Prader Willi Syndrome Association Ireland

We are delighted to announce that the FIRST Prader Willi Syndrome Respite Service in the world has opened in Ireland, Ait Shona (Happy Place). A huge thank you to Resilience Healthcare, Anne Rabbitte T.D., Bernard O Regan, the HSE, the NCPDD and to all those we've worked alongside over the many years to make this project a reality. Thank you to our families and people with PWS for their continued support. To those of those who have served on the Board of PWSAI and the Respite & Residential Sub-committee - thank you. Without your drive and passion to improve the lives of all those living with PWS this would not have been possible. We wish everyone who stays in Ait Shona a lovely, fun and enjoyable holiday. #praderwillisyndrome #respiteservice

Following the launch of Ait Shona, our dedicated respite service for children and adults with PWS, our amazing Regional Operations Manager Lynsey Moorehouse and Rory Tierney, Prader Willi Syndrome Association Ireland Chair appeared on Newstalk to discuss the positive impact this will have on people with PWS and their families🏡🧡 #ResilienceHealthcare #PWS #PraderWilliSyndrome #HAVEPositiveImpact #RealisingPotential #3X10X Listen back here: https://lnkd.in/ecA4itQ4

A momentous day happened on March 28th 2024 for PWSAI as we launched the Joint National Report with the HSE (Irish health service). The report details eight recommendations for the development of high quality, safe and effective health and social care services for people living with PWS. Recommendations include: • Quality and delivery of health and social care services • Respite services • Residential services • Day services (new direction) • Acute services • Mental health services • Educational and lifelong supports for people with PWS • Psychological supports for families Yesterday PWSAI was heard. The voices of people with PWS and their families were heard. The future for all is looking brighter but as Chairperson Rory Tierney said at the launch, the work begins now. This report can’t be left to sit on a shelf. PWSAI welcomes the announcement by Bernard O’Regan of an implementation group and a monitoring group to action the recommendations. “This report needs to make a difference to all my friends with PWS” - Richard, an adult with PWS who spoke at the launch sharing his experience of living with PWS With the fantastic news that Minister O’Gorman announced at the launch about the PWS respite service opening this summer, we in PWSAI believe that the PWS respite service is one step in the right direction, creating a better future for all people with PWS and their families. Thank you to everyone who came to the launch yesterday. A momentous day. #praderwillisyndrome

We are delighted to announce the launch of the Joint National Report by the HSE and PWSAI on Thursday 28th March 2024 in the Aishling Hotel, Dublin. Registration will be from 11-11.30am followed by the launch of the report by Minister for Children, Equality, Disability, Integration and Youth Roderic O'Gorman, Bernard O Regan Head of Operations, Disability Services HSE, PWSAI Chairperson Rory Tierney and Gary Brennan National Development Manager PWSAI at 11.30am. To RSVP please fill in the form https://lnkd.in/e49qFFWZ #praderwillisyndrome #hse #pwsai

Taking it one step at a time - LORRAINE GRIFFIN, who was appointed chairperson for Deloitte Ireland last May, spoke to Mary McCarthy in the Irish Independent about her career path, gender equality, and her life at home: https://deloi.tt/3H7otOR #DeloitteIreland #ImpactThatMatters

Great day in Cork supporting Making Advocacy real. Lots to take back to our SUAS group..