Hope for HIE (Hypoxic Ischemic Encephalopathy)

That's a WRAP on 2024! There's still time to make your 2024 gift count at Hopeforhie.org/donate

IT'S TIME TO GET HUSTLIN' FOR HOPE! Sign up to be a 2025 Hustle Host for our annual Hustle for Hope 5K! 👉 Becoming a Hustle Host is easier than you might think. We’ll provide you with guidance, resources, and a supportive network every step of the way. 👉 5K YOUR WAY! Whether you choose to host a small, intimate event or a larger community gathering, you can and make a meaningful impact. 👉 Here's what 2024 Hustle Host Star Kacie Miller had to say about her experience: "Organizing a Hustle for Hope 5K gave our community a way to come together for a shared cause. It was inspiring to see everyone rally to raise awareness and support for the HIE community—it was truly rewarding!"  🔗 Sign up at Tinyurl.com/HustleHost 👉 Have more questions? We've got you covered. Visit our Hustle Host FAQ to learn more: Tinyurl.com/HustleHostFAQs Let’s make 2025 our most impactful year yet!

Don't miss this webinar!!! Use the QR code or register here: fcctaskforce.org #nicu #fcc #familycenteredcare #familycenteredcaretaskforce

We are so excited and honored to be selected by Robert Morier as the nonprofit partner for his spring class at Drexel University's Charles D. Close School of Entrepreneurship! 🎉🎉🎉🎉🎉

Ensuring no family faces HIE alone. Connecting and supporting over 10,000 families worldwide since 2010. Newly diagnosed or finding us for the first time? Head to HIE.support to connect in. #HopeforHIE #HIE #HIEawareness #HypoxicIschemicEncephalopathy #HIEsupport #NICU #NICUsupport #Neonatology #ChildNeurology #Neonatal #PatientAdvocacy

So honored to be included in this as a co-author bringing the patient-family perspective. Thank you Courtney Wusthoff for including me — definitely not an easy endeavor to get this done!!! When doing this work, I bring the countless stories of our families — and especially those whose baby’s seizures are missed, which sometimes also closes the treatment window for cooling. So many people are working on that — from the QI impact these new guidelines can have, to people like Geraldine Boylan and Mark O'Sullivan and Lina Chalak who are implementing better screening and EEG tools for neonates in so many ways. And of course the whole #NeonatalSeizureRegistry team, many of whom were co-authors on this.

✨ Family Spotlight: The Jarett Family ✨ We’re continually inspired by remarkable families - like the Jarett Family - who remind us that connection and support can lead to meaningful moments that honor every unique HIE journey. At their wedding, Amelia’s aunt and uncle chose to forgo traditional wedding favors and instead made a donation to Hope in Amelia’s honor, with Amelia serving as their beautiful flower girl! To further raise awareness, they displayed a framed QR code, encouraging guests to learn more about Hope for HIE and their family’s story. It’s these moments in which we’re reminded of the power of family, connection, and the hope that unites us. 🩵 Read more about their story and how you, too, can Give Hope: https://lnkd.in/eNXSkCFn #GiveHope #HopefortheHolidays #HopeforHIE #hypoxicischemicencephalopathy #HIE #HIEawareness #HIEsupport

❄️ Give Hope for the Holidays this season and experience the powerful impact of our incredible Hope for HIE community. ❄️ This holiday season, we’re celebrating the amazing volunteers who make Hope for HIE such a supportive and special community, like Carol Stuart. As our Peer Support Mentor for extended family members and other HIE grandparents, Carol plays a key role in guiding those who are navigating this journey alongside their loved ones. As Carol reflects, bringing the community together “is not only a way to honor my granddaughter but also a way to contribute to the continued growth and hope for all our children and future children impacted by HIE." 🩵 Read more about Carol and her granddaughter, Isabel, at https://lnkd.in/dhmihGA6   #GiveHope #HopefortheHolidays #HopeforHIE #hypoxicischemicencephalopathy #HIE #HIEawareness #HIEsupport #SupportbyHope #ConnectionbyHope #PeerSupportMentor

✨ Family Spotlight: The Arnall Family ✨ We’re continually inspired by remarkable families—like the Arnall Family—who have transformed their personal experience with HIE into a meaningful effort to raise awareness and support others. Braedn has taken an active role in spreading awareness about HIE within his local gym community, using his voice to educate and connect with others. As an HIE Awareness Month Ambassador, he’s made an incredible impact by sharing Hope’s informational resources and engaging in local outreach, helping to ensure that no HIE family feels alone in their journey. 🩵 Read more about their story and how to Give Hope: https://lnkd.in/eh4GUFA5 #GiveHope #HopefortheHolidays #HopeforHIE #hypoxicischemicencephalopathy #HIE #HIEawareness #HIEsupport #advocacy #HIEAdvocacy

2024 has been an INCREDIBLE year of growth -- supporting and connecting over 10,000 families worldwide from 100+ countries, celebrating 10 years as an organization. This work is made possible by our global community coming together to ensure no family faces HIE alone and advance awareness, advocacy, education, research and support. Let's continue doing this great work together with our vision to decrease the incidence and impact of neonatal and pediatric-acquired HIE! #HopeforHIE #HIE #HIEawareness #HypoxicIschemicEncephalopathy #HIEsupport #NICU #NICUsupport #Neonatology #NewbornBrains #ChildNeurology #PediatricNeurology #PatientAdvocacy #Research #NICUresearch #HIEresearch #Advocacy To our collaborators & sponsors: Newborn Brain Society Medtronic Acute Care & Monitoring ReAlta Life Sciences Child Neurology Society Pediatric Academic Societies Meeting American Academy of Pediatrics World Health Organization National Association of Neonatal Therapists (NANT) Child Life On Call National Association of Perinatal Social Workers Critical Path Institute (C-Path) Cerebral Palsy Research Network (CPRN) Eric Peeples Zach Vesoulis Paul Gross Michele Shusterman Andrea Pardo, MD, FAAP, FCNS Nina Natarajan Hannah C. Glass Renée Shellhaas Matthew Mara Seth Warschausky Monica Lemmon Mohamed El-Dib Janet Soul Alexa Craig Brian Kalish Katie Taylor, Certified Child Life Specialist Rhea May Loraine Upham (there are more, but tags are limited!) To our incredible Board of Directors: David F. Danielle Barber Matthew Kegyes Becky Detlef Crystal Kostick & Amy Cutler To our dedicated & talented staff: Deanna Bryan ( who made this video!!!), Annie Gunning, CCLS, GC-C, Haley Thomas, LMSW, Allison Moise, Stephanie Sikorski, Lauren Bonenfant, Gina Abraham Rest, relax, enjoy the rest of 2024 --- gear up for a great 2025! If you are inspired to share or support our work, we thank you! https://lnkd.in/gcMSEKCg