helps. Thank you for your support. I've included information about Crohn's & Colitis UK below. Crohns Disease and Ulcerative Colitis are the two main forms of Inflammatory Bowel Disease, affecting more than 500,000 people in the UK. Yet it is largely a hidden disease, and one that causes stigma, fear and isolation, its thought that many people with the condition go undiagnosed and suffer in silence.  MN Akhtar•31 August 2024 Crohns Disease and Ulcerative Colitis are the two main forms of Inflammatory Bowel Disease, affecting more than 500,000 people in the UK. Yet it is largely a hidden disease, and one that causes stigma, fear and isolation, its thought that many people with the condition go undiagnosed and suffer in silence. #uel #rdsbl #uk #research #PhD #crohnsandcollitis #fundraising #donate #donation #nhs #fyp #goodcause #reels #shorts #tiktok

Recognizing the key symptoms of Parkinson's—such as tremors, muscle stiffness, balance issues, and slowed movement—is essential for making a real difference. By joining together, we can raise awareness and provide crucial support for those affected by this condition. To learn more about our mission and how you can help advance Parkinson's research, visit our website. www.parkinsonsfund.org #parkinsons #parkinsonsawareness #movementdisorders #donate #awareness #research #doctors #medicalprofessionals #parkinsonsawareness #parkinsonsdisease

Every day we receive messages of thanks from those we have supported. Those who had nowhere else to turn. Families who were feeling overwhelmed and worried about their child's diagnosis of Juvenile Idiopathic Arthritis (JIA). With the information and resources that we provided them with and with 1:1 support from our volunteers and access to a peer-to-peer support network, they were given the information and strength they needed to carry on. Many of our resources are recognised as being world-leading resources being translated and used all around the globe. Our awareness initiatives are leading the way in making a real difference to improving earlier diagnosis and helping those with JIA feel less alone. Our own research has been published in scientific journals, presented at international conferences and we have worked with countless other research teams on collaborative projects. All of this has been achieved by our amazing volunteer team in the 6 years since Juvenile Arthritis Research began. But... Our small team of volunteers are so busy doing all these vital areas of work that despite the difference we are making, finding the funding to do all that we do remains our biggest challenge. We currently have an urgent need for funding for a new resource that will save lives. Doctors, medical professionals, volunteers, parents and patients have given their time to create this essential new resource. We now urgently need the funds to get it printed and distributed to reach where it is most needed to make a difference. If you can help introduce us to any funding opportunities such as corporate sponsors or wish to make a donation specifically to make this resource a reality, please get in touch by emailing kipo@jarproject.org #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #NonProfit #Donate #Support #causes #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything 

💗 Feel it Friday! 💗 Ladies, it's time to show your body some love. Here's a quick tip: use the pads of your fingers to check your breasts in circular motions, covering the whole area—including up to your collarbone and underarms. It only takes a few minutes, but it could save your life. 🛑 Know the signs 🤲 Check for changes 💗 Protect your health Let’s remind each other to stay on top of our well-being—tag a friend to spread the word. 💬 #LFBC #BreastCancerAwareness #LFBC #ladiesfightingbreastcancer #localcharity #charity #CSR #breastcancer #breastcancerawareness #breastcancersupport #fightagainstbreastcancer #breastcancerfundraiser #Gratitude #HugsInABag #Generosity #LFBC #ladiesfightingbreastcancer #localcharity #charity #CSR #breastcancer #breastcancerawareness #breastcancersupport #fightagainstbreastcancer#breastcancerfundraiser #breastcancerawarenessmonth #pinkoctober

💗 Feel it Friday! 💗 Ladies, it's time to show your body some love. Here's a quick tip: use the pads of your fingers to check your breasts in circular motions, covering the whole area—including up to your collarbone and underarms. It only takes a few minutes, but it could save your life. 🛑 Know the signs 🤲 Check for changes 💗 Protect your health Let’s remind each other to stay on top of our well-being—tag a friend to spread the word. 💬 #LFBC #BreastCancerAwareness #LFBC #ladiesfightingbreastcancer #localcharity #charity #CSR #breastcancer #breastcancerawareness #breastcancersupport #fightagainstbreastcancer #breastcancerfundraiser #Gratitude #HugsInABag #Generosity #LFBC #ladiesfightingbreastcancer #localcharity #charity #CSR #breastcancer #breastcancerawareness #breastcancersupport #fightagainstbreastcancer#breastcancerfundraiser #breastcancerawarenessmonth #pinkoctober