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Spinal CSF Leak Canada Charitable Organization
Non-profit Organizations
Ottawa, Ontario 409 followers
Spinal CSF Leak of Canada is a national health charity 717019681RR0001
About us
The Spinal CSF Leak of Canada is a national health charity, fueled by volunteers and donors, with a vision to improve the health and lives of Canadians suffering from spontaneous intracranial hypotension (SIH) caused by spinal cerebrospinal fluid leaks (“CSF”), and to help equip the Canadian medical community to combat this condition within the country.
- Website
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http://www.spinalcsfleakcanada.ca
External link for Spinal CSF Leak Canada Charitable Organization
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Ottawa, Ontario
- Type
- Nonprofit
- Founded
- 2018
Locations
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Primary
O'Connor St
2000
Ottawa, Ontario, CA
Employees at Spinal CSF Leak Canada Charitable Organization
Updates
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🎉 Happy New Year from all of us at Spinal CSF Leak Canada! 🎉 As we step into 2025, we are filled with gratitude for our incredible community. Your generosity and support help us continue our mission—to advocate for greater awareness, expand educational initiatives, and fund research aimed at improving the diagnosis, treatment, and outcomes for individuals affected by spinal CSF leaks. Thank you for being part of this journey—we couldn’t do it without you. Wishing you and your loved ones a year full of health, hope, and healing.
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« Spontaneous intracranial hypotension due to a CSF leak mimicking a pituitary tumor (false pituitary tumor)or a Chiari malformation (pseudo–Chiari malformation) has become well recognized over the last few decades, but a misinterpretation of the imaging, as occurred initially in this patient, remains common. » ⬇️⬇️⬇️ Schievink WI, Hui FK. Spinal Cerebrospinal Fluid Leak Mimicking a Cerebellopontine Angle Tumor. JAMA Neurol. 2024 Dec 16. doi: 10.1001/jamaneurol.2024.4322.
Case report describes a patient’s experience after seeking a second opinion regarding a brain tumor. https://ja.ma/49D6MUS
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Mild cognitive impairment in spontaneous intracranial hypotension and its rapid reversal by repair of a spinal cerebrospinal fluid leak Dr. Katharina Wolf et al. https://lnkd.in/gwMBX4Kb
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🌟 Connie’s Journey with spinal CSF leak🌟 "I’m incredibly thankful to have my life back. I hope that by sharing my story, I can help others who are facing similar challenges." – Connie Connie’s story is a testament to hope, perseverance, and the importance of raising awareness for spinal CSF leaks. Read Connie's story here: https://lnkd.in/dH7bGT-U #SpinalCSFLeak #SIH #PatientStories #StandUpForALeaker
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"As Neuroradiologists, our work doesn’t end in the reading room." _ Andrew Callen MD Congratulations to Andrew Callen, MD on his secondary appointment in the Department of Neurology at @CUAnschutz! This achievement speaks volumes about his dedication to both his profession and patient care. We are fortunate to have him on our medical advisory Board.
Associate Professor of Neuroradiology and Neurology at The University of Colorado School of Medicine
I'm deeply honored to share that I have been granted a secondary appointment in the Department of Neurology at the University of Colorado School of Medicine. I am incredibly grateful to my Neurology colleagues not only for offering this opportunity but for graciously welcoming me into their clinic space, which has allowed me to work more closely with patients, reinforcing my belief that as Neuroradiologists, our work doesn’t end in the reading room.
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📢 New Resource: The Spinal Cerebrospinal Fluid (CSF) Leak Pamphlet This pamphlet aims to provide a clear understanding of spinal CSF leak, covering symptoms, causes, diagnostic methods, treatment options and aftercare guidance. We hope this pamphlet serves as an informative resource for understanding the condition and can also be shared with family and friends to help them better understand spinal CSF leaks. Link to download: https://lnkd.in/gf_dG7yW **A French version of the brochure will be available soon.** #SpinalCSFLeak #SIH #PatientResources #SpinalCSFLeakCanada
Info Brochure — SPINAL CSF LEAK CANADA
spinalcsfleakcanada.ca
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A heartfelt thank you to everyone who generously donated on Giving Tuesday—your support means so much! 💜 Your contributions are helping us improve access to care and outcomes for patients suffering from #spinalCSFleak. If you haven’t had a chance to give yet, there’s still time to make a meaningful impact. Every donation brings us closer to making a difference! https://lnkd.in/ePj55VV #standupforaleaker #spinalCSFleak #SIH #youarenotalone
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YOUR SUPPORT OF SPINAL CSF LEAK CANADA HELPS SUFFERERS FROM SPINAL CSF LEAK. Every contribution helps fund essential programs such as: 💜Resources for Patients and Their Loved Ones. 💜Advocacy Efforts. 💜Research Initiatives to answer critical questions about spinal CSF leaks. 💜Educational Webinars and Medical Conferences to expand knowledge and improve care. We invite you to consider making a donation to help us ensure that individuals suffering from spinal CSF leaks do not face this challenging journey alone! To donate: https://lnkd.in/ePj55VV Together, we can work toward a future with greater understanding, enhanced care, and brighter outcomes for everyone affected by spinal CSF leaks.
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Don't miss out this free webinar organized by the🇬🇧CSF Leak Association Speaker: Dr. Sanjay Cheema, lead author of the UK’s first guidelines on managing spontaneous CSF leaks To register: https://lnkd.in/ge6r9v9v
Free Monthly CSF Leak Webinars Launch with UK Medical Experts
csfleak.uk