Hope for HIE (Hypoxic Ischemic Encephalopathy)

It was an honor to be interviewed alongside these prominent figures in neonatal neurology. https://bit.ly/3ZW89dY

✨ Family Spotlight: The Niblett Family ✨ We’re constantly inspired by incredible families - like the Niblett Family - who transform their experiences with HIE into opportunities to make a meaningful impact in the lives of others. Not only has Romm and his family taken an active role in advancing HIE research in Australia through their work with Argenica Therapeutics - Argenica Therapeutics- a biopharmaceutical company developing neuroprotective therapies, but Romm also serves as a peer support mentor for Hope, offering guidance and connection to other families navigating the HIE journey. Their dedication to supporting others and advocating for progress reflects the heart of what Hope for HIE is all about—assuring families that no one walks this journey alone. 🩵 Read more about their story and how to Give Hope: https://lnkd.in/eRugFM6R #GiveHope #HopefortheHolidays #HopeforHIE #hypoxicischemicencephalopathy #HIE #HIEawareness #HIEsupport #advocacy #HIEAdvocacy #argenicatherapeutics #biotech

Save the date for Hope for HIE’s January’s Support Group Sessions! ➡️ Hope for HIE's support groups aim to engage families in a space of healing and hope, no matter where their journey may take them, talking with others to build connections and support. ➡️ All events, with the exception of our Work/Life balance session, peer-led by Allison Moise, will be hosted by our social worker on a closed Zoom meeting experience and are designated for parents and legal guardians of children with HIE, unless otherwise specified. ➡️ Registration Links: 🔗Newly Diagnosed Families: TINYURL.COM/NewtoHIE  🔗Loss Families: TINYURL.COM/HIELossSupport    🔗Work/Life Balance: https://lnkd.in/gBqjfim7  🔗BIPOC Support: TINYURL.COM/HIEBIPOCJan25 #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #NICUsupport #PICUsupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness

❄️Give Hope for the Holidays this season and experience the impact of our incredible Hope for HIE community. ❄️ This holiday season, we’re celebrating the incredible volunteers who make the Hope for HIE community so special, like Lynn Garrison, who serves as one of our Peer Support Mentors. For Lynn, it’s about being a source of comfort and guidance to other families while helping Hope for HIE grow: “I hope the part I play helps the organization continue to expand and reach families in new and amazing ways, just as it has done since we first joined.” 🩵Read more about Lynn’s story at https://lnkd.in/dhmihGA6  #GiveHope #HopefortheHolidays #HopeforHIE #hypoxicischemicencephalopathy #HIE #HIEawareness #HIEsupport #SupportbyHope #ConnectedbyHope #PeerSupport

Join Hope for HIE on Thursday, January 23rd at 12:00 PM ET for our video support group designated for our parents and legal guardians within the BIPOC community. ➡️ In this closed Zoom meeting led by Hope for HIE's licensed social worker, Jen, and facilitated by one of our peer support mentors – Megan Carter – families will be engaged in a space of healing and hope, talking with others to build connections and support. ➡️ Register using this link: Tinyurl.com/HIEBIPOCJan25  #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #NICUsupport #PICUsupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #BIPOC #BIPOCSupport #BIPOCCommunity

Join Hope for HIE on Thursday, January 16th at 8:00 PM ET for our video support group session designated for parents balancing a career while managing the responsibilities of caring for a child with HIE and their unique medical needs. ➡️ This closed Zoom session is led by one of Hope’s Peer Support Mentors– Allison Moise – to help lead families in a space of support, healing, connection, and hope. 🔗 Register using this link: https://lnkd.in/gae3B5BE #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #NICUsupport #PICUsupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #WorkLifeBalance #WorkingParent #MentalHealth

Join Hope for HIE on Thursday, January 9th at 8:00 PM ET for our video support group session designated for loss families. Parents and legal guardians who have lost their children due to HIE, either at birth or in childhood, are invited to participate in this support group. ➡️ In this closed Zoom meeting experience facilitated by Hope’s social worker, families will be engaged in a space of healing and hope, no matter where their journey may take them, talking with others to build connections and support. 🔗 Register at: Tinyurl.com/HIELossSupport #HopeforHIE #HypoxicIschemicEncephalopathy #HIEsupport #NICUloss #NICUlosssupport #PICUloss #NICUsupport #PICUlosssupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #HIEloss #NeonatalLoss

Join Hope for HIE on Thursday, January 2nd at 8:00 PM ET for our monthly video support group session for parents and legal guardians new to HIE (within one year of diagnosis). ➡️ In this closed Zoom meeting experience, facilitated by one of Hope’s Peer Support Mentors – Allison Moise – families will be engaged in a space of healing and hope, no matter where their journey may take them, talking with others to build connections and support. ➡️ Register at: Tinyurl.com/NewtoHIE #HopeforHIE #HypoxicIschemicEncephalopathy #HIE #HIEsupport #NICU #NICUsupport #PICU #NICUsupport #PICUsupport #ConnectedbyHope #Neonatology #ChildNeurology #NewbornBrains #HIEawareness #NewtoHIE

✨ Family Spotlight: The Hartzel Family ✨ We’re inspired every day by the incredible families in our community, like the Hartzel Family, who have leaned on Hope for HIE’s Child Life Specialist, Annie Gunning, CCLS, GC-C, as well as our #SuperSibs support programming, to help navigate the unique challenges of this journey. Their story highlights the importance of family-centered support, ensuring that no one is forgotten and every member has the resources and guidance they need to face the challenges of HIE with knowledge and resilience. 🩵 Read more about the Hartzel Family’s journey and how you can Give Hope for the Holidays: https://lnkd.in/eSCvp9HV   #GiveHope #HopefortheHolidays #HopeforHIE #HIEawareness #HIEsupport #HIEfamily #HIEcommunity #ChildLifeonCall #SupportSpot

❄️ Give Hope for the Holidays this season and experience the impact of our incredible Hope for HIE community. ❄️ This holiday season, we’re celebrating the incredible volunteers who make the Hope for HIE community so special, like Allison Moise, who is not only our Peer Support Mentor Lead but is also pivotal in supporting families enrolled in the active ReAlta Life Sciences #StarStudy as well as the #CoolPrime clinical trial. For Allison, giving back to the Hope for HIE community is a way to guide families through this journey’s uncertainties: “There are a lot of unknowns in the journey ahead, but there is a strong community here to help you along the way.” 🩵 Read more about Allison’s story at https://lnkd.in/gSwrZKBg #GiveHope #HopefortheHolidays #HopeforHIE #hypoxicischemicencephalopathy #HIE #HIEawareness #HIEsupport #CoolPrime #StarStudy #ClinicalTrials