Ana Rita Agra de Almeida Quadros’ Post

It's #TriviaTuesday and we're quizzing you on Cures Within Reach 💚 Cures Within Reach’s mission is to leverage the speed, safety, and cost-effectiveness of repurposing, testing already approved therapies for new diseases: driving more treatments to more patients more quickly. Their facilitated research has led to at least 21 treatments in use by patients today or funded for larger confirmatory clinical trials. Examples include projects repurposing both drugs and devices, and projects that impact patients with rare diseases and diseases in larger populations. Their focus is providing seed funds for proof-of-concept or pivotal studies that, when successful, allow a catalytic effect of follow-on funding for trials that build clinical evidence for regulatory approval or for off-label use. They take an impact philanthropy approach that prioritizes patients when selecting repurposing research projects. They support both philanthropic projects, which have little or no commercial value but have critical value to patients, as well as commercial projects, which the industry may bring to regulatory approval and then to market. The proof-of-concept funding of repurposing projects allows researchers and clinicians to leverage positive data into follow-on funding. How many diseases have been researched by CWR? A) 44 B) 59 C) 62 D) 76 Find out the answer and learn more about their impact here: https://lnkd.in/gEF7z8C7 #cure #research #medicalresearch

In a world where medical care accessibility varies widely, CF Vests Worldwide is making waves in bridging the gap for #CysticFibrosis (#CF) patients globally. Founded by Rod Spadinger, this nonprofit is reshaping lives through vital medical equipment redistribution. I had the privilege of speaking with Rod about his journey, the impact of CF Vests Worldwide, and ways to support this noble cause. You can read about our conversation and support the cause through the link below. https://lnkd.in/gmmezwTh

This year, Italian researchers tested the “triple A” model, a groundbreaking approach that helps physicians predict overall survival and the likelihood of complications such as blood clots, hemorrhages, and disease progression in ET patients.  What sets the AAA model apart? It’s highly practical for physicians — even in low-resource regions — using accessible data like age and absolute number of neutrophils and leukocyte cell types. This can help identify high-risk patients earlier, leading to more informed treatment plans for people with ET.  This scientific discovery has a direct impact on patient care. Read more about this important development: https://lnkd.in/gWhcRWEh  Donate today to help us find more answers for those living with MPNs: [ https://lnkd.in/gUAqPckM ]

Hello LinkedIn Network, today is #GivingTuesday, an annual day of giving to support mission-driven organizations across the globe. SalivaDirect, Inc. is a truly amazing organization to work for. We are advancing the field of saliva-based infectious disease diagnostics, coming up with new ways to increase access to diagnostic testing for those who need it, and helping laboratories around the world build their capacity to respond to new health threats. We are hoping to raise $5,000 to support our operations and programs. Can I count on those in my network to support our work to shape the future of diagnostics? #GivingTuesday #philanthropy #nonprofit #fundraising #donorengagement #donors #publichealth #pandemicpreparedness #infectiousdisease #epidemiology #microbiology #laboratory #research #clinical #health

Arjan's spirit is unstoppable. Even with bladder cancer trying to throw him off, he keeps showing up with grit and humour that remind us all what resilience really means. But here’s the deal: he’s facing some major medical bills, and this next treatment is his best shot at getting his life back. It's not a small cost, but that’s where we can come in to lift him up! What if, together, we could make this easier? Imagine Arjan, post-treatment, getting back to his friends, family, and daily life without the constant cloud of medical expenses over him. We can help make this happen by coming together. Here's how: ➡️ Chip in what you can! A little from everyone makes a huge difference. ➡️ Share his story with others who may want to help. ➡️ Send some positive vibes his way! Let’s get Arjan back to living his best life. For more details and to lend a hand, here’s the link --> https://lnkd.in/ez4vCZPz

Today, we announced a $2 million investment in research initiatives this year. Because there is still no cure for CF, because the mortality rate is still too high, and because there are still therapeutic gaps, research will continue to be a pillar of our mission. That’s why Cystic Fibrosis Canada is funding projects that align with the priorities of the Canadian CF community, in order to find answers and new solutions. Read the full breakdown of the funded initiatives here: https://bit.ly/3JG1rQF

For #PhilanthropyThursday we are highlighting Veterans Health Foundation For more than 90 years, VA clinicians have been improving the lives of Veterans and all Americans through health care discovery and innovation. VA Research is unique because of its focus on health and wellness issues that affect Veterans. Nested within the Veterans Health Administration—the nation’s largest health care system—VA Research is viewed by many experts as a model for rigorous, impactful research. Veterans Health Foundation and their partners have been able to bring fund 283 research projects, 5710 surgeries, 80 transplants, and more. Today especially, supporting veteran charities fosters a sense of patriotism and community. It encourages people to reflect on the true meaning of the holiday and the values of freedom, sacrifice, and unity. This can lead to a stronger, more connected community! Donating to veteran charities helps raise awareness about the ongoing needs of veterans. Many people are not fully aware of the struggles that veterans face after their service. By supporting charities like Veterans Health Foundation, we can help bring these issues to light and promote broader support and understanding. Read more about this awesome organization here: https://lnkd.in/gRFzmvnr

clinfinite.com ✅World Organ Donation Day, observed annually on August 13th, raises awareness about the life-saving impact of organ donation. ✅This important day emphasizes the critical need for organ donors worldwide and aims to educate the public on how organ donation can transform lives. ✅Every year, thousands of people around the globe await life-saving transplants, and a single donor can save up to eight lives by donating their organs. ✅By becoming an organ donor, individuals can leave a lasting legacy of hope and renewal. ✅Organ donation not only offers a second chance at life for recipients but also provides comfort and solace to donor families, knowing that their loved one's gift has made a profound difference. ✅World Organ Donation Day encourages people to consider the power of this generous act, dispel myths, and inspire others to register as donors. ✅Together, we can increase the number of organ donors and ensure that more lives are saved, one organ at a time. #WorldOrganDonationDay #OrganDonation #GiftOfLife #DonateLife #BeADonor #SaveLives #OrganDonor #LifeSaver #LegacyOfHope #DonationAwareness

🚀 Let's Take Spinal Cord Research on a Global Adventure! 🚀 Hey LinkedIn, I'm embarking on a monumental global journey and counting on your support! Over the past four years, I've been orchestrating 'My Drive Around the Globe for Spinal Cord Research.' Imagine this: traversing 126 cities across 33 countries, spanning two continents, all in the name of raising global awareness and funds for spinal cord research. It's a thrilling adventure with a profound international impact! But here's the deal: I can't pull off this daring escapade solo. Nope, I need the power of social media on my side to make some serious waves. 🚗 The Challenge: I've got the wheels, but we need your social media magic to turbocharge our message. Whether it's spreading the word, rallying support, or just being your awesome selves, social media is the fuel that'll drive our mission forward. 💡 The Solution: That's where your unique skills come into play! I'm contacting social media experts like you to unite and help us amplify our message. Whether you have innovative content ideas, a talent for boosting visibility, or even some valuable in-kind support, your expertise can truly transform our mission. 🌍 Together, We Can Make an Impact: Imagine the ripple effect we can create together! Every share, like, and post has the power to reach millions, sparking conversations and inspiring action for spinal cord research. Let's turn this solo adventure into a global movement! 🤝 Get Involved: If your social media company is eager to make a difference and be part of an extraordinary journey, please get in touch with me at mydrivearoundtheglobe@gmail.com. I'm excited about the possibility of us teaming up and blazing a trail towards a brighter future together. A heartfelt thank you to all of you for your potential support, encouragement, and willingness to make a difference. With your invaluable contributions, we'll drive change, ignite hope, and create a significant impact in spinal cord research. #MyDriveAroundtheGlobe #SpinalCordResearch #spinalcordinjury #IgniteHope https://lnkd.in/eZnnAcp7

Rare diseases are a group of conditions that society needs to be more aware of, and the only way to achieve this is by sharing more information. Despite being labeled 'rare,' these diseases are part of our daily lives, and even raising general awareness is a step forward. By studying rare diseases, we can create a better physical and social environment for those affected and their surroundings, fostering our understanding and ultimately improving their lives. #SMA #SMAawarenessmonth #SpinalMuscularAtrophyAwarenessMonth #RareDiseases