Sarcoma UK

⏰ We invite people who work in or with the NHS, researchers and other professionals to submit responses to Sarcoma UK's State of the Nation review BEFORE 9 DECEMBER. Patients, former and current, as well as carers are also welcome to share their views. https://lnkd.in/eRGRvx6W

We are thrilled that the unbelievably talented Liam Tamne, as seen on The Voice, is starring in our Christmas Carol Concert. 🎄 🗓️ Date: Tuesday 10 December 2024 ⏰ Time: 7:00 PM 📍 Location: St Giles in the Fields Join us for an evening of unforgettable music, joy, and support for everyone affected by sarcoma. 🎟️Limited tickets available at https://lnkd.in/eW_MxXGa

We were honoured to host this year’s Sarcoma UK Shining Star Awards at the magnificent Mansion House on Tuesday. 🌟 The evening was filled with inspiration, recognition, and heartfelt celebration of the extraordinary individuals making a difference in the sarcoma community. 💙 Thank you to everyone who attended, supported, and shone brightly with us on this special night. Together, we continue to raise awareness and bring hope to all those affected by sarcoma. Read more about this year's Shining Star Awards at https://lnkd.in/eh7FcZ4r

Investigating new and better treatments is the area of sarcoma research we have invested the most in so far. By investing in this research, we can discover more effective therapies, which attack the cancer more precisely, reduce harmful side effects, and improve survival rates and quality of life for patients. Our funding supported Professor Adrienne Flanagan's team at UCL make major strides in understanding chordoma - a rare sarcoma and identifying potential treatments. The team tested over 1,000 different drugs and found that existing treatments used in other cancers targeting EGFR – a receptor involved in cancer growth - could effectively kill chordoma cells in the lab. This research helped launch the first randomised clinical trial for chordoma, paving the way for potential new therapies. While these results are promising, it's important to note that more research is needed to ensure it is an effective and safe and safe treatment option for chordoma. The team’s findings were featured in six scientific journal publications, including a significant paper on EGFR inhibitors in The Journal of Pathology. Thanks to your support, these breakthroughs could change the future of treatment for people with sarcoma. Learn more about our Research here: https://lnkd.in/e4NsRz3v

Our thoughts about Liz Hatton, who has died. Kerry Reeves-Kneip, Director of Communications at Sarcoma UK said: “It is with profound sadness that we learn of the death of Liz Hatton, a talented young photographer who touched many hearts and whose life was tragically cut short by sarcoma. At Sarcoma UK, we are deeply moved by her story and the courage she demonstrated in facing this challenging disease. We were privileged to have met Liz and her mother, working with them to share her powerful story and raise awareness about the impact of sarcoma. To work with them was a humbling reminder of the strength, resilience, and hope that can emerge even in the most challenging circumstances. Our collaboration to bring her story to the press was not just about raising awareness, but about humanising the experience of young people facing rare and aggressive cancers. Liz Hatton's remarkable photograph of the Princess of Wales captured a moment of genuine human connection that resonated with people around the world. Her talent and spirit shine as a testament to the potential and resilience of young people facing serious illness. Her passing is a stark reminder of the urgent need for continued research and better treatments for sarcoma - a rare and aggressive form of cancer that affects too many young lives. Our thoughts are with Liz's family, friends, and all those who knew and loved her during this immensely difficult time. We honour Liz's memory and her contribution to raising awareness about sarcoma, hoping that her legacy will inspire continued support for research and understanding of this devastating disease.” These photos were taken by Liz at Charles Geoffrey’s London Fashion Week show.

Calling nurses and AHP working with people with sarcoma. We have 10 places for the British Sarcoma Group conference in Gateshead, March 2025. The British Sarcoma Group conference is an excellent opportunity to network with the clinical teams across the country and hear both national and international speakers talking about all things sarcoma. All names will be put into a digital hat and picked at random. https://lnkd.in/etUeDFwx

So far, we’ve invested over £8 million across 98 research projects with the aim of improving outcomes for people affected by sarcoma. Follow along with our series as we share highlights and the impact of this research: https://lnkd.in/e4NsRz3v

Spread the joy this festive season with our beautiful Sarcoma UK Christmas cards! 🎄✨ Each pack includes 10 cards, complete with bright red envelopes. Choose from options with a classic 'Merry Christmas' message inside or blank for your own heartfelt words. Share the holiday spirit while supporting Sarcoma UK. Let your loved ones know you're thinking of them with a card that makes a difference. 💌 Available at: https://lnkd.in/e8Mb3teg

Our final Shining Star Awards post celebrates even more wonderful winners from last night’s event at Mansion House. ✨ Sarcoma Healthcare Professional Innovation and Excellence of the Year 2024 🏆 Liz Ridgway, University Hospitals Plymouth NHS Trust Liz’s innovative work in healthcare is transforming sarcoma treatment and care for patients nationwide. ✨ Sarcoma Support Group Champion of the Year 2024 🏆 Kate Munday-Hoctor Kate’s unwavering dedication to creating a safe and supportive space has become a vital lifeline for parents navigating their child’s sarcoma diagnosis. ✨ Roger Wilson Inspiration of the Year 2024 🏆 Darrell McDonald Diagnosed with ultra-rare synovial sarcoma on his 40th birthday, Darrell turned his experience into a message of hope through his book Straight Red?, inspiring countless others while raising funds for Sarcoma UK We want to thank everyone who supported the Shining Star Awards including SpringWorks Therapeutics, Inc. who kindly sponsored this event. Full list of winners here: https://lnkd.in/eCwXArnG

Last night at the magnificent Mansion House, we celebrated the second annual Shining Star Awards, honouring the wonderful people and groups who make Sarcoma UK’s work possible. 💙 ✨ Gaz Emmerson Fundraiser of the Year 2024 🏆 Chris Whellams Chris’s unwavering commitment and creativity in fundraising have been truly inspiring, making a real difference to the sarcoma community. ✨ Research of the Year 2024 🏆 Introduction and Impact of Routine Whole Genome Sequencing in the Diagnosis and Management of Sarcoma by James Watkins and team, East Genomics Laboratory Hub James’s groundbreaking research on whole genome sequencing is transforming sarcoma diagnosis and treatment, offering new hope to patients. ✨ Group Fundraisers of the Year 2024 🏆 Team Chazza - The Charlie Hunt Group Fund This fantastic team fundraises tirelessly in memory of Charlie Hunt, who sadly lost his life to sarcoma. Through their efforts, they’ve raised crucial funds and awareness, helping to create a lasting impact for those affected by sarcoma. ✨ Young Sarcoma Voice of the Year 2024 🏆 Amelie Callanan Diagnosed with sarcoma at five and undergoing a leg amputation, 11-year-old Amelie is now an aspiring Paralympian, inspiring young people across the UK with her passion and advocacy for a brighter, more inclusive future. This event was kindly sponsored by SpringWorks Therapeutics . https://lnkd.in/eM2u2c_U