Ruben Carol’s Post

I am well and truly chuffed to announce that the second paper of my PhD has now been published in The Journal of Health Psychology. This research would simply not have been possible without the immense collective efforts of my co-authors and supervisors, Rachel Thorpe, Barbara Masser, and Fiona Kate Barlow. In this paper, we explore how Australian blood donors perceive and develop psychological ownership (or a perceived sense of ownership) over their blood donation experience through semi-structured interviews. A key insight from our research is that psychological ownership appears to be closely linked to donors' sense of control and ability to personalise their donation experience. https://lnkd.in/g-4cfvxg 

Save the Date! The Microbes & Alzheimer's Symposium 2024 is set for July 27th at the Philadelphia College of Osteopathic Medicine. This year's theme, "Microbes and Alzheimer's: Bridging Silos to Accelerate Innovation," brings together over 20 leading experts. Among them is Monica Embers, PhD, from the Tulane National Primate Research Center, known for her work on #Lyme disease and its broader implications, including its connection to #neurodegenerative diseases. Learn more at: https://lnkd.in/ggiM5qv4

For #PhilanthropyThursday we are highlighting Veterans Health Foundation For more than 90 years, VA clinicians have been improving the lives of Veterans and all Americans through health care discovery and innovation. VA Research is unique because of its focus on health and wellness issues that affect Veterans. Nested within the Veterans Health Administration—the nation’s largest health care system—VA Research is viewed by many experts as a model for rigorous, impactful research. Veterans Health Foundation and their partners have been able to bring fund 283 research projects, 5710 surgeries, 80 transplants, and more. Today especially, supporting veteran charities fosters a sense of patriotism and community. It encourages people to reflect on the true meaning of the holiday and the values of freedom, sacrifice, and unity. This can lead to a stronger, more connected community! Donating to veteran charities helps raise awareness about the ongoing needs of veterans. Many people are not fully aware of the struggles that veterans face after their service. By supporting charities like Veterans Health Foundation, we can help bring these issues to light and promote broader support and understanding. Read more about this awesome organization here: https://lnkd.in/gRFzmvnr

Today is World Neurofibromatosis (NF) Awareness Day. In support of the @ctfaustralia and everyone impacted by all types of NF in Australia, I am wearing this ribbon to help shine a light on this devastating condition. As a board member, it is a cause I care about deeply and want to encourage my network to share, donate or even connect to learn more. Reach our to me for more information or how you can assist us moving forward. Every 3 days a child is born with NF, and they will face a lifetime of uncertainty. Complex, unpredictable and progressive genetic condition causing tumours to form on nerves, NF can affect anyone regardless of gender, ethnicity, or family history. There is no cure for NF, but with every ribbon worn, hope spreads. NF tumours should never be a child’s normal. Knowing it is a condition they carry for life, makes it even more important that we stop accepting the unacceptable. All donations made to www.ctf.org.au will be matched from today to the value of $30,000 thanks to Morgan’s Foundation! Please give what you can and help move us improve health outcomes for the 13,000 people in Australia living with NF. REGISTER FOR STEPS TOWARDS A CURE AND JOIN #TEAMCTF https://lnkd.in/gBbFmaUw #conquernf

🌟 Watch our interview with Jonathan to learn about his journey with early onset dementia. You can also help us support Jonathan, and others like him by donating to SSMRF's medical research grants. 🧠💪 https://lnkd.in/geV3ySvF #UnlockHopeForDementiaResearch #DementiaResearch #EOFYDonation #MedicalResearch #SSMRFGrants

🧠 𝗦𝗲𝗽𝘁𝗲𝗺𝗯𝗲𝗿 𝗶𝘀 𝗕𝗿𝗮𝗶𝗻 𝗔𝗻𝗲𝘂𝗿𝘆𝘀𝗺 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗠𝗼𝗻𝘁𝗵! 🧠 This month, we shine a spotlight on brain aneurysms and the importance of early detection and education. A brain aneurysm can be a life-threatening condition, but awareness and knowledge can play a crucial role in prevention and management. Let’s work together to spread knowledge and support those affected by brain aneurysms. Also, consider making a donation to the Brain Aneurysm Foundation to support brain aneurysm research. #BAF #1in50 #StopThePop #BrainAneurysm #Scan2Save #BAFAdvocacy

This year, Italian researchers tested the “triple A” model, a groundbreaking approach that helps physicians predict overall survival and the likelihood of complications such as blood clots, hemorrhages, and disease progression in ET patients.  What sets the AAA model apart? It’s highly practical for physicians — even in low-resource regions — using accessible data like age and absolute number of neutrophils and leukocyte cell types. This can help identify high-risk patients earlier, leading to more informed treatment plans for people with ET.  This scientific discovery has a direct impact on patient care. Read more about this important development: https://lnkd.in/gWhcRWEh  Donate today to help us find more answers for those living with MPNs: [ https://lnkd.in/gUAqPckM ]

September is National Muscular Dystrophy Awareness Month in the US, shining a spotlight on muscular dystrophy and other progressive neuromuscular diseases that affect physical and muscular strength and mobility. To mark the occasion, the Muscular Dystrophy Association has created a ’30 Ways for 30 Days of Strength’ campaign, showcasing the many ways we can work together to support people living with neuromuscular diseases. These activities range from raising awareness through social media or community outreach to attending virtual learning sessions or taking part in a physical challenge. At NMD Pharma, we are Passionate about Movement, leveraging our world-leading muscle physiology platform to develop a pipeline of novel therapeutics designed to improve strength and endurance. With two Phase 2 studies of NMD670, our first-in-class, muscle-targeted small molecule inhibitor of the skeletal muscle-specific CIC-1 ion channel, underway in spinal muscular atrophy (#SMA) and myasthenia gravis (#MG), as well as an IND clearance to start a Phase 2 #ClinicalTrial in Charcot-Marie-Tooth Disease (#CMT), we envision a future where patients with neuromuscular disorders are able to live better, more independent lives through improved strength, power and endurance each day. For more information on how you can get involved in the #30DaysOfStrength campaign: https://lnkd.in/dkMbjwgn #MuscularDystrophyAwareness #NeuromuscularDisease #Innovation #Biotech #PassionateAboutMovement

Rare disease patients are the drivers of innovation in medical research. In this film clip, a fully qualified doctor shares how her PhD journey and ultimately her career was made possible by patients who shared their stories, experiences and #data. Their involvement didn’t just power her research, it shaped her as a clinician and deepened her commitment to improving outcomes for those with rare conditions. Doing research creates a ripple effect: patients contribute to breakthroughs and help train the next generation of specialists who will change #raredisease care. To everyone who participates in research – thank you. Your impact goes beyond science – it shapes futures. Ongoing thank you's to Gemma Wilkinson, a much-valued member of our Scientific Advisory Board. Have you watched the whole film? (link in the comments below). We have entered it into the Smiley Charity Film Awards, and we would greatly appreciate your vote to help us advance to the next stage of judging. #RareDiseases #Research #CACNA1C #TimothySyndrome #LongQT8 #CFA25 #CharityFilmAwards

Health Sciences North amalgamation of Foundations will create more support horsepower! https://lnkd.in/gUxdsDTs