Acromegaly Canada

Don't forget! Our gift card fundraiser wraps up soon. You get the full value of a gift card, we get a donation from FundScrip. Win-win! Details and order forms: https://lnkd.in/gDhg95FC

Just added: special promotions for our 2024 gift card fundraiser! 🎁 This campaign helps us raise awareness, educate, advocate, and support our acromegaly and gigantism community. In plenty of time to help with your holiday shopping, you can purchase gift cards to over 160 major retailers, restaurants, activities, and more. You get 100% of your purchase amount--it's the exact same gift card you'd purchase at a shop. The bonus: thanks to a group called FundScrip, we then receive a donation for each gift card purchased. 🤝 Ready to shop? Details and order forms can be found on our website! Visit https://lnkd.in/gT4rnfQf The campaign will run through Friday, November 15, to ensure cards arrive ahead of the gift-giving season. Thank you for your support. 💝 #Fundraiser #Acromegaly #Gigantism

Inspired by Acromegaly Awareness Day and want to help acromegaly patients get diagnosed sooner? Read on for an opportunity to participate in a study led by St. Michael’s Unity Health Toronto. ⤵️ We know that earlier diagnosis usually improves outcomes and quality of life. Please take part in our international research study that uses computer technology to try to diagnose patients sooner by detecting the earliest features of acromegaly. We are looking for individuals who currently have or previously had acromegaly (including gigantism) or other types of pituitary adenomas/tumours to participate. Your participation in this study is critical to help develop the most accurate tools for diagnosis and greatly improve the quality of life of future patients. In this study, you will be asked to upload your photographs and complete a questionnaire, for use in a machine learning analysis. You can access the study using the link provided below. If you have questions about taking part in this study, you can send an email to the research team at acromegaly-research@smh.ca or telephone at 001-416-864-5312. Thank you for considering participation in this project. For more information on the study or to participate, please click on the URL link below or enter it in your browser or scan the QR code: https://lnkd.in/gUsBYFFK #AcromegalyAwarenessDay #Acromegaly #Gigantism #Pituitary #RareDisease #AcromegalyResearch

Looking to learn more about acromegaly? Visit acrHOMEgaly: an innovative, interactive resource to explore daily life with acromegaly. Take a guided tour or click the clues to learn about: → Common signs and symptoms → Co-morbidities, such as high blood pressure and diabetes → Tips to improve quality of life → 3D visualizations of physical changes → Glossary of terms → Additional resources 🔗 Visit acrhomegaly.ca. Pour la ressource en français, visitez lamaisondelacromegalie.ca. #Acromegaly #PituitaryDisease #RareDisease

"You don't look like you have acromegaly!" A common hurdle in an #acromegaly diagnosis is outdated or inaccurate assumptions of how acromegaly presents. Often, images are of people who have suffered for years or even decades without being treated. In reality, people with acromegaly may have only very slight changes to their appearance, especially if caught early. And an early diagnosis leads to a much better quality of life! Huge thanks to Beverley Norman for this graphic. #AcromegalyAwarenessDay #AcromegalyAwareness #PituitaryDisease #RareDisease

Acromegaly can sometimes feel overwhelming and isolating, for patients and caregivers. "I've just been diagnosed--I've never even heard of acromegaly." "My partner is scheduled for pituitary surgery...what is the recovery like?" "I'm really struggling lately." We have an amazing community to offer support and answer questions--virtually or in-person. Visit AcromegalyCanada.ca to find a group near you. #AcromegalyAwarenessDay #Acromegaly #Pituitary #RareDisease

What does Acromegaly Awareness Day mean to the acromegaly community? From celebration to recognition to contemplation, our members share their thoughts. What does this day mean to you? #AcromegalyAwarenessDay #Acromegaly #PituitaryDisease #RareDisease

Today is #AcromegalyAwarenessDay. While rare, the condition is underdiagnosed, leading to years of questions, concerns, and suffering as individuals seek answers. Improved diagnostic tools and increased awareness means thousands of people are getting faster access to treatment...and living fuller lives. But there is still a long way to go--many cases go undetected for years. Join us today in sharing resources to help people get the care they need! Visit www.AcromegalyCanada.ca to learn more about this condition. #Acromegaly #AcromegalyAwareness #AcromegalyDay #RareDisease #RareDiseaseAwareness

Acromegaly can cause a wide range of symptoms, some that can be chalked up to other conditions or simply to aging. Others are slow to progress, making them tricky to spot early. These factors plus the perceived rarity of the condition can lead to lengthy diagnostic journeys. Increased awareness will help reduce the current delay in diagnosis. If you or someone you know is experiencing several of these symptoms, speak with your doctor and ask about an IGF-1 test. #AcromegalyAwarenessDay #Acromegaly #Pituitary #RareDisease

Today, November 1, is Acromegaly Awareness Day. Acromegaly is caused by excess production of growth hormone in adults, usually due to a tumour on the pituitary gland. There are many signs and symptoms, but they are often attributed to other conditions. This means it can take years to get diagnosed, leading to the disease worsening--along with quality of life. Join us today in sharing resources to raise awareness + reduce the time to get treated. #AcromegalyAwarenessDay #Acromegaly #Pituitary #RareDisease