STAND4Kids

The STAND4Kids’ team wishes a Merry Christmas and a great year of 2025!

𝐏𝐫𝐨𝐦𝐨𝐭𝐢𝐧𝐠 𝐏𝐚𝐞𝐝𝐢𝐚𝐭𝐫𝐢𝐜 𝐂𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐓𝐫𝐢𝐚𝐥𝐬 𝐢𝐧 𝐏𝐨𝐫𝐭𝐮𝐠𝐚𝐥 The STAND4Kids Project Lead, Ricardo Fernandes was interviewed for the podcast 🎙"𝑆𝑜𝑏 𝑎 𝑙𝑢𝑝𝑎 𝑑𝑎 𝐼𝑛𝑣𝑒𝑠𝑡𝑖𝑔𝑎𝑐̧𝑎̃𝑜 𝐶𝑙𝑖́𝑛𝑖𝑐𝑎"🔎 by Catarina Raposo and Carolina Neves, students of the Master Degree in Clinical Research from the Faculdade de Medicina da Universidade de Lisboa, on the topic of the promotion of pediatric clinical trials in Portugal. This podcast is promoted by CRO CETERA under the scope of the Clinical Research Master Degree of Faculdade de Medicina da Universidade de Lisboa and is developed with by the first year students on the theme of clinical research. 🎧https://bit.ly/4fWcQu7 (podcast available in Portuguese). ______________________________________________________ #FMUL #CETERA #CROCETERA #education #training #clinicalresearch #masterdegree #podcastcetera #sobalupadainvestiugaçãoclínica

Catarina Raposo was born in Lisbon and is 22 years old. Ever since she was little, she has been driven by an insatiable curiosity and, as a child, she dreamed of becoming a veterinarian, a historian and a teacher, motivated by the desire to make a difference. With many passions, choosing just one was never easy, and it was this diversity of interests that always pushed her to explore new paths. At the age of 6, she started on an 11-year journey into the world of music. The violin shaped her life, and much of who she is today is due to music. Despite this passion, she decided to pursue another interest: health. She graduated in Biomedical Sciences from the Universidade de Aveiro and is currently studying at the Master's Degree in Clinical Research from the Faculdade de Medicina da Universidade de Lisboa. It was during her master's that she discovered the area of Pediatric Clinical Trials, which combines everything that motivates her, finding a way to unite her scientific curiosity with the desire to make a difference. She is currently doing her Master's internship at our National Network collaborating in activities to support the implementation and management of pediatric clinical trials. We hope that this internship will be an enriching experience and full of success! _______________________________________________________________ #STAND4Kids #Pedicatricclinicalresearch #Health #Training #Internship

𝐜𝟒𝐜 𝐈𝐧𝐭𝐞𝐫𝐧𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐒𝐲𝐦𝐩𝐨𝐬𝐢𝐮𝐦 On 13 & 14 November 2024, our team participated joinly with Prof. M Paula Macedo, Vice-President of AICIB - Agência de Investigação Clínica e Inovação Biomédica, at the c4c International Symposium, which was held in Amesterdam. This key event was fundamental to celebrate the success of the conect4children (c4c) project, to share the achievements and results of the c4c project, including the start-up of the not for profit, c4c-S (conect4children Stichting), that continues outside of the c4c consortium. By sharing the c4c successes it was also shown how future partners will be able to use the results of the project. Our huge thank you to the teams that organized this valuable iniciative in pediatric research: University of Liverpool, Penta Foundation - Child Health Research __________________________________________________________ #collaboration #clinicaltrials #medicineforchildren #c4c #conect4childrenStichting #pediatricresearch

📢 Our "Highlights" this month are dedicated to our activities from July to October. 👀Check out our highlights with the main activities of STAND4Kids network towards the promotion of high quality pediatric clinical trials in Portugal. ______________________________________________________________ #pediatrictrials #network #collaboration #bettermedicinesforchildren #pediatricresearch ⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇⬇

Our STAND4Kids team participated in the 24th National Congress of Pediatrics, which took place from October 23 to 25 at the Algarve Congress Center in Vilamoura. Our special thanks to the Portuguese Society of Pediatrics (SPP) for this opportunity to disseminate pediatric clinical research. ___________________________________________________________________ #STAND4Kids #pediatricresearch #dissemination #scientificevents

Yesterday, our team and the Young Persons Advisory Group (YPAG) Lisboa team, represented by Sofia Moeda had the opportunity to participate in the conect4children meeting dedicated to 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐚𝐧𝐝 𝐏𝐮𝐛𝐥𝐢𝐜 𝐈𝐧𝐯𝐨𝐥𝐯𝐞𝐦𝐞𝐧𝐭 (𝐏𝐏𝐈). A meeting with insightful discussions and interactive conversations on how to include the voice of children and their families in clinical research! Thank you to all participants for sharing experiences on meaningful PPI ativities. Thank you to the Steering Commitee for inviting us! Begonya Nafría Escalera Segolene Gaillard Pamela Dicks Jenny Preston ________________________________________________________ #PPI #c4c #eYPAGnet #YPAG #

Carolina Neves is 23 years old and grew up in Riachos, Torres Novas. Her favourite movie is Mamma Mia, which combines two of her favourite hobbies, music and cinema. When she was just one year old, her parents enrolled her in swimming, and her passion for the sport was so great that she still competes today. She also loves to read, finding books a “𝑤𝑎𝑦 𝑡𝑜 𝑟𝑒𝑙𝑎𝑥 𝑎𝑛𝑑 𝑒𝑥𝑝𝑙𝑜𝑟𝑒 𝑛𝑒𝑤 𝑖𝑑𝑒𝑎𝑠”. Her interest in health began in childhood, when, at the age of 4, she decided she wanted to be a pediatrician. She graduated in Biomedical Sciences from the University of Aveiro, but it was during her Master's in Clinical Research at the Faculdade de Medicina da Universidade de Lisboa that she discovered the area that most interested her: pediatric clinical trials. She is currently developing her internship project at our network focusing on “𝐏𝐞𝐝𝐢𝐚𝐭𝐫𝐢𝐜 𝐇𝐞𝐚𝐥𝐭𝐡 𝐋𝐢𝐭𝐞𝐫𝐚𝐜𝐲” and is also our most recent Project Assistant. Ready for new learning and challenges, Carolina is inspired by Nélson Mandela's famous quote “𝐸𝑑𝑢𝑐𝑎𝑡𝑖𝑜𝑛 𝑖𝑠 𝑡ℎ𝑒 𝑚𝑜𝑠𝑡 𝑝𝑜𝑤𝑒𝑟𝑓𝑢𝑙 𝑤𝑒𝑎𝑝𝑜𝑛 𝑦𝑜𝑢 𝑐𝑎𝑛 𝑢𝑠𝑒 𝑡𝑜 𝑐ℎ𝑎𝑛𝑔𝑒 𝑡ℎ𝑒 𝑤𝑜𝑟𝑙𝑑”. Welcome Carolina! _____________________________________________________ #Literacy #Health #Training #Internship #Pediatricresearch

Great talk from our Trial Portfolio Specialist, Inês Amaral on "𝐓𝐫𝐢𝐚𝐥 𝐒𝐞𝐫𝐯𝐢𝐜𝐞𝐬 𝐨𝐟 𝐜𝟒𝐜-𝐒" at the 10th Congress of the European Academy of Paediatric Societies (EAPS 2024) that was held in Vienna on 17th - 20th October 2024.

On October 15, the #STAND4Kids team had the opportunity to participate in a meeting dedicated to the 𝐜𝐡𝐚𝐥𝐥𝐞𝐧𝐠𝐞𝐬 𝐢𝐧 𝐩𝐞𝐝𝐢𝐚𝐭𝐫𝐢𝐜 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡: 𝐭𝐡𝐞 𝐢𝐦𝐩𝐨𝐫𝐭𝐚𝐧𝐜𝐞 𝐨𝐟 𝐢𝐧𝐭𝐞𝐫𝐧𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐜𝐨𝐥𝐥𝐚𝐛𝐨𝐫𝐚𝐭𝐢𝐨𝐧 in a day that brought together industry and research institutions. 𝐓𝐡𝐞 𝐦𝐚𝐢𝐧 𝐭𝐨𝐩𝐢𝐜 𝐩𝐫𝐞𝐬𝐞𝐧𝐭𝐞𝐝 𝐟𝐨𝐜𝐮𝐬𝐞𝐝 𝐨𝐧: 📍The ÚNICAS project: an innovative model to take care of children with rare diseases. 📍 Update about the advances in clinical research in Spain. 📍 Cross-border clinical trials. 📍 Language discrimination in the access to cross-border paediatric clinical trials. 📍 The c4c-S: Spin-off from the conect4children project. 📍 Parent's board at RECLIP Network We would like to thank the organization for inviting us to this key event on paediatric clinical research and the speakers for their excellent presentations and productive discussions! ➡️ Begonya Nafría Escalera ➡️ Barcelona Children's Hospital Sant Joan de Déu ➡️ Esther Montero Campos ➡️ Ricardo Fernandes ➡️ Mark Turner ➡️ Francisca Patuleia Figueiras ➡️ Inês Amaral ______________________________________________________ #pediatricclinicalresearch #collaboration #pediatricclinicaltrials