Vasculitis Expertise Center Groningen

Dr. Sebastian Sattui will discuss Polymyalgia rheumatica (PMR), the most common systemic inflammatory disease in people over the age of 50, during a live presentation Tuesday, December 10, 3:30 - 4:30 CT. PMR is characterized by pain and stiffness primarily affecting the upper arms, neck, lower back, and thighs. PMR can be associated with Giant Cell Arthritis (GCA) in some patients. Dr. Sattui, Assistant Professor of Medicine and Director of the Vasculitis Center at the University of Pittsburgh, will present an overview about PMR and discuss the clinical manifestation, diagnosis, treatment and management of the disease. He also will share current research and clinical studies for this disease. Following his presentation, Dr. Sattui will take questions from the audience. Register today at https://lnkd.in/g-Ss9Gfw

We need your help! If you have PMR (polymyalgia rheumatica) or GCA (giant cell arteritis), please fill out this survey! It would be an immense help for the community with these rare conditions. https://lnkd.in/e6Gq8yKJ

Achievement unlocked: PhDone. On November 6, after just over five years of research, I successfully defended my thesis, "𝑪𝒊𝒓𝒄𝒖𝒍𝒂𝒕𝒊𝒏𝒈 𝑰𝒎𝒎𝒖𝒏𝒆 𝑷𝒓𝒐𝒇𝒊𝒍𝒆 𝒊𝒏 𝑮𝒓𝒂𝒏𝒖𝒍𝒐𝒎𝒂𝒕𝒐𝒔𝒊𝒔 𝒘𝒊𝒕𝒉 𝑷𝒐𝒍𝒚𝒂𝒏𝒈𝒊𝒊𝒕𝒊𝒔: 𝑫𝒆𝒆𝒑 𝑷𝒉𝒆𝒏𝒐𝒕𝒚𝒑𝒊𝒏𝒈 𝒐𝒇 𝑩 𝑪𝒆𝒍𝒍𝒔 𝒂𝒏𝒅 𝑩𝒆𝒚𝒐𝒏𝒅", marking the official end of my PhD journey. If you're interested, you can check out the thesis here: https://lnkd.in/e7QjKAUu A big thanks to my supervisors Nico Bos, Peter Heeringa, Bram Rutgers, and Wayel Abdulahad د. وائل حبيب عبدالاحد and everyone who supported me along the way. Now, let’s see what comes next. #PhD #Horafinita #Translationalresearch #Immunology #Autoimmunity #Vasculitis #ANCAassociatedvasculitides #Bcells #Deepphenotyping #Spectralflowcytometry #UniversityofGroningen #UMCG

During the annual meeting, we took the opportunity to have a chat with project coordinator Bert Windhorst about the progress of ongoing clinical trials. In the video below, Bert shares exciting updates on how these trials are advancing. #ClinicalTrials #TotalBodyPET #ImmuneImaging #CancerTreatment #immunotherapy

Check out this new publication from our group! In this study, we analyzed the negative selection of PR3-specific autoreactive B cells in the bonne marrow of non-autoimmune subjects compared with patients with #ANCA-associated vasculitis. A great collaboration with colleagues and friends at Università di Trento and Mayo Clinic! Stay tuned for more great research projects in this field! New developments to come with the Marseille Immunology Biocluster! Alvise Berti Sophie HILLION LBAI - B Lymphocytes, Autoimmunity and Immunotherapies - Inserm U1227 Université de Bretagne Occidentale Inserm Inserm Grand Ouest CHU de Brest Direction Recherche Clinique et Innovation LabEx IGO FAI2R Filière de Santé Réseau CRI-IMIDIATE Club Rhumatismes et Inflammations CRI Marseille Immunology Biocluster Vasculitis Foundation FRANCE VASCULARITES Raphaël DARBON

Diagnostiek en behandeling van reuscelarteriitis Sinds vorig jaar hebben we in Nederland de Richtlijn voor de diagnostiek en behandeling reuscelarteriitis (RCA). Voor Gewrichtige Gesprekken spraken Nienke Lesuis en Caroline Aalbers met de voorzitter van de richtlijn commissie: Elisabeth Brouwer, internist-reumatoloog in het UMCG. Naast een overview van de richtlijn krijg je ook praktische tips voor in de spreekkamer en hoor je hoe Liesbeth onze duivelse dilemma’s pareert! Luister de podcast via de bekende podcast platforms 🎧 Nederlandse Vereniging voor Reumatologie (Dutch Society for Rheumatology) Vasculitis Expertise Center Groningen #gewrichtigegesprekken #vasculitis #reuscelarteriitis #arteriitistemporalis Orly Media

Maria Sandovici

We had the opportunity to speak with Jan-Willem Boiten, the leader of Work Package 2 (WP2) in the Immune-Image project. WP 2's main task is on data storage and analysis enablement. In the article, Jan-Willem shares exciting insights into the progress and future plans of his work package, highlighting the strides made in developing a robust data infrastructure that underpins the project’s clinical and imaging data needs. Read more: https://lnkd.in/eEYU6DGd #DataStorage #DataInfrastructure #MolecularImaging #ImmuneImaging #immunotherapy

It was 5 years ago that I was asked to get involved in the Vifor Pharma campaign to help provide useful, practical information for people with Vasculitis and their families. I was fortunate to meet Shanila Perera who created the artwork to support the campaign – an artist, rheumatologist and vasculitis patient. Also to work with the wonderful John Mills MBE, founder of Vasculitis UK, who sadly has now passed away. And was given the chance to travel to Barcelona to speak at an international conference to clinicians about the rare disease from a patient’s perspective. I do hope the website which shares the stories of patients -Hear Me See Me - is still proving to be useful helping people who live with this rare & often debilitating disease https://lnkd.in/eMV8kgB6 #vasculitis @EGPA Vasculitis UK Vasculitis Foundation Dijana K. VIFOR PHARMA UK LIMITED Vasculitis Expertise Center Groningen ANCA/GPA Vasculitis Foundation

To align Immune-Image procedures with patient needs, a patient panel was set-up. The patient panel is divided into an oncology and an inflammatory disease taskforce. In the article we give an update about the patient panel. Read more: https://lnkd.in/eXgmeqUQ #PatientPanel #ImmunoImaging #ClinicalTrials #CancerTreatment #MolecularImaging