Sanius Health

Sanius is proud to unveil this year's Top 80 Most Influential People in Sickle Cell Disease, recognising the incredible contributions of patients, carers, advocates, and healthcare professionals who are shaping the future of SCD. Discover the stories, celebrate the achievements, and join us in honouring the trailblazers making a difference in the SCD community. View the list here: https://lnkd.in/dUpF7UvZ #SickleCellAwareness #Top80SCD #SCDCare . Sanne Lugthart , Teresa Ginger Davis, PhD , Dr Oliver Shastri , Kim Summers , Reia-Phelica DaCosta , Reto Wirz , Jenica Leah , Dr. Rossby Awadzi , Orlando Agrippa , Marsha Treadwell , Adekunle Gold , Samira Haruna Sanusi , Beverley Stephanie George BSc Hons, MSc , Clifton Kirkman II , Cece Calhoun MD MPHS MBA , Prof. Bola Owolabi, MRCGP MFPH(Hon), FRSPH

Thrilled to share that Song Kim presented our abstract, Enhanced Artificial Intelligence (AI)-Driven Prediction of Vaso-Occlusive Crises in Sickle Cell Disease: Precision through Advanced Machine-Learning Frameworks and Digital Remote Monitoring, at #ASH24! This research represents a step forward in leveraging cutting-edge AI and digital tools to better predict and manage vaso-occlusive crises in individuals living with Sickle Cell Disease. We're excited to continue advancing this work to improve patient outcomes and support the SCD community. Song Kim Orlando Agrippa Kim Summers Muna Y. David Ade-Odunlade Sanne Lugthart Andrea Preston

Can the UK deliver on Lord Darzi’s recommendation of shifting towards care closer to home and digital transformation? Huge question, with so many complex parts- some of which I’ve had the pleasure to discuss with multidisciplinary colleagues and experts over the past couple of months. At the International Myeloma Societys annual meeting in Rio, I joined a panel of expert clinicians including Beth Faiman PhD, MSN, APN-BC,BMTCN, AOCN, FAAN, FAPO Monica Morris Rahul Banerjee Mary Steinbach, DNP, APRN and Vincent Rajkumar at the Nurse and Allied Health Symposium hosted by Tracy King Our session focused on real world solutions to treatment delivery challenges. As a clinical community we of course greatly welcome the increasing volume of myeloma treatments available, but need to consider innovative ways to deliver this safely to to an aging population with multiple co-morbidities. Increasing treatment delivery closer to home being key. More recently at the Proud2bOps meeting I joined a leadership panel with Stella Vig Anna Winyard Joanne Street and Sue Barnett to explore future models for shifting care to the community and digital transformation. Here over 200 system leads from 100+ trusts met to foster collaboration and share practical solutions to meet the most pressing operational challenges. Optimising the use of data and digital tech being crucial to progress. What truly stood out is the passion, dedication and vision of such a range of professionals, all involved in the delivery of #patient and ‘person centred’ care. Placing technology in our care pathways optimally is key, and we need to progress acute step down models in parallel with prevention; supporting management of long term conditions and enabling earlier detection of health issues (e.g. new symptoms, markers of disease relapse, treatment toxicities and more). At Sanius Health we are passionate about empowering patients to understand and manage their health better through a combination of wearable tech, patient self-reported outcomes and a patient support team. We have been delighted to present the results of our work at a number of conferences this year including #BSH24, #EHA24, #BOPA2024, and #CMLHZ24, sharing the impact on patient’s quality of life, unmet needs, reduced touch-points into the NHS and more. We look forward to presenting some of our most recent data at #ASH24 shortly. With strong leadership and listening to all stakeholders (critically patients) we can ensure this investment is utilised optimally and choose the right patients, right conditions, right tech/ innovations, and right settings to move this forward, not forgetting how we support those with restricted digital access along the way. Orlando Agrippa Sanius Health Meet Health Events

Sanius Health is thrilled to announce that the nominations are officially open for the Top 80 Most Influential People in Sickle Cell Disease 2024! This initiative aims to honour the dedicated researchers, clinicians, advocates, and community leaders who are making a meaningful difference in the lives of those affected by Sickle Cell Disease. In these challenging times, support and recognition are more crucial than ever. We invite you to nominate individuals who have played a vital role in promoting Sickle Cell Disease awareness, education, treatment, and support. Submit your nominations through the link below: https://shorturl.at/I34hK We’re also excited to announce that the Haematology Patient & Carers Congress is coming back for a second time in May 2025. We hope to see you all at the there. Don’t forget to pre-register for the event here: https://lnkd.in/eAT8MZbr #Top80SCD #Sicklecelladvocates #Sicklecellawareness #Amplifyyourvoice

Today, Sanius Health joins the global community in celebrating World CML Day. On this day, we are joining the global haematology community in recognising the importance of raising awareness, celebrating achievements, and recommitting to support those living with CML. In collaboration with patients, clinicians, and researchers, we remain driven inbuilding upon these achievements. Alongside the CML community, we are reaffirming our commitment to further improve patient outcomes and quality of life for those living with CML. Jane Apperley Orlando Agrippa @Mhairi Copland Sanne Lugthart #CML #WorldCMLDay #Patients #Innovation

This #sicklecellawarenessmonth, we're looking back at some of the advancements the SCD community has made in terms of treatment, research and enhancing quality of life. We have seen remarkable progress across these domains, but there is still more to do to elevate care, opportunities and therapies for SCD. On behalf of our ecosystem, our core purpose is to enhance visibility on the realities of living with SCD. This drives our partnerships with patients, clinical and research partners to ensure that unmet patient needs are addressed, access improved and - ultimately - well-being for the SCD community is ensured. Sanne Lugthart Vincent Sai Shirley D'Sa Eric Low Sanius Health Andrea Preston #SCD #SCDAwarenessMonth #AI #Technology #Patients #Innovation

The future of UK healthcare is at a crossroads, with AI integration, digital health records, and primary care evolution at the forefront. Contributors to the Tony Blair Institute for Global Change, including Sanius Health's Vincent Sai contributed to a Tony Blair Institute paper, highlighting how primary care can revolutionise elective recovery efforts. The Sanius-Modality partnership exemplifies this potential, showcasing innovative approaches to outpatient services and waitlist management. Discover how we're reimagining healthcare delivery by reading the article below: Orlando Agrippa Mina Gupta Sanne Lugthart Shirley D'Sa #nhs #primarycare #electiverecovery #ai 

https://lnkd.in/gJbFPSEA For my UK connections - would you be able to support me during my upcoming run by making a donation to Cure Leukaemia ? I am running ~10k but Cure Leukaemia’s CE James McLaughlin is running 220 miles ! This is for better treatments / more cure / less side effects and more clinical trials for blood cancer. Cure Leukaemia is a charity that has helped many centres in the UK with more access to clinical trials. Support Cure Leukaemia #cureleukaemia

We were really happy to share our preliminary findings on wearables in #Waldenstrom at #ASCOBT24 My thanks to Orlando Agrippa Kim Summers for the opportunity to do this work. We are looking forward to continuing our collaboration with Sanius Health at University College London Hospitals NHS Foundation Trust and UCL Cancer Institute

As we celebrate #WorldSickleCellDay, we are reminded of the resilience and strength of the Sickle Cell community. These themes of resilience and strength feel more relevant than ever following the passing of Aisatu King in February, an inspirational advocate and member of our community. Rest In Peace, Aisatu. #WorldSickleCellDay #WSCD2024 #sicklecellwarriors #SCD #RareDisease #AdvocacyMatters