Multiple System Atrophy Trust

We were delighted to welcome our Board of Trustees to our office yesterday afternoon, following the final Trustee Board meeting of 2024. Thank you to all our Trustees who generously volunteer their time and expertise to drive positive change for the MSA community we are proud to serve.

Thoresby Park had snow earlier in the week, here's hoping there won't be any next weekend, when we gather with our MSA community for tree planting at Sarah's Wood.

Tickets are still available for our MSA Study Day for Health & Care Professionals (HCP's).   The day will be held at the Business Design Centre in London on the 6th March and will be a hybrid event.   We have some great speakers lined up such as the experienced Neurologist Henry Houlden, Clinical Research Fellow Dr Yen Goh and many more.   Don't just take our word for it, here is what previous attendees have said about our study days:   It's been fantastic and really informative - thank you!   A really excellent day. High quality speakers, well organised. Very relevant topics. Online and in person options appreciated.   Really good range of presentations for lots of different professional groups   Encourage your HCP's to attend; you can buy tickets here - https://lnkd.in/ecUT6JYC

We’re excited to announce our third Multiple System Atrophy (MSA) Research Symposium, taking place on April 25, 2025. Building on last year’s successful event with over 170 attendees, this year’s symposium will cover identifying prodromal MSA, advancing early diagnosis and exploring biomarkers. We’ll also share the latest progress in MSA drug trials. We look forward to keeping everyone updated- https://lnkd.in/eK8mn_Wk Please note this event is for researchers, academics and Health and Care Professionals only. If you are living with MSA, or are supporting a loved one with the condition, and have questions about the programme, please get in touch and we will direct you to suitable resources.

Reflections from our amazing team day yesterday…….thanks to everyone who organised, ran, cheered and supported our efforts to raise valuable funds for the Multiple System Atrophy Trust 🧡🏃🏼♀️

We’re excited to share that our entire organisation, including the Information and Services, Healthcare Professionals, Social Welfare Specialists, and Fundraising teams, came together in person to discuss the progress of our 2024-2027 MSA Trust Organisational Strategy. Later, we were joined by our Trustees to further review our strategic direction. We look forward to updating our members on the progress we’re making and how we plan to move forward in the coming years!

What an amazing day we had yesterday at the Yorkshire Marathon! The rain did little to dampen the spirits of our 3 relay teams. Each team started together and finished together with huge smiles all the way round. Thank you to the team at Run for All for a wonderfully organised event. We would definitely recommend the Corporate Challenge! Thank you to everyone who braved the wind and rain to cheer us on and a HUGE thank you to everyone who has donated to our fundraiser in aid of the Multiple System Atrophy Trust. We are delighted to have smashed our fundraising target to help this great cause continue to provide their essential services. THANK YOU! It’s not too late to sponsor our team! Please see the link in the comments. None of this would have been possible without the great sports at SJP Law who set their alarms for 5am on a Sunday morning to band together to get 3 teams around the 26.2 mile course. Thank you for taking part and making it a day to remember! Keep up the training whilst we find our next challenge! #YorkshireMarathon #sjplaw #teambuilding #marathonrelay

Meet Andy, our newly appointed co-Chief Executive. Andy has just celebrated 10 years with the Trust, where he has played a crucial role in developing our services for people affected by multiple system atrophy (MSA). His responsibilities also include implementing the Trust's strategy, improving services for people affected by MSA through liaising with external organisations and ensuring effective safeguarding . Andy’s extensive experience and dedication to supporting everyone affected by MSA make him an invaluable asset to our team as we continue to advance our mission of finding the cause and eventually a cure.

Team SJP Law have been clocking up the training miles ahead of Sunday’s Yorkshire Marathon Relay. We have seen some lovely sun rises, super moons and beautiful cows on our training routes and are race day ready! 💪 The Team WhatsApp notifications are pinging away with song suggestions for our playlists, the best race day snacks and how many emergency ponchos we need to order! We are so grateful for the support for Team SJP and the Multiple System Atrophy Trust. There is still time to support this great cause and help get our 3 Relay Teams over the finish line in what looks like a wet and windy Sunday. We are so proud of all our team members and their pre-race efforts. Thank you to everyone who is taking part and a BIG thank you to our supporters. Watch this space for post-race photos! #YorkshireMarathon #sjplaw #teambuilding #marathonrelay 

Wishing Team SJP Law the best of luck at their upcoming Yorkshire Marathon. Thank you for all of your support. #GoTeamSJPLaw