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The article outlines four main strategies aimed at boosting patient engagement in clinical trials. It emphasizes the importance of patient education and communication, adopting a patient-centric approach that accommodates individual needs, leveraging technology to facilitate easier participation, and enhancing community outreach and support systems. These strategies collectively aim to improve patient understanding, comfort, and participation in clinical trials, ultimately enhancing overall trial outcomes. Let CCRS provide your Study Team provide in-depth training on how to implement patient engagement strategies at your site! info@ccrs-usa.com - ccrs-usa.com #PatientEngagement #ClinicalTrials #ClinicalResearch #CommunitySupport #PatientEducation #PatientEngagement #SiteOperations #PatientExperience #CCRS

WEBCAST: Patient and Public Involvement (PPI) in Clinical Trials: Where Have We Been? Where Are We Now? And Where Do We Need to Go? 23 April 2024 | 12pm EST / 5pm BST / 6pm CEST 👉 Register Now: https://bit.ly/3VMKhYI Why there has been a move to engage patients and the public in the design and conduct of clinical trials? What tools are available to support PPI in clinical trials? And what's the impact? Join us for an enlightening presentation on "Patient and Public Involvement (PPI) in Clinical Trials: Where Have We Been? Where Are We Now? And Where Do We Need To Go?", addressing all of these questions to help you effectively understand and implement PPI in your clinical trials and maximise outcomes. Plus, raise your questions in live Q&A. 👥 Speaker: Stuart Nicholls, Strategy for Patient Oriented Research Program Facilitator, Ottawa Hospital Research Institute Register free today to join Stuart and more leading industry experts online at Patient Perspectives and Partnering Digital Day webcast series on 23 April 2024 to gain leading insights for incorporating patient perspectives for effective trial design, clinical trial recruitment and how patient-centric design can optimize clinical outcomes. 👉 Register Now: https://bit.ly/3VMKhYI #PatientInvolvement #PublicInvolvement #ClinicalPPI #PatientEngagement #PatientPerspective #PatientCentricity #PatientsAsPartners #ClinicalTrialDesign #ClinicalTrials #ClinicalResearch #ClinicalDevelopment 

Continued discussion at various levels is necessary. Learning that clinical trials are an important element in the countries healthcare system. https://lnkd.in/gefHwVh9

We are looking forward to the upcoming Patients as Partners in Clinical Research EU conference. Don't miss our presentation on May 15, Implementing a Patient Insights Framework to Enhance Clinical Development and Patient Engagement. Join Sarah Lucas-Eaton, Patient Strategy Director, Lumanity, Samantha Knott, Global Patient Partnership Leader at Roche, and Nichola Gokool, Senior Director, Patient Partnerships at Parexel, as they address the action steps the industry can take to advance patient engagement initiatives and how this transformation will allow for faster and more efficient clinical development. The panel will focus on: - Strategies to incorporate patient insights to adapt the trial design and make participation more accessible - Identifying patient requirements at different stages and how to turn those insights into action - Making patient input actionable for medicines development - How to keep patients engaged throughout the clinical trial and how to leverage those patient insights to improve the process And be sure to stop by our exhibit booth to connect with our staff on-site in London! Learn more at https://buff.ly/442eZz3 #patientengagement #patientempowerment #patientadvocacy #patientsaspartners #PatientsEU2024 #clinicalresearch #patientvoice #patientpartnerships

The As a member of Medable's Patient Caregiver Network, I am thrilled to announce my participation in the upcoming panel, "Patient Perspectives and Partnering." At Medable, patients are the experts, and I have the privilege of using my personal life experience as a patient to help shape the future of DCTs and foster a better relationship between patients and clinical research. In the spirit of partnering with patients, I had the honor of writing Medable’s LGBTQ+ Global Playbook. As a gender-fluid patient, I have experienced unique healthcare situations - some good, some bad, and some straight-up horrific. The purpose of the playbook was to assess Medable's relationship with the LGBTQ+ community and identify ways to improve clinical language, DCT enrollment, and community engagement. I am extremely proud to say that not only were my suggestions enthusiastically welcomed by the team but they were also implemented and will make a legitimate difference. Performative allyship is prevalent in corporate America, and there is a big difference between being an "ally" to the community and being a "champion" of the community. But it was clear to me from the very beginning that Medable actually cares about LGBTQ+ issues and making sure DCT experiences are comfortable for EVERYONE. If you're interested in hearing more about how we are innovating with inclusivity, please join us on April 23rd at 11pm EST, and I look forward to telling you more about the Global Playbook and the continued efforts of Medable and its Patient Caregiver Network. #Medable #DCT #clinicalresearch #LGBTQ+ #inclusivity #patientperspectives #partnering

We are looking forward to the upcoming Patients as Partners in Clinical Research EU conference. Don't miss our presentation on May 15, Implementing a Patient Insights Framework to Enhance Clinical Development and Patient Engagement. Join Sarah Lucas-Eaton, Patient Strategy Director, Lumanity, Samantha Knott, Global Patient Partnership Leader at Roche, and Nichola Gokool, Senior Director, Patient Partnerships at Parexel, as they address the action steps the industry can take to advance patient engagement initiatives and how this transformation will allow for faster and more efficient clinical development. The panel will focus on: - Strategies to incorporate patient insights to adapt the trial design and make participation more accessible - Identifying patient requirements at different stages and how to turn those insights into action - Making patient input actionable for medicines development - How to keep patients engaged throughout the clinical trial and how to leverage those patient insights to improve the process And be sure to stop by our exhibit booth to connect with our staff on-site in London! Learn more at https://buff.ly/3xyKYuB #patientengagement #patientempowerment #patientadvocacy #patientsaspartners #PatientsEU2024 #clinicalresearch #patientvoice #patientpartnerships

ICYMI: A recording of the October 24th Rare Patient Voice/Patients As Partners in Clinical Research Community News webinar, "Patient Preferences in Communications for Learning About Clinical Trials," which features the results of a new RPV survey, is now available: https://lnkd.in/eX76b2iu #ClinicalResearch #ClinicalTrials #patients

Do you know that Patient-centered approaches improve patient satisfaction and engagement and enhance trial data's quality and reliability?   Clinical trials play a crucial role in advancing medical science, evaluating new treatments, and improving patient outcomes. However, traditional trial designs have often overlooked the patient experience.   In recent years, there has been a paradigm shift towards patient-centric approaches, recognizing that engaged and satisfied patients contribute to better trial data quality and reliability.   Here are some ways to improve patient-centricity in clinical trials: 𝟭. 𝗣𝗲𝗿𝘀𝗼𝗻𝗮𝗹𝗶𝘇𝗲𝗱 𝗖𝗮𝗿𝗲 𝗣𝗹𝗮𝗻𝘀: Tailoring clinical trials to meet the unique needs and preferences of individual patients, ensuring a more personalized care experience. 𝟮. 𝗙𝗹𝗲𝘅𝗶𝗯𝗹𝗲 𝗧𝗿𝗶𝗮𝗹 𝗗𝗲𝘀𝗶𝗴𝗻𝘀: Offering clinical trials with flexible designs that cater to the needs of patients, making it easier for them to participate. 𝟯. 𝗢𝗽𝗲𝗻 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝗰𝗮𝘁𝗶𝗼𝗻 𝗖𝗵𝗮𝗻𝗻𝗲𝗹𝘀: Encouraging open communication between patients and trial staff, fostering a collaborative environment. 𝟰. 𝗣𝗮𝘁𝗶𝗲𝗻𝘁-𝗙𝗿𝗶𝗲𝗻𝗱𝗹𝘆 𝗦𝗶𝘁𝗲𝘀: Designing clinical trial sites that are patient-friendly, ensuring a comfortable and welcoming environment for participants.   Patient-centricity matters because it improves satisfaction, engagement, data quality, and reduces dropout rates in clinical trials. When patients feel involved, they're more satisfied, engaged, and provide reliable data, leading to better outcomes.   #ClinicalTrials #ClinicalResearch #PatientCentricity #PatientEngagement #HealthcareInnovation

WEBCAST PANEL: Optimizing Digital Evidence Generation Using the Patient’s Lens 23 April 2024 11am EST / 4pm BST / 5pm CEST 👉 Register Now: https://bit.ly/3U7Qygm Led by an esteemed line-up of patient advocates and research experts from Patients Rising, The Warren Alpert Medical School of Brown University and Medable, Inc, this exclusive free-to-attend webcast panel discussion will enhance your understanding of the value of patient involvement and provide practical guidance on steps you can take to make a difference to your clinical trial outcomes. Join the experts in just 2 weeks time to explore why trial designs that incorporate learnings from lived patient and caregiver experiences are the most effective, and learn about how Medable has been working together with sponsors to enhance data quality/compliance, diversity and retention in clinical trials by leveraging patient-centric insights and eCOA technology. Webinar Highlights and Key Learnings: ✅ Patient-Centric Insights: Discover how real-life experiences enrich protocol narratives, fostering patient loyalty and commitment. ✅ Fine-Tuning for Success: Learn how our collaboration and eCOA/ePRO solutions enhance your protocols for optimal retention and digital evidence generation. ✅ Early Engagement Magic: Uncover the power of early partnership with use cases that highlight our success with customers. 🎤 Live Q&A Session: Have burning questions? Ask the experts and patients who are here to provide insightful answers and guidance. 👥 Speakers: Jena Daniels, VP Patient Success, Medable, Inc Levi Peterson, Resource Coordinator and Patient Advocate, Patients Rising Carly M. Goldstein, PhD, Clinical Psychologist / Research Scientist, Brown University Register free today to join Jena, Levi, Carly and more leading industry experts online at Patient Perspectives and Partnering Digital Day webcast series on 23 April 2024 to gain leading insights for incorporating patient perspectives for effective trial design, clinical trial diversity and how patient-centric design can optimize clinical outcomes. 👉 Register Now: https://bit.ly/3U7Qygm #PatientInvolvement #PatientEngagement #PatientExperience #eCOA #ePRO #PatientData #Diversity #PatientRetention #PatientsAsPartners #Patients #ClinicalTrials #ClinicalResearch

WEBCAST PANEL: Optimizing Digital Evidence Generation Using the Patient’s Lens 23 April 2024 11am EST / 4pm BST / 5pm CEST 👉 REGISTER NOW: https://bit.ly/3U7Qygm Led by an esteemed line-up of patient advocates and research experts from Patients Rising, The Warren Alpert Medical School of Brown University and Medable, Inc, this exclusive free-to-attend webcast panel discussion will enhance your understanding of the value of patient involvement and provide practical guidance on steps you can take to make a difference to your clinical trial outcomes. Join the experts in just 2 weeks time to explore why trial designs that incorporate learnings from lived patient and caregiver experiences are the most effective, and learn about how Medable has been working together with sponsors to enhance data quality/compliance, diversity and retention in clinical trials by leveraging patient-centric insights and eCOA technology. Webinar Highlights and Key Learnings: ✅ Patient-Centric Insights: Discover how real-life experiences enrich protocol narratives, fostering patient loyalty and commitment. ✅ Fine-Tuning for Success: Learn how our collaboration and eCOA/ePRO solutions enhance your protocols for optimal retention and digital evidence generation. ✅ Early Engagement Magic: Uncover the power of early partnership with use cases that highlight our success with customers. 🎤 Live Q&A Session: Have burning questions? Ask the experts and patients who are here to provide insightful answers and guidance. 👥 Speakers: Jena Daniels, VP Patient Success, Medable, Inc Levi Peterson, Resource Coordinator and Patient Advocate, Patients Rising Carly M. Goldstein, PhD, Clinical Psychologist / Research Scientist, Brown University Register free today to join Jena, Levi, Carly and more leading industry experts online at Patient Perspectives and Partnering Digital Day webcast series on 23 April 2024 to gain leading insights for incorporating patient perspectives for effective trial design, clinical trial diversity and how patient-centric design can optimize clinical outcomes. 👉 REGISTER NOW: https://bit.ly/3U7Qygm #PatientInvolvement #PatientEngagement #PatientExperience #eCOA #ePRO #PatientData #Diversity #PatientRetention #PatientsAsPartners #Patients #ClinicalTrials #ClinicalResearch