ALS Network

We invite you to join us for Connect, Support, Chat: Loved Ones on January 7 at 11:00 AM PST/ 9 AM HST. For more information and to register contact Facilitator: Kim Venezia, LMFT to participate via Zoom at 510-569-3631 or kvenezia@alsnetwork.org.

Lo invitamos a unirse a Conéctese, Apoyar, Unase: Español. Cuándo: Miércoles, 1/15 4:00 p.m. Hora del pacífico/02:00 p.m. Hora de Hawaii. Por favor, comunicarse por correo electrónico a Debbie Joy djoy@alsnetwork.org para las instrucciones. Please join us on Wednesday, 1/15 at 4:00 PM PDT/2:00 PM HST for Connect, Support, Chat: Spanish Language. Contact Care Manager, Debbie Joy, at djoy@alsnetwork.org for more information about how to participate.

Join us for Adaptive Yoga/Assisted Movement and Guided Meditation on Wednesday, January 8 at 11:30 AM PDT/9:30 AM HST. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and an adaptive yoga specialist. This class is designed for students with limitation of movement due to ALS. It will include all aspects of yoga, including centering, meditation, visualization, yoga poses, breath work and relaxation. To register and for more information, please contact Care Manager, Sara Holiday at sholiday@alsnetwork.org.

Brain health is everyone's issue! This tax season, join the search for effective treatments and cures for #ALS and neurodegenerative diseases by donating a portion of your state income tax return to the California ALS Research Network. You can make a contribution of $1 or more with no maximum on any of these California income tax returns: 540 2EZ, 540, 540NR Long or Short Form, and 541, Schedule C. Let’s #cureALStogether!

President Biden (The White House) signed the “Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act,” (S.141) into law on January 2, 2025. The law increases access to home and community-based care, while reviewing the Department of Veterans Affairs' (VA) caregiver and long-term care programs to improve veterans’ healthcare and benefits. Thank you to California Senator Alex Padilla who co-sponsored this bill. Read House Committee on Veterans’ Affairs Chairman Mike Bost (R-Ill.) statement on President Biden Signing Landmark Dole Act into Law: https://ow.ly/XnfT50UzB62

We are ONE WEEK away from the start of the 2025 Running Bitcoin Challenge! From January 10-31, 2025, YOU can run (or walk, roll, or hike) the equivalent of a half marathon (13.1 mi/21 km) from wherever you are and help raise #ALS awareness and funds to support #ourALScommunity! Join us and be a part of a global challenge that combines legendary cypherpunk Hal Finney's love of running and #Bitcoin and is raising funds and awareness to help cure ALS, the disease that claimed his life. For more information visit: runningbitcoin.us

We invite you to join us for one or more of our January Connect, Support, Chat Groups (ALS Network's version of support groups designed for YOU!). These meetings provide opportunities for individuals to share their personal experiences and to learn more about strategies for preserving the independence and quality of life for people diagnosed withALS and their loved ones. Please visit our online calendar for monthly updates on guest speakers, new topic specific meetings, and date/time changes at calendar.alsnetwork.org.

Happy New Year from your ALS Network family!

In 2024, ALS Network served nearly 2,000 people living with ALS and their loved ones - a family of support for the largest ALS community in the nation. People facing ALS like Sharalyn Hamilton and her husband Sam, are counting on us. Learn more about our impact in 2024: https://lnkd.in/gvDNEWtW With your support, we are closer to discovering effective prevention strategies, treatments, and cures for #ALS. Your gift today provides help and hope to the ALS community. And, today is the last day to receive a 2024 tax deduction for your generous contribution. Give the gift of family today at givefamily.alsnetwork.org

Your caring commitment ensures the ALS Network is a family of support to all in need. Today, we invite you to give the gift of family at givefamily.alsnetwork.org Your donations provide local care services, drive national advocacy efforts, and fuel global research projects that benefit our entire ALS community. Here are some examples of what your gift today makes possible: $100 supports four hours of respite care to provide a break for a family caregiver. $250 funds enrichment activities - after-school programs, summer camps, and more - for a child living with a loved one with ALS. $500 underwrites essential durable medical equipment for those in need of adaptive devices. $1,000 purchases a generator to maintain life-supporting equipment during a power outage or natural disaster. $2,000 to honor the more than 2,000 people with ALS and their loved ones served every year by the ALS Network Make a gift today at givefamily.alsnetwork.org.