The Australian Thyroid Foundation Ltd’s Post

The EOFY is fast approaching, and the Australian Thyroid Foundation (ATF) needs your support to continue to help you and future generations who may be living with an undiagnosed thyroid disorder. Statistics show 1 in 10 will be diagnosed during their lifetime. As there is well over 1 million Australians living with an undiagnosed thyroid disorder, the ATF needs to increase our services and awareness programs nationally to reach out and help improve patient outcomes. Education and resources for GPs and Healthcare Professionals are essential. Patients visit a GP to determine a diagnosis, so it is important GPs have the best resources to diagnose and treat a thyroid disorder. Once a diagnosis has been made, patients need the best support services and information during their thyroid journey, as you will know, if you have been diagnosed with a thyroid disorder. Thyroid Disorders can affect individual patients differently and as the Australian thyroid patient authority, the ATF need help to continue and greatly appreciate your support to do so. Please consider how you can help us to help you and others. Donations large or small or a Will Bequest will make a difference and will ensure we continue and improve our services: https://lnkd.in/gxb_63yQ #thyroid #ATF #charity #nonprofit #taxes #australianthyroid #willbequest #thyroidhealth

Last year's Covid diagnosis made my my walk a bit of a crawl 🤒 to my bed, but it's not happening this year! Upping my goal to $1500 this year because, you know... #inflation . The GBS/CIDP Foundation of Canada / Fondation canadienne du SGB/PDIC does a LOT of good for a lot of people--not just me. They advocate and educate the general public and, more importantly, health care workers on signs, symptoms, communication and treatment for: -Multifocal Motor Neuropathy (rarest and what I have) -Chronic Inflammatory Demyelinating Polyneuropathy -Guillan Barre Syndrome--a super acute and scary neuropathy that in mere days can completely paralyze a healthy person All are treatable, but outcomes are obviously best when treated QUICKLY. A challenge when they're not widely known about--even by the medical community. That's where you come in... Any donation 💰 💵 you can make won't just be appreciated, but will directly help support people with these conditions, help us advocate on their behalf and help raise awareness of these diseases with the medical community for a (hopefully) faster diagnosis and better outcome. Whatever you can give is super appreciated! 🙌 👊 #fundraising #MMN #CIDP #GBS #awareness #charity #todaysgooddeed https://lnkd.in/gUHfinrQ

One day to go! Our new resource launches tomorrow. It has been developed in response to a huge need from families. Time and time again, we heard that the families of children diagnosed with Systemic JIA (also known as Still’s Disease) had not received any information about their child’s condition at diagnosis. They hadn’t been given any resources to let them know about the condition or the signs and symptoms of Macrophage Activation Syndrome (MAS) which is a rare but serious complication that can affect those with Systemic JIA / Still’s Disease. With the help of those families, children and young people, together with the expertise of doctors and medical professionals, and the dedication of our volunteers, we have created resources to fill that gap. Because at Juvenile Arthritis Research, we are never standing still. We are always listening to what families tell us. We are experiencing the issues ourselves as parent/carer volunteers. We step up and do what is needed because we need to keep moving forward towards a world where no child has to suffer from arthritis. One day we will get there but, in the meantime, we want to make life better for those with JIA and equip them with the information and resources they need. Tomorrow is that next step with the launch of this much-needed resource. #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JIAWarrior #ArthritisAwareness #charity #CharitableCause #JIAVIP #Donate #Support #JIAVIPResearchPanel #fundraising #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology #JIAResearch #PPIE #sJIA #StillsDisease #SystemicJIA

Project Scleroderma is the name of the organization I founded 13 years ago in honor of my mom who lost her life to an autoimmune disease called scleroderma. Today is Rare Disease Day. On this day it is important that we shed light on the fact that scleroderma is a rare disease and all those who suffer from this illness deserve our care & support not just today, but every day. It is crucial that we raise awareness and support for the scleroderma community in order to continue to advance treatments and get one step closer to a cure. It is equally as important that we pay attention to and educate ourselves on all the illnesses or conditions that are considered rare. Our attention and support are vital in order to save lives and advance research. Today is a day to focus on these rare causes, educate ourselves and support in any way we can. #scleroderma #sclerodermaawareness #awareness #raredisease #rarediseaseday #support #community #nonprofit #rarediseaseday2024 National Organization for Rare Disorders (NORD) at NCSU

*Urgent Help Needed: Save a 2-Year-Old's Life!* I'm reaching out to my LinkedIn community with a heart-wrenching plea for help. A 2-year-old child is suffering from Spinal Muscular Atrophy Type-2 (SMA2), a rare genetic disorder. The only life-saving treatment is an injection called ONASEMNOGENE ABEPARVOBEC (XOLGENSMA), but it comes with a staggering price tag of ₹9.5 crores and is only available in the US. Time is of the essence! We need your support to raise funds for this life-saving treatment. Every contribution, big or small, counts. Let's come together to make a difference in this child's life. *Please donate generously:* *Share this post with your network:* Let's spread the word and help this child receive the treatment they deserve. Together, we can make a difference! *#SMA2 #XOLGENSMA #SaveALife #DonationAppeal #RareDisease #MedicalHelp #CommunitySupport*

Multiple sclerosis (MS) is a chronic autoimmune condition where the immune system attacks the protective covering of nerve fibers, disrupting communication between the brain and the rest of the body. This can lead to a wide range of symptoms including fatigue, muscle weakness, numbness, difficulty with coordination, and problems with vision, among many other symptoms affecting basic function. The course of MS varies greatly among individuals. Some experience relatively mild symptoms and others (such as myself) face more severe disability over time. The treatment options aim to manage symptoms, slow the progression of the disease, and improve our quality of life, but this isn't 100% for everyone. So far there is no cure, and there are no ways of reversing the damage that has already been caused to the body. I myself have MS and over the last few years I have gradually declined in mobility and my ability to function, and my health has taken a nosedive further since the middle of February. I'm doing something while I'm still physically and mentally able, as there will come a day (sooner than I'd like) when I am unable. So far I have raised £120 for the MS SOCIETY. Please keep sharing and donating if you can spare even £1, Multiple Sclerosis is an absolutely cruel autoimmune disease and research into a cure, better treatments and finding out what actually causes it never ends. But funding is needed for this, so donations are detrimental. And in return I'll be getting thrown from the sky strapped to a (probably 7ft) human to land for me on the ground. 💜💓💜💓💜 I’m helping raise money for The Multiple Sclerosis Society! Support me at: https://lnkd.in/eX-qtCPJ

What is Leigh Syndrome? "Leigh syndrome is a severe neurological disorder that usually becomes apparent in the first year of life. This condition is characterized by progressive loss of mental and movement abilities (psychomotor regression) and typically results in death within two to three years, usually due to respiratory failure." There are a number of charities that deal with Leigh syndrome, including: The Lily Foundation: The Lily Foundation is a UK-based charity that funds research into mitochondrial diseases, including Leigh syndrome. They also provide support to families affected by these conditions. Opens in a new window https://lnkd.in/eA-_EZP Lily Foundation charity logo People Against Leigh Syndrome (PALS): PALS is a US-based charity that provides support to families affected by Leigh syndrome. They also raise funds for research into the condition. Opens in a new window People Against Leigh Syndrome People Against Leigh Syndrome (PALS) charity logo Mito Foundation: The Mito Foundation is an Australian-based charity that funds research into mitochondrial diseases, including Leigh syndrome. They also provide support to families affected by these conditions. Opens in a new window Twitter Mito Foundation charity logo Mitocon: Mitocon is an Italian-based charity that funds research into mitochondrial diseases, including Leigh syndrome. They also provide support to families affected by these conditions. Opens in a new window International Mito Patients Mitocon charity logo Leigh Syndrome International Consortium: The Leigh Syndrome International Consortium is a collaboration of five charities from around the world that are working to improve the diagnosis, treatment, and care of Leigh syndrome. Opens in a new window Twitter

My life long friend is in serious need of a kidney transplant, her life depends on it! If you or someone you know are willing to at least get tested to see if you are a match please please do! See the below video.

The Patient Journey for those with hypothalamic hamartomas often begins before an official diagnosis has been received and extends well beyond the point of having treatment. Our website provides resources for each stage of the Patient Journey: 1. Could It Be HH? - https://lnkd.in/g7FUxkif 2. Newly Diagnosed - https://lnkd.in/gTchCebK 3. Going For Treatment - https://lnkd.in/gDfrVdFM 4. Living with HH - https://lnkd.in/gk9_Ttzy 5. Adults with HH - https://lnkd.in/g-s5yrif Please consider donating today to help fund research and patient programs. + Give through our GiveButter campaign - https://lnkd.in/gTRmqHJ7 +Give through our website - https://lnkd.in/gGfrFFHE #HHawareness #InternationalHHAwareness #ChooseHOPE #FightingForRare #StrongerTogether #HopeForHH #ShareYourStory #YourStoryMatters #Give #Hope #HypothalamicHamartoma #braintumor #gelastic #seizures #obesity #rages #RareDisease #ChronicDisease #Epilepsy #Seizures

𝑻𝒐𝒈𝒆𝒕𝒉𝒆𝒓, 𝒘𝒆 𝒄𝒂𝒏 𝒎𝒂𝒌𝒆 𝒂 𝒅𝒊𝒇𝒇𝒆𝒓𝒆𝒏𝒄𝒆✨ Let's light up the lives of those battling 𝐓𝐡𝐚𝐥𝐚𝐬𝐬𝐞𝐦𝐢𝐚🩸. 🎗Every donation brings hope and support to individuals fighting this blood disorder. 📍Join us in making a difference today. Your generosity can help cover the costs of medical treatments, medications, and blood transfusions. Let's show our compassion and solidarity with those in need. 📌Donate now via 𝗝𝗮𝘇𝘇𝗰𝗮𝘀𝗵 𝗼𝗿 𝗘𝗮𝘀𝘆𝗽𝗮𝗶𝘀𝗮 𝘁𝗼 0334 7773198 𝗔𝗹𝗲𝗲𝘇𝗮 𝗤𝗮𝗺𝗮𝗿 𝐀𝐬𝐤𝐚𝐫𝐢 𝐁𝐚𝐧𝐤 Account Number: 𝗣𝗞64𝗔𝗦𝗖𝗠0002680350006295 Account Title: 𝗦𝗮𝗵𝗮𝗿 𝗦𝗮𝗲𝗲𝗱 Together, we can create a brighter future✨ for those affected by thalassemia. #ThalassemiaAwareness #DonationDrive #CommunitySupport #LinkedInForGood