BC SUPPORT Unit

Our sincere thanks to everyone who joined Putting Patients First 2024! We hope you made new connections and learned new ideas to help make lasting changes in the health system. Thank you for coming together to advance learning communities in BC. #PPF24 Michael Smith Health Research BC Canadian Institutes of Health Research | Instituts de recherche en santé du Canada Can-SOLVE CKD Network - Le réseau Can-SOLVE CKD CHILD-BRIGHT Network

Are you a patient partner, researcher, university staff, or health research funding organization staff who has experience on academic health research? If so, we would love your input!   Maritime SPOR SUPPORT Unit , Horizon Health Network, and Centre for Research in Integrated Care, UNB are conducting a study to explore the barriers and facilitators to compensating patient partners. Your insights will contribute to learning more about the barriers to providing and receiving patient compensation and the impacts on equity-denied groups. Join us in helping improve patient engagement and inclusion in Canada: https://bit.ly/3Z8FAIS

Once data collection is finished, patient partners can help analyze and interpret a study’s findings. They can identify themes from interviews or focus groups. They can also highlight key takeaways from the findings, to share with patients, communities or the public. Like every journey, every research project is unique. Our road map tool guides you through ways that patient and public partners can meaningfully engage in a project, from start to finish. Explore the map: https://lnkd.in/gejuQmdS #PatientOrientedResearch #PatientEngagement

Putting Patients First 2024 is just a few days away! We're excited for folks to join us on November 14, 2024. Can’t come in-person? Watch the virtual livestream, starting at 8 a.m. PT on November 14. Livestream link on our website: https://bit.ly/4bfAu2f #PPF24

Have you read the latest newsletter from Michael Smith Health Research BC? Subscribe for updates on patient-oriented research in BC. #HealthResearch #PatientOrientedResearch

Check out our top stories and highlights this fall: 1. Q&A on patient-oriented research with Dr. Davina Banner-Lukaris “Patient partnerships humanize the research process. When a patient partner shares their experiences, we all become patients. It changes the lens – it changes it all. There’s just a different level of insight that’s achieved.” Read the interview: https://bit.ly/3Aoai8m 2. BC SUPPORT Unit: Our impact The BC SUPPORT Unit transforms how people’s experiences shape health research and health care. We support vital work in all of BC’s health regions and beyond to advance patient engagement in research. Learn about our impact: https://bit.ly/4eYipY8 3. Patient committee uplifts rural, remote perspectives in BC’s interior “As patients in rural and remote areas, we bring with us a lived experience that just can’t be experienced in a city,” says Paul Burgener, a patient partner and resident of Nelson. “What works in an urban centre won’t always work in a rural and remote community. We need to be a part of decisions that are made about us.” Read the story: https://bit.ly/3ZPCmfb #PatientOrientedResearch #HealthResearch #Health Canadian Institutes of Health Research | Instituts de recherche en santé du Canada Michael Smith Health Research BC Interior Health Authority University of Northern British Columbia (UNBC)

Did you know that patient partners can help with data collection? They can carry out interviews, surveys or focus groups. With their lived experience, they can shape the way that information about their communities is gathered and conveyed. Like every journey, every research project is unique. Our road map tool guides you through ways that patient and public partners can meaningfully engage in a project, from start to finish. Explore the map: https://lnkd.in/gejuQmdS

🍂 Interested in learning more about the importance of safeguarding Indigenous data and knowledge when conducting health research? On November 14, join CHILD-BRIGHT's EDI-DI Co-Lead Marlyn Bennett for an illuminating fall webinar! Attendees will gain a deeper understanding of the pivotal role that data sovereignty plays in: 🔸empowering Indigenous communities  🔸preserving cultural heritage  🔸 ensuring that data is used in ways that respect Indigenous values and traditions Register today! 💻 https://lnkd.in/emWPs8y9

We transform how people’s experiences shape health research and health care. “People’s lived experiences have the power to transform health research,” said Monica Mamut, unit director, BC SUPPORT Unit. “That’s why we’re continuing to engage patients, partner on data and build learning communities. Over the next three years, we’ll create sustainable change to improve people’s health in BC.” Download our fact sheet and read about our impact: https://lnkd.in/gPYEh258 Michael Smith Health Research BC Canadian Institutes of Health Research | Instituts de recherche en santé du Canada

Please welcome Dr. Kerry Kuluski as our plenary speaker for Putting Patients First 2024! Kerry works with patients, families and care providers to co-design strategies and improve health-care experiences. She will share how three Ontario hospitals deliver high-quality care, with teams that use new approaches focused on patients and families. Learn more: https://bit.ly/4bfAu2f #PatientOrientedResearch #HealthResearch Trillium Health Partners Can-SOLVE CKD Network - Le réseau Can-SOLVE CKD CHILD-BRIGHT Network