Vanessa joins our dedicated team of LAM Liaisons to serve the LAM community in Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. Diagnosed in 2020, Laura remembers well the fear she felt when first experiencing symptoms and seeing her test results. She hopes to be a source of support and encouragement for those facing LAM for the first time and those further along in their journey. She looks forward to new connections and friendships with New England Lammies. The LAM Foundation is deeply grateful for the commitment of our LAM Liaisons like Vanessa who provide communities of care for women with LAM. LAM Liaisons are a listening ear, a source of empathy, and facilitators of resources and support for women navigating the unique challenges of this disease.
The LAM Foundation ’s Post
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September is World Alzheimer’s Month—a time to raise awareness, challenge stigma, and support those affected by Alzheimer’s disease. At Veramazo, we understand the unique challenges that come with cognitive decline, and we’re here to offer support, compassion, and expert care. From personalized memory care services to ongoing advocacy and emotional support, we’re committed to helping individuals and their families navigate this journey with dignity and respect. Join us this month in spreading awareness and supporting the Alzheimer’s community. 💜 Learn more in our recent blog on senior memory care, where we dive deeper into what memory care is, who it’s for, and how it can make a difference: https://lnkd.in/e_tvtrTt
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Today marks World Down Syndrome Day, a global awareness day officially recognized by the United Nations since 2012. This day, observed on the 21st of March, was chosen to symbolize the triplication (trisomy) of the 21st chromosome, which is the root cause of Down syndrome. Join us in taking action and participating in World Down Syndrome Day: https://lnkd.in/dRbVCY6. #WorldDownSyndromeDay #FDDC #FloridaDevelopmentalDisabilitiesCouncil
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Empowering the Sickle Cell Community: The Warriors Project Initiative As a proud Sickle Cell Warrior, I understand firsthand the unique challenges that come with this journey. It’s not just about enduring physical pain; it’s about resilience, hope, and the pursuit of a full life. This is why I am thrilled to be part of the Warriors Project Initiative. The Warriors Project Initiative is more than just a cause; it is a mission dedicated to improving the lives of children living with sickle cell anemia. We aim to provide educational resources, health support, and emotional encouragement to empower these young warriors, ensuring they are not defined by their condition but by their potential. Our work is rooted in advocacy, raising awareness about sickle cell disease, and offering practical solutions to the challenges faced by warriors and their families. By fostering a supportive community, we ensure that these children feel seen, understood, and valued, helping them build confidence to chase their dreams. Through education and health initiatives, we create a brighter future for every warrior, breaking down barriers and rewriting the narrative surrounding sickle cell disease. Join me in supporting this cause, because together, we can make a difference in the lives of these warriors, one step at a time. #SickleCellAwareness #theWarriorsProject #EducationForAll #HealthcareAdvocacy #WarriorSpirit
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When faced with scary news, I recall Fred Rogers' timeless advice to "look for the helpers." In today's tumultuous world, it's reassuring to see organizations like Ann & Robert H. Lurie Children's Hospital of Chicago offering valuable guidance on supporting children through unsettling news stories. Check out their insightful tips here: #ChildWellness #SupportingKids #PositiveImpact
Talking to Children about Tragedies in the News
luriechildrens.org
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While there are certain characteristic physical features that set people with Down syndrome apart, people with Down syndrome resemble their families more than they resemble one another. 👉👉👉 This Down Syndrome Awareness Month, we’re sharing daily facts to celebrate and raise awareness about the abilities of individuals with Down syndrome. DSAM is about breaking down barriers, promoting advocacy, and fostering inclusion. Follow along, share these facts with friends, family, and your community, and help us educate others. Together, we can change how the world views Down syndrome! ✅ Find out all the facts on our blog: https://lnkd.in/gE2htEt3
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Today marks the beginning of #NFAwarenessMonth. It’s a time to recognize those living with neurofibromatosis (#NF) and to raise awareness of its devastating impact and the need for more treatment options. Learn about our commitment to the NF community: https://lnkd.in/ewEvms2D
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#BlackMaternalHealthWeek RH + JF Grantee Highlight Series 🤰🏽 🤰🏾 🤰🏿 Patricia R. Bosman, M.A., PMP, Racial Healing + Justice Fund Cycle 1 Grantee and Executive Director of The Haven of Grace. 🎙Learn more about The Haven of Grace and the organization's significant impact throughout the St. Louis region, relentlessly challenging the maternal mortality rate in pursuit of improved #BlackMaternalHealth.
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Social isolation is an important topic. Join the conversation! This is a free webinar on April 16th from 8:30am - 10am. Let's empower older adults and ourselves to combat social isolation.
Elder Abuse Prevention @ Dignity Health Empowering Communities | Agent of Change Healthcare Worker | Mental Health Educator. Let's Connect and Make a Positive Impact Together.
📣 Exciting Announcement! 🎉 Join us for a FREE Social Isolation Webinar on April 16 from 8:30 to 10 a.m. PST! Register now to secure your spot and share this opportunity with your network. ⬇️ Register Here https://lnkd.in/gXcqnjAx In this empowering webinar, we'll tackle social isolation among older adults, exploring innovative resources and strategies, including the PEARR Five Steps to Victim Assistance in Healthcare Settings. Featuring esteemed speakers: 🎙️ Holly Austin Gibbs, System Director of CommonSpirit Health Human Trafficking Response Program 🎙️ Maureen Feldman, Director of the Social Isolation Impact Project at MPTF For more information, contact Katherine.thomas903@commonspirit.org. Let's come together to create a more connected and compassionate community. Together, we can empower older adults to live happier, healthier lives!
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Proclaiming the next 10 years the DECADE OF THE CHILD! Dear friends and colleagues, The National Prevention Science Coalition to Improve Lives (https://lnkd.in/eRjCUkbn) is spearheading an agenda to motivate the incoming administration to proclaim the next 10 years as the DECADE OF THE CHILD, with congressional support for both policy change and dollars to NIH for whole child health and wellbeing research. This research and policy agenda presents an important opportunity to unite people, organizations, and agencies dedicated to improving conditions under which children and youth are born, live, play and learn. We believe it could mobilize an unprecedented national movement that ends the deficiencies and disparities in child health and wellbeing, leading to future generations of happy, healthy, and productive children and adults. A general description of this initiative can be found on our website (https://lnkd.in/erGWuaft) and, if you like, we can share a more detailed document that outlines how we are invoking the same process used to proclaim the Decade of the Brain in the 1990s. We are meeting with key leaders at NIH in early November and would like to be able to document widespread support for proclaiming the DECADE OF THE CHILD. Endorsement from you and also your center, organization or institution could make a critical difference. Our list of supportive organizations, foundations, societies, research center, and individuals is rapidly growing, which is a heartening sign! Our hope is that you will indicate support for this vision on our website (https://lnkd.in/erGWuaft). Onwards! Denni Fishbein
Home | National Prevention Science Coalition to Improve Lives
npscoalition.org
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People don’t have “mild” Down syndrome, or “severe” Down syndrome. Ability is not dependent on the condition, but rather the individual. People either have Down syndrome or they don’t. 👉👉👉 This Down Syndrome Awareness Month, we’re sharing daily facts to celebrate and raise awareness about the abilities of individuals with Down syndrome. DSAM is about breaking down barriers, promoting advocacy, and fostering inclusion. Follow along, share these facts with friends, family, and your community, and help us educate others. Together, we can change how the world views Down syndrome! ✅ Find out all the facts on our blog: https://lnkd.in/gE2htEt3
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