The ALS Association’s Post

#TeamTenisa Crohn’s and Colitis Awareness Tenisa was diagnosed with Crohn’s Disease in her early teens. Her life and legacy are honored through #TeamTenisa Crohn’s and Colitis Awareness, our nonprofit organization devoted to bringing awareness to Crohn’s Disease and Ulcerative Colitis. Striving to ensure that no family has to endure the pain of losing a loved one due to the lack of education and research on these conditions. Tenisa’s spirit continues to inspire us to bring awareness and fight for a cure. #TeamTenisa #CrohnsDisease #UlcerativeColitis #CrohnsAwareness #ColitisAwareness #InvisibleIllness #FightForACure #IBDAwareness #HopeForCrohns #TenisaLegacy #CureCrohns #SupportAndEducation #EndTheStigma #RaiseAwareness #TogetherForTenisa #InspireChange

Thousands of Americans will receive a devastating kidney disease diagnosis this year – news that will forever change their life. But thankfully, there are family members and caregivers to lean on, and a supportive community of dedicated champions leading the way forward – everyday heroes doing all they can in the fight against kidney disease. That’s what #KidneyHeroesGivingDay is all about. Honor your hero: https://bit.ly/4dPSota Thanks to a group of generous, supporters, your first monthly gift will be matched dollar for dollar, up to $20,000 meaning your impact on lifechanging research, advocacy and treatment will be DOUBLED. We can’t bring an end to kidney disease in a single day, but every gift is a step forward and a step closer to the next lifechanging breakthrough. Show your support and honor your hero before midnight: https://bit.ly/4dPSota

Today is Global Niemann-Pick Awareness Day! 🩶 On this day, we come together to shine a light on Niemann-Pick Disease, especially Niemann-Pick Type C (NPC), a rare and life-altering condition. As we continue our journey with NPC, we're reminded of the strength, resilience, and love that unite families like ours. Raising awareness is key to finding better treatments and support for those affected. Let's spread the word and advocate for more research and understanding! Together, we can make a difference. 🩶 #NiemannPickAwareness #NPDawareness #RareDisease #Awareness #SilverRibbon #SilverLight

Here at Ambry, we understand that families impacted by rare disease may experience loss, and that grief can be complicated when there isn't any explanation. We believe strongly in the power of information for families even after a loss. Jessica Gage, MS, CGC, shares a moving case study about how Patient for Life provided answers for a family five years after their son's birth. #exome #PatientforLife #genetictesting

Crohn's and Colitis Awareness Month This month, let’s raise awareness for those living with Crohn’s disease and ulcerative colitis, chronic conditions that impact countless lives daily. Through understanding and support, we can create a community that’s more informed and compassionate. Do you know someone affected by these conditions, or want to share more information? Join the conversation below! #CrohnsAndColitisAwareness #SupportAndAwareness #CommunityCare #HealthMatters

Crohn's and Colitis Awareness Month This month, let’s raise awareness for those living with Crohn’s disease and ulcerative colitis, chronic conditions that impact countless lives daily. Through understanding and support, we can create a community that’s more informed and compassionate. Do you know someone affected by these conditions, or want to share more information? Join the conversation below! #CrohnsAndColitisAwareness #SupportAndAwareness #CommunityCare #HealthMatters

Are you ready to express your BIG movements and LOUD voice during the month of April for PD awareness? This April, organizations around the world join forces in raising awareness for those living with Parkinson’s Disease (PD). Learn how you can get involved: https://hubs.ly/Q02r-qJh0 #parkinsonsawareness

Did you know you can now access Embrace Family Recovery videos on YouTube? You will find content there you won’t find anywhere else. I would love you to watch, like, and subscribe! This would mean so much to me and help more people struggling with this family disease find valuable resources. If you watch something and have a comment or question, please post it there; that also helps more than you know. https://lnkd.in/edKDT2RH Thank you from the bottom of my heart! Take care of you! #embracefamilyrecovery #recoverycoach #selfdiscoverysisterhood #addictionrecovery #addictionawareness #addictiontreatment #addictions #familyrecovery #familyrecoverycoach #familyrecoverycoaching #familyaddiction #familyaddictionrecovery #recoverysupport #recoverysupportgroup

During #BreastCancerAwarenessMonth, let us take time to raise awareness, support those affected, and promote early detection. 🎗️ My heart goes out to all those who have been impacted by this disease. Let's work together to spread knowledge, encourage regular screenings, and support the brave fighters and survivors. Together, we can make a difference. 💗🎗️ #BreastCancerAwareness #WeCare #StrongerTogether #LEORONInstitute

A few years ago we had the opportunity to sit down with rare advocate, Kelly Barendt. She began using her social media platform to help others going through challenges with their rare disease. Today, she's built an incredible online community, sharing her journey, raising awareness, and offering support to countless others along the way! Watch Kelly's full story at TheBalancingAct.com/Rare and see her featured in our guide: Navigating Your Rare Disease, linked in our bio! 🔗 #BehindTheMystery #RareDiseaseAdvocate #RareDiseaseAwareness #RareDiseaseCommunity #CureFA #FAawareness