Rare diseases are a group of conditions that society needs to be more aware of, and the only way to achieve this is by sharing more information. Despite being labeled 'rare,' these diseases are part of our daily lives, and even raising general awareness is a step forward. By studying rare diseases, we can create a better physical and social environment for those affected and their surroundings, fostering our understanding and ultimately improving their lives. #SMA #SMAawarenessmonth #SpinalMuscularAtrophyAwarenessMonth #RareDiseases
Did you know that each person spends about two hours dreaming per night and we can have up to 8 dreams each night? Still, we forget around 90% of our dreams. There are some dreams though that can never be forgotten. Some dreams are worth fighting for every day. This 31st of August, we, the SMA Community, will speak up for our dreams. Stay tuned! One Community. Shared Dreams. #WeAreOne #OneCommunitySharedDreams #SpinalMuscularAtrophy #RareDisease #SMAAwarenessMonth SMA Patientenvertretung Österreich Muskelsvindfonden F Spierfonds Fundacja SMA Olga Germanenko FundAME Spinal Muscular Atrophy UK Thomas (Tom) Gillingwater
Thank you for your post!!!