ME Group Australia

The proposed changes to the NDIS are being rushed, with reforms set to roll out by September 2025. These changes lack adequate co-design, testing, and piloting, putting the safety, health, and wellbeing of participants at risk. Every week, almost 600 people are being removed from the scheme without foundational supports in place, leaving many vulnerable. At Verve OT, we’ve added our logo as a co-signatory to the Every Australian Counts campaign statement, calling on the government to: 👉 Take the time to get it right. 👉 Commit to genuine co-design. 👉 Prioritise the safety and independence of participants. This isn’t just a call out to the OTs in my network but to anyone in the disability community who believes these reforms are being rushed and placing people at risk. If you agree, consider adding your organisation’s name as a co-signatory. I’ve added the statement details and email address in the comments below. Together, we can stand up for what’s right and ensure the NDIS remains a lifeline for those who need it most.

Dear our valued supporters, collaborators, followers, and everyone whose path crossed with us this year Thank you for being part of our journey. We hope we made some impact during the year by sharing our knowledge and lived experiences. We are grateful for your time in understanding what is Myalgic Encephalomyelitis (ME) and how people with ME exist, and why we have embarked on this crazy journey to establish speciality clinic to care for those who are excluded by the system. Our work is grassroots, and we are acutely aware of the challenges we need to conquer and work we need to do to achieve our dream. For now, it was time to rest & recuperate and enjoy time with family & friends. We wish you safe and happy holiday seasons and see you and work together again in 2025. Warmest regards Team MEGA 💙

There are 3 things that always confuse OTs that are new to using the WHODAS 2.0, but don’t worry, here are the answers you need! The three questions OTs always ask are: 1. What is the go with the rating scale!? Is it 0-4 or 1-5? 2. Should I use simple or complex scoring? And where do you find the complex spreadsheet anyway!? 3. How do I score the “Life Activities” section when the person isn’t working? Watch the video if you’d like me to walk you through the answers! For more tips, keep following Clare Batkin - Your OT Tutor! #OccupationalTherapy #NDIS #ClinicalEducation #YourOTTutor

EOI closes on 16 Dec 2024, 09:00 AM Calling for Australian ME knowledgeable medical professionals to part of important NHMRC Guideline Development Group. Note: Information was shared with us via social media. Please directly check with RACP for detail. === Seeking a member to join the NHMRC Guideline Development Group for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Summary ----------- Expressions of interest are open for a member to join the NHMRC to help develop guidelines for managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Description ------------- The Department of Health and Aged Care has commissioned the National Health & Medical Research Council (NHMRC) to develop guidelines for the management of Myalgic Encephalomyelitis /Chronic Fatigue Syndrome (ME/CFS). The focus of the new guidelines will be the appropriate diagnosis and management of ME/CFS in the primary care setting. These guidelines will be Australia’s first since the 2002 guidelines developed by the RACP working group. The Terms of Reference are yet to be finalised. It's anticipated that the term of appointment will be approximately 3 years, starting from early to mid-2025; * meetings will be held online only, with approximately 8 meetings across the 3-year term * appointed members will be paid sitting fees based on the number of hours per meeting Criteria -------- The NHMRC has contacted the College advising that they will be establishing a Guideline Development Group and have requested that the College nominate members with expertise in: * management of ME/CFS in children * management of ME/CFS in adults * structured rehabilitation relevant to ME/CFS * other experience with management relevant to ME/CFS (specify in your application) The NHMRC will undertake their own selection process to determine membership of the Guideline Development Group. Nominations are for individual appointment to the Guideline Development Group, with members acting in an expert capacity, not as a representative of the RACP or any RACP group. Apply ------- To apply, submit your expression of interest form (DOC) and CV (no more than 3 pages) to (email address is in the below link). For more information contact (email address in the below link) referencing ‘NHMRC ME/CFS’ in the subject line. Creation Date: Dec 5, 2024, 09:00 AM Closing Date: Dec 16, 2024, 09:00 AM #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #ClinicalGuideline #EOI https://lnkd.in/gK6Y_beu

The flavour of the month for OTs in the private sector has been NDIS report writing. There has been an influx of requests for reports for plan reviews, functional capacity assessments, eligibility reassessments and more. But at the same time, it has been more difficult than ever to get our recommendations over the line. If you’re looking for some ideas to improve the quality of your reports, here are 3 quick tips to get you started: 1. Provide clear descriptions of your client’s function. 2. Use standardised assessments that add value 3. Include references to articles and guidelines. Check out this video to find out a little more about each of these things. P.S. There’s not much you can explain in a 2-minute video, but would you like to see HOW to do these things? Check out the comments for more ways to learn with Your OT Tutor. #OccupationalTherapy #NDIS #YourOTTutor

https://lnkd.in/eWFcrGTW

Happy December! Here is our December Newsletter. We hope you find this edition interesting. Warmly Team MEGA 💙 #Newsletter, #MyalgicEncephalomyelitis, #MEcfs, #LongCovid, #NeuroimmuneDisease #Disability #Startup #Charity #NotForProfit #ForPurpose #Healthcare #NDIS #HealthLiteracy #MEGAdream https://lnkd.in/gABN3GxJ

Happy December 💙 #Research participation recruitment from PhD candidate at University of the Sunshine Coast. Participation is open for #HealthConsumers and #HealthProfessionals. If you are interested in participating or have questions, please check details in the below flyer. #ResearchRecruitment #Healthcare #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #HealthLiteracy === Shianne is completing her PhD at University of the Sunshine Coast. She is recruiting research participants for her study on #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome / #Fibromyalgia (ME/CFS/FMS).  She is conducting an online survey to gather what information, people who have been diagnosed with ME/CFS/FMS know about their condition. This information will inform her and help her write guidelines and intervention for these conditions. https://lnkd.in/grZFQEMj

The Count Us In campaign is here to drive meaningful change for people affected by neurological conditions. Together, Neurological Alliance Australia is advocating for neurological conditions to receive the attention they deserve and empowering our communities to make our voices heard. Find out more and take action 👉 https://bit.ly/3CGZ5Rj #CountUsInNeuro Dementia Australia Huntington's Australia MS Australia Mito Foundation MJD Foundation Parkinson's Australia Childhood Dementia Initiative Muscular Dystrophy Australia MND Australia Spinal Muscular Atrophy Association of Australia Inc. Polio Australia Muscular Dystrophy Foundation Australia Leukodystrophy Australia Fragile X Association of Australia Inc Brain Foundation Epilepsy Foundation of Australia Stroke Foundation Epilepsy Action Australia Meningitis Centre Australia Neurological Council Of Western Australia

🔗 https://bit.ly/3ZfBGzc Managing life with ME/CFS isn’t easy. As a mother and occupational therapist, Amy Mooney shares essential tools and insights developed from her journey supporting a loved one with this complex condition. This blog covers practical strategies to: 🔹 Track symptoms and daily abilities 🔹Advocate for medical and educational support 🔹Access home and virtual healthcare services Whether you're a caregiver, healthcare professional, or family member, these tools are designed to make a meaningful difference. Join Amy on this path to clearer, more empowered care. ➡ Read the full blog: https://bit.ly/3ZfBGzc #SevereME #MECFS #LongCOVID #caregiving #NationalFamilyCaregiversMonth