Tailored Talks: empowering people living with #longcovid 👥 Tailored Talks is an innovative digital support pathway, collaboratively created with NHS Lothian and Chest Heart & Stroke Scotland, committed to offering support to people with Long COVID. Our unique pathway is designed to - Provide personalised information and support 🌿 - Connect people to primary care, specialist services, and digital support 🏥 - Streamline the process and potentially reducing the need for multiple GP appointments 🩺 With a strong focus on accessibility, Tailored Talks incorporates essential features to ensure inclusivity and ease of use, making it easily accessible to all those who need it 💡 Join us in our mission to make a meaningful difference in the lives of Long COVID survivors. Learn more about the Long Covid Digital Pathway on our website: https://lnkd.in/e9iHVrr5 NHS Lothian Charity 💙 Digital Health & Care Innovation Centre #digitalhealth #digitalhealthcare #healthtech #longtermcondition
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NHS England have warned that without extra government funding, pay rises of more than 2% risk cuts to staff and activity. This is according to evidence submitted to the pay review bodies, summarised in an article by HSJ. Where extra spend has not been supported by an increase in funding, there will be further pressure on the NHS budget which could impact planned activity and put limitations on the level of service improvements available. This is on top of target annual efficiency savings of 2.2% which is higher than the historic level of 1%, due to inflationary pressures.
Pay rise over 2% risks staff and service cuts, NHSE warns
hsj.co.uk
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Exciting news from The Mercy University Hospital Foundation! 🏥🎉 Thanks to the generous funding from the Mercy University Hospital Foundation, the hospital has introduced a state-of-the-art, nurse-led point of care ultrasound specifically for Inflammatory Bowel Disease (IBD) patients. 🔬 What does this mean for patients? It will be a non-invasive, safe, and quick (only 15 minutes!) assessment, with real-time results and immediate treatment decisions. Each patient will have a personalised care plan tailored to their needs. And it will increase patient empowerment and engagement in their care, with the potential to replace more invasive tests in some cases. Dr. Donal Sheehan, our Consultant Gastroenterologist, calls it "a real game changer" as patients can now see their results in real-time and discuss them immediately with their care team. This innovative technology will benefit over 4,000 IBD patients who rely on The Mercy University Hospital for their care. It's another step forward in our commitment to providing the best possible care for our community. Want to support more projects like this? Visit https://lnkd.in/gJk6RQUw to learn how you can contribute to advancing healthcare at The Mercy. Every donation helps us continue to innovate and improve patient care! #TheMercy #IBDCare #HealthcareInnovation #CommunitySupport
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Give your thoughts and opinions about living with Moebius syndrome! Sign up with Rare Patient Voice to earn up to $120 per hour by participating in paid surveys, interviews, and online communities! Rare Patient Voice is on a mission to connect patients and family caregivers to paid medical studies and surveys, valuing the firsthand experiences of those living with various conditions. Currently, the Rare Patient Voice Community boasts over 100,000 patients and family caregivers, supported by over 4,000 Referral Partners. If you are interested in finding out more about participating in a survey, please use the following link: https://lnkd.in/g2-idsFi When prompted to enter information on who referred you to the program, please enter info@moebiussyndrome.org and the first name Moebius and last name Syndrome. The Moebius Syndrome Foundation will earn a donation for every referral received! Caregivers with their own medical conditions can register for themselves in addition to their patient with Moebius syndrome. This program is open internationally and to non-U.S. residents. Please complete the form with your country (e.g. Australia, Canada, etc.) when you register. – Image Description: Rare Patient Voice logo. Text: Join today! When asked who referred you, enter info@moebiussyndrome.org and the first name Moebius and last name Syndrome. Moebius Syndrome Foundation logo. #MoebiusSyndrome #RarePatientVoice #moebiussyndromefoundation #survey #research
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I like Dr. Spencer’s advice. I would point out that not every healthcare organization has a palliative care program. Perhaps this is where patients and families should expand their search for locally available palliative services. Does the local hospital provide palliative care? How can I access this service? Healthcare organizations should strive to ensure they have palliative care services available to their patients. Perhaps CMS should consider revising its HCAHPS survey. Instead of asking about food services, they should ask if hospitals have a palliative care service. Better yet, why not add this to the survey instead of substituting? We also need to normalize conversations about transitioning care when we arrive at end-of-life, emphasizing that we are not stopping care, just changing the goals. We cannot stop the biological clock, but we can ensure patients receive high-quality symptom management. How fortunate that we have a federal entitlement to provide end-of-life care. It's a shame we still struggle with having explicit conversations about hospice care. It's time to change that! 👇 #hospice #hospicecare #palliative #palliativemedicine #palliativecare
Most People Don’t Get the End-of-Life Care They Really Want. Here’s What You Can Do to Change That
mariashriversundaypaper.com
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Panorama Global’s the T1D Community Fund works to address barriers to #T1D care globally by centering local, community-based strategies that increase access to life-saving care. Community-based organizations play an essential role in providing type 1 diabetes care in low- and middle-income countries (LMIC). Though often disconnected from discussions that shape regional and global health systems, CBOs uniquely tailor solutions to the needs of their communities. More than 300 organizations applied to The T1D Community Fund’s last funding opportunity, providing insight into the breadth of organizations and work serving people living with type one diabetes in LMICs. Read our key takeaways and stay tuned for the next funding opportunity coming soon! https://bit.ly/4c4H5NA
Insights from 300+ applications shed light on the global landscape of community-based work on type 1 diabetes
panoramaglobal.org
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The Patients' Fund applications are now open! The Patients' Fund pays for small projects that make a big difference to a visit to hospital. If you have an innovative concept that could positively change patients' experiences and care in hospital, the Patients' Fund can help. The Patients' Fund allows staff to make a positive impact beyond treatments, such as equipment or research, by providing a sense of familiarity and comfort to help patients feel more at home. Thanks to the Patients' Fund, we've introduced special mugs to help post-surgery patients gain independence by having better grip to be able to and have a drink. We've also provided hand-shaped cushions for newborns in the PICU to help them pick up their parents' scent. Your first-hand experience with patients provide an imperative perspective of what patients need to feel comfortable in a hospital environment. The Patients’ Fund applications are open to all staff in the Heart, Lung and Critical Care clinical group at Guy’s and St Thomas’ NHS Foundation Trust, as long as the benefit is to heart and lung patients specifically. If this sounds like something you’d like to be a part of click the link to learn more about how you can make an impact on patient care https://bit.ly/3Nb5NkA #PatientCare #HealthcareInnovation Royal Brompton and Harefield hospitals , Guy's and St Thomas' NHS Foundation Trust
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Sign up with Rare Patient Voice to earn up to $120 per hour by participating in paid surveys, interviews, and online communities about Moebius syndrome or other conditions. If you are interested in finding out more about participating in a survey, please use the following link: https://lnkd.in/g2-idsFi When prompted to enter information on who referred you to the program, please enter info@moebiussyndrome.org and the first name Moebius and last name Syndrome. The Moebius Syndrome Foundation will earn a donation for every referral received! Caregivers with their own medical conditions can register for themselves in addition to their patient with Moebius syndrome. This program is open internationally and to non-U.S. residents. Please complete the form with your country (e.g. Australia, Canada, etc.) when you register. Rare Patient Voice is on a mission to connect patients and family caregivers to paid medical studies and surveys, valuing the firsthand experiences of those living with various conditions. Currently, the Rare Patient Voice Community boasts over 100,000 patients and family caregivers, supported by over 4,000 Referral Partners. – Image Description: Text: Give your thoughts and opinions about living with Moebius syndrome. Join today! When asked who referred you, enter info@moebiussyndrome.org and the first name Moebius and the last name Syndrome. Rare Patient Voice logo. Moebius Syndrome Foundation 30th Anniversary logo. #MoebiusSyndrome #RarePatientVoice #moebiussyndromefoundation #survey #research
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On the day that Lord Darzi has published his report on the NHS. None of what he says is massively surprising and it will certainly chime true for anyone working in the spinal injuries world. Services are completely fragmented with no shared vision of what good looks like or how to deliver those services efficiently, effectively and equitably across the four nations. There has never been a better time to come together and forge that vision. Spinal Injuries Association has launched a call for a national strategy for spinal cord injury (SCI) care. This initiative aims to address health inequalities and improve life outcomes for SCI patients and their families. Read more about the Call for Action https://lnkd.in/eh3RZSNn . Lord Darzi’s report paints a stark picture of a system in urgent need of reform. The report highlights soaring waiting times, crumbling infrastructure, and a surge in chronic illnesses. It’s clear that the NHS must undergo significant changes to meet the needs of today and tomorrow. More details on the report can be found https://lnkd.in/eqTBtwgG . One of the striking conclusions of the report was that “The patient voice is not loud enough. The NHS should aspire to deliver high quality care for all, all of the time. That not only means care that is safe and effective but that treats people with dignity, compassion and respect, making their experiences as positive as they can be. Yet patient satisfaction with services has declined and the number of complaints has increased, while patients are less empowered to make choices about their care. A familiar theme in inquiries into care failings has been patients’ concerns not being heard or acted upon." Importantly, the challenges facing the NHS are not the fault of its dedicated staff. Our healthcare professionals work tirelessly under immense pressure, and it’s vital that we support them through these reforms. The third sector can help. We need a nationwide patient representative network that: 1. Connects with patients from the first day of diagnosis. 2. Ensures representation to support the patient voice, and that of their friends, families, and carers, at every decision-making step. 3. Coordinates links to specialist and community support services. 4. Places the patient voice at the center of systems, design, and delivery. With the wider NHS reforms planned, now is the time sector to come together to build a healthcare system that truly works for everyone with a Spinal Cord Injury. #HealthcareReform #SpinalCordInjury #NHS #PatientCare #HealthcareInnovation #SupportOurNHS #PatientVoice #HealthcareStrategy
SIA-Call-to-action.pdf
spinal.co.uk
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Knowledge to maximise healthspan - research from Versus Arthritis' Ageing Centres can help [your] patients live healthier for longer... https://lnkd.in/gG2AyRvx Centre for Integrated Research into Musculoskeletal Ageing (#CIMA) Centre for Musculoskeletal Ageing Research (#CMAR) #osteoarthritis #epigenetics #arthritisawareness #VersusArthritis #charity #notforprofit
Knowledge to maximise healthspan
versusarthritis.org
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