Wisconsin CONNECT’s Post

The Blueprint for Change is a national framework for a system of services for children and youth with special health care needs (CYSHCN) so they enjoy a full life and thrive in their community from childhood. Learn about the Blueprint for Change and the National Center https://ow.ly/LxLu50TMPW2

Please let us know how you plan to use this resource, how you plan to disseminate it, and what more you need to get it into family's hands quickly. #suicideprevention

A Care Map is a visual representation of the supports, community interactions, and social determinants that play a role in a patient's health and well-being. Our Care Map feature, piloted at the Hospital for Sick Children, helps parents coordinate care, identifies parental priorities of care, and improves understanding of what it is like to care for a child with medical complexity. Find out more here: https://shorturl.at/sXDK4

Assisted Dying: Developing the Debate. The issue of assisted dying has again become the focus of impassioned debate, with MPs having a free vote on the Terminally Ill Adults (End of Life) 2024-25 Bill on Friday.   Seven years ago, Professor Peter Beresford OBE, Tina Coldham BEM and I undertook some sensitive research into the debate, interviewing key figures on both sides to see if there was any common ground between them which could provide the basis for more helpful discussion and policy development. We spoke to people from palliative care backgrounds, with others being from organisations concerned with the care and support of older people, disabled people and individuals from academic, social work and policy backgrounds.   We found that several areas of common ground emerged when respondents discussed the ethical and ‘existential’ aspects of death and dying, including the psychological aspects of pain, suffering, death and dying for individuals and loved ones, understanding the ‘good death’ and the ‘bad death’ and the role of compassion and values in the debate on legalising assisted dying. Although it was carried out in 2017, much of what we found seems relevant to now.   https://lnkd.in/eM4HuAud   #AssistedDying #EndOfLife #UKParliamentDebate #PalliativeCare #MedicalEthics #HealthcarePolicy #LegislativeReform

Today is the International Day of Older People! It's a great day to share a progress report on the federal implementation of the 2022 National Strategy to Support Family Caregivers. This report from the U.S. Department of Health and Human Services (HHS), through its Administration for Community Living, was delivered to Congress with updates on 350 commitments by federal agencies. Explore the report and data tables to identify opportunities for states to partner with the 15 federal agencies and continue the progress in implementing the National Strategy. https://loom.ly/B0p_AAw

Nearly 1.4 million California children, and more than 15 million children nationwide, have or are at increased risk for a chronic health condition and require care and related services of a type or amount beyond that required by children generally. KidsData have also identified that children with special health care needs (CSHCN) are more likely to have multiple ACEs as well. Visit KidsData to learn how we can support children with complex health care needs and their families: https://buff.ly/4bCWmoz.

The COVID-19 pandemic exacerbated the need for accessible care and resources, especially for individuals who faced increased barriers to behavioral health support during a critical time of need. Explore how plan sponsors that capitalize on the virtual model can help eliminate barriers to care and reduce spending. #WeAreEvernorth

Today is World Hypophosphatasia (HPP) Day! Let’s raise awareness about this rare condition that affects both children and adults. Learning more is the first step toward understanding and supporting those impacted by HPP. Explore our resources and webinars to dive deeper into HPP and other rare conditions and help make a difference. Visit hgfound.org for more information. Together, we can drive change and promote better care! 💚 #WorldHPPDay #Hypophosphatasia #RareDiseases #BoneHealth #PatientSupport #MedicalResources

Rural mountain towns across the U.S. - particularly in the Rocky Mountain states – are grappling with a mental health and substance use crisis. While many factors may be contributing to these challenges facing mountain communities, limited access to health care and resources almost certainly plays a significant role. In July 2022 Clinica Family Health – in partnership with Mental Health Partners – opened two small clinics to serve our mountain communities: one in downtown Nederland and another just outside Black Hawk. Both clinics offer a wide range of affordable medical, dental, and mental health services to individuals and families – services which are dearly needed in these long-neglected communities. Read more about our mountain clinics. https://lnkd.in/g2tPW2xP