SCD Diagnosis - Whether You’re Born With It, or It’s Diagnosed Later
Genetic testing is a powerful tool that can provide you with critical information about your health and the health of your future children.
Beyond Superheroes: Why Seeking Help Is Essential for Caregivers
Caregiving requires incredible strength, resilience, and compassion – traits that no one person can sustain indefinitely alone.
Asking for Help, Reaching Out for Support
Although living with sickle cell disease has sometimes benefited me by helping me realize who my true friends are more quickly than I could have known without it, I’ve still crossed paths with amazing people who have genuinely cared for me in my times of need.
School and Sickle Cell Disease: Empowering Success Through Awareness and Support
School is one of the most crucial environments for growth, learning, and socializing, but for children with sickle cell disease, it can also present unique challenges.
The Important Role of Knowledge in the Management of Sickle Cell Disease
Many health care professionals in the hospital did not have a deep understanding of sickle cell disease. Without this knowledge, it is difficult for them to provide the best care.
My Five Steps When a Sickle Cell Crisis Starts
When a crisis starts, it feels like the peaceful existence I once knew is crumbling away.
