The Neurological Alliance

What does sustained campaigning achieve? Stella Vig shares her thoughts. #BackThe1in6

After Lord Darzi's rapid review found that the role of patient voice needs to be increased in the NHS, our report explores the appetite among voluntary sector organisations, healthcare professionals, NHS commissioners and managers to ensure patient experience is considered a core measure of NHS performance. Learn more https://bit.ly/3BnuBDh #NHS #Patientvoice

BREAKING: Government launches the first-ever UK-wide Neuro Forum, following the #BackThe1in6 campaign, which was supported by 19,000 people & 100 organisations. When we work together, we CAN achieve real change. Thank you. Learn more https://bit.ly/417Ces7 #BackThe1in6

If you could change one thing about the NHS right now, what would it be? Please put your answer in the comments. Thank you

A huge thank you to everyone who took part in My Neuro Survey 2024 and all our member organisations and supporters who shared the survey with their communities, encouraged people to share their experiences and helped us reach more people. #MyNeuroSurvey 2024 is now closed. Over 9,500 people affected by neurological conditions (we're still counting your responses), including adults, children and carers, have taken part, sharing their experiences of life with a neurological condition and giving insight into care, treatment and support. Thank you for helping us to be an even louder voice for change. We will be publishing a report into the findings in mid-2025 – watch this space! It has been wonderful to collaborate with the Neurological Alliances of Scotland and Wales and the Northern Ireland Neurological Charities Alliance, and The Neurological Alliance of Ireland too. The results will be used to lobby government and healthcare providers, including NHS bodies, to commission, fund and improve care, support and services for everyone affected by neurological conditions. To make sure you're the first to hear about the results, please sign up to our newsletter at https://bit.ly/3OfJlqU. Thank you. [IMAGE DESCRIPTION: three floating balloons on a purple background. Logos of the Neurological Alliances of England, Scotland, Wales, Ireland and the Northern Ireland Neurological Charities Alliance. Text: Thank you for taking part. My Neuro Survey has now closed.] #BackThe1in6 #Neurology #Disability #Neuroscience @neuro-alliance-scotland NORTHERN IRELAND NEUROLOGICAL CHARITIES ALLIANCE Wales Neurological Alliance

If you could change one thing about the NHS right now, what would it be? Please put your answer in the comments. Thank you

What one word would you use to describe good care for neurological conditions? Please put your answer in the comments. Thank you. [ID: WORD CLOUD: holistic, timely, respectful, clear, joined, timely]

CLOSING MIDNIGHT TONIGHT: My Neuro Survey is closing at midnight tonight. You can still complete the survey online at https://bit.ly/40MYCqH or call survey provider Revealing Reality on +44 (0)20 7735 8040 and ask to complete My Neuro Survey (standard network rates apply). Thank you.

Final call to share your experiences and make your voice count! #MyNeuroSurvey closes tomorrow. Fill it out to help improve treatment, care and support. https://bit.ly/3C2Rrv7

The largest survey of people in the UK and the Republic of Ireland affected by neurological conditions is closing in 2 days! Fill it out to help improve treatment, care and support for everyone affected. https://bit.ly/3C2Rrv7