Cure EB Foundation

Help us turn hope into healing! This EOFY, support Cure EB Foundation’s mission to find a cure for epidermolysis bullosa. Your donation can make a world of difference. Together, we can make dreams of a cure a reality. Help us cure EB! 💙🦋 https://lnkd.in/gkznVME5 #charity #EpidermolysisBullosa #raredisease #donate #EBawareness

Tough Tilly Day 2025 was a spectacular success! Thank you to all attendees, sponsors, and volunteers who supported us in the 40-degree heat to raise funds for EB research. Special recognition to Savage Force for their $12,000 tribute to Luke Gassa – a remarkable supporter whose legacy continues to inspire. Together, we’re accelerating treatments and bringing hope to those affected by EB. #ToughTillyDay #CureEB

Tough Tilly Day 2025 - 2 weeks to go 🙌 Tickets —> Cureeb.org.au/TTD2025 Don’t miss out!

✨ Get Ready for Tough Tilly Day – Fun for the Whole Family by the River! ✨ 📅 When: Saturday, 4th January 2025 📍 Where: Perricoota Station 🎟️ Tickets on Sale Now: https://lnkd.in/gNd_v39a Gather the family and join us at Perricoota Station for an unforgettable day along the river in support of those living with Epidermolysis Bullosa (EB). Every ticket sold goes directly to funding research to find a cure – let's make a difference together! 🎉 What’s On: 🎶 Live Music 🍔 Food Trucks 🎨 Face Painting 🐑 Petting Farm 🎈 Bouncy Castle And much more! Tough Tilly Day has something for everyone, with fun activities to bring the community together in a meaningful way. Make memories, enjoy a great day out, and help us work toward a future free of EB. Don’t miss out – grab your tickets today! 👉 https://lnkd.in/gNd_v39a #ToughTillyDay #CureEB #FamilyFun #FindACure https://loom.ly/4kGxjQo

✨ Get Ready for Tough Tilly Day – Fun for the Whole Family by the River! ✨ 📅 When: Saturday, 4th January 2025 📍 Where: Perricoota Station 🎟️ Tickets on Sale Now: https://lnkd.in/gNd_v39a Gather the family and join us at Perricoota Station for an unforgettable day along the river in support of those living with Epidermolysis Bullosa (EB). Every ticket sold goes directly to funding research to find a cure – let's make a difference together! 🎉 What’s On: 🎶 Live Music 🍔 Food Trucks 🎨 Face Painting 🐑 Petting Farm 🎈 Bouncy Castle And much more! Tough Tilly Day has something for everyone, with fun activities to bring the community together in a meaningful way. Make memories, enjoy a great day out, and help us work toward a future free of EB. Don’t miss out – grab your tickets today! 👉 https://lnkd.in/gNd_v39a #ToughTillyDay #CureEB #FamilyFun #FindACure https://loom.ly/4kGxjQo

Thank you for coming and helping make such an incredible day! We really appreciate everyone involved in helping raise the much needed funding for cure EB foundation and others!

Mick Fanning Golf Day Melbourne 2024 Thanks to everyone who organised and made this day so memorable on EB Awareness Day 🩵 #epidermolysisbullosa #ebawareness #golfday #celebrities #sayitwithme #cureeb #mickfanning

Thanks for the shout out this morning, FiFi, Fev & Nick! We're also looking forward to Mick Fanning's Golf Day and are so proud to be one of the chosen charities for this fantastic fundraising event. Every bit of support helps us get closer to a cure for EB! Hear the full interview below. #CureEB #MickFanningsGolfDay #FundraisingForACure #SupportEB #CharityEvent #GolfForGood #FifiFevNick #ResearchMatters #EpidermolysisBullosa #CharityGolfDay

🎟️ Tickets are now on sale for Tough Tilly Day 2025! 🎉 Last year’s event SOLD OUT, so make sure to grab your tickets early and don’t miss out on this exciting day filled with entertainment for the whole family! #ToughTillyDay #FamilyFun #EntertainmentForAll #Fundraiser #SupportEB #CureEB #TicketsOnSale #DontMissOut #SaveTheDate #CommunityEvent

On Friday, we had the pleasure of hosting our Annual Ladies Lunch in support of raising funds to Cure Epidermolysis Bullosa (EB). It was a fantastic event filled with entertainment, including live music, a dazzling drag performance, a talented sketch artist, and some glitter art fun. But most importantly, we had the opportunity to share the powerful stories of families living with EB—their journeys, their challenges, and what a cure would mean to them. A massive thank you to our incredible guest speakers, our wonderful MC, the volunteers, and everyone who joined us on the day. The Cure EB Foundation wouldn't exist without each and every one of you. Your support is what keeps us going, and for that, we are deeply grateful. Thank you! Special mention to Cara Connor (née Crawley) & Daisy Burley (née Lynch) the masterminds behind Curate & Deliver who made the event fabulous! #CureEB #EpidermolysisBullosa #AnnualLadiesLunch #Fundraiser #SupportEB #HopeForACure #EBAwareness #CharityEvent #ThankYou #MakingADifference #CommunitySupport #FundraisingForACure