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*Urgent Help Needed: Save a 2-Year-Old's Life!* I'm reaching out to my LinkedIn community with a heart-wrenching plea for help. A 2-year-old child is suffering from Spinal Muscular Atrophy Type-2 (SMA2), a rare genetic disorder. The only life-saving treatment is an injection called ONASEMNOGENE ABEPARVOBEC (XOLGENSMA), but it comes with a staggering price tag of ₹9.5 crores and is only available in the US. Time is of the essence! We need your support to raise funds for this life-saving treatment. Every contribution, big or small, counts. Let's come together to make a difference in this child's life. *Please donate generously:* *Share this post with your network:* Let's spread the word and help this child receive the treatment they deserve. Together, we can make a difference! *#SMA2 #XOLGENSMA #SaveALife #DonationAppeal #RareDisease #MedicalHelp #CommunitySupport*

The Patient Journey for those with hypothalamic hamartomas often begins before an official diagnosis has been received and extends well beyond the point of having treatment. Our website provides resources for each stage of the Patient Journey: 1. Could It Be HH? - https://lnkd.in/g7FUxkif 2. Newly Diagnosed - https://lnkd.in/gTchCebK 3. Going For Treatment - https://lnkd.in/gDfrVdFM 4. Living with HH - https://lnkd.in/gk9_Ttzy 5. Adults with HH - https://lnkd.in/g-s5yrif Please consider donating today to help fund research and patient programs. + Give through our GiveButter campaign - https://lnkd.in/gTRmqHJ7 +Give through our website - https://lnkd.in/gGfrFFHE #HHawareness #InternationalHHAwareness #ChooseHOPE #FightingForRare #StrongerTogether #HopeForHH #ShareYourStory #YourStoryMatters #Give #Hope #HypothalamicHamartoma #braintumor #gelastic #seizures #obesity #rages #RareDisease #ChronicDisease #Epilepsy #Seizures

This Sunday I’m taking part in The Distinguished Gentleman's Ride to raise funds and awareness for mens health on behalf of Movember, and I need your help. Movember is the world’s largest men’s health organisation focused on universal, game-changing and realistic outcomes for prostate cancer and men's mental health. Prostate Cancer Statistics - Prostate cancer is the most common cancer in men. - 307,000 men will die from prostate cancer each year. Suicide Prevention – Men’s Mental Health Suicide is the biggest killer of men aged 20-39, with ¾ of all suicides being male. 510,000 men die from suicide each year, that's one every minute. This is a number that we seek to drastically change and can only be made possible through raising funds and awareness to help prevent men from dying too young. Please support me on my ride by going to https://lnkd.in/gwmgREY and making a donation to help fund men's health programs, and will help benefit men all over the world.

💙 This Movember, Recorra Mo Bros are taking action for men’s health! Will you join us? 💙 Our team is growing more than just moustaches – we’re growing awareness and support for critical men’s health issues. Together, we’re fundraising to tackle: ✔️ Prostate cancer – the second most common cancer among men. ✔️ Testicular cancer – the most common cancer in young men. ✔️ Mental health and suicide prevention – because too many men are suffering in silence. We're proud to support Movember, funding groundbreaking research and initiatives that save lives. But we can’t do it alone. 👉 https://lnkd.in/dy4ty4xy Whether you donate, share this post, or simply start a conversation about men’s health, you’re helping make a difference. Let’s unite for this cause and show the power of community here in London and beyond! Together, we can change the face of men’s health. 💪 #Movember #TeamRecorra #MensHealth #ProstateCancer #TesticularCancer #MentalHealth #SuicidePrevention #Fundraiser

𝐓𝐡𝐞 𝐋𝐢𝐟𝐞𝐬𝐚𝐯𝐢𝐧𝐠 𝐏𝐨𝐰𝐞𝐫 𝐨𝐟 𝐁𝐥𝐨𝐨𝐝 𝐃𝐨𝐧𝐚𝐭𝐢𝐨𝐧 At ANS Glass, we believe in the power of giving back to our community. Blood donation is a simple act that can make a huge impact. Here’s why it’s important: Here’s why: -Save Lives: One donation can save up to three lives. -Support Cancer Patients: Vital for treatments like chemotherapy. -Emergency Preparedness: Keeps hospitals ready for crises. -Community Health: Maintains a stable blood supply. Health Benefits: Mini health check-up and reduced health risks. At ANS Glass, we encourage everyone to donate blood. Your donation can be a lifeline for someone in need. #BloodDonation #SaveLives #CommunityHealth #DonateBlood #LifesavingAct #HealthBenefits #GiveBack #ANSCares

Hello LinkedIn Connections, I do not post much on LinkedIn. I am more of a reader than a contributor. So posting is a little out of my comfort zone. It is with a heavy heart that I share the devastating news that my mother has been diagnosed with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's Disease, at the young age of 61. ALS is a progressive and fatal neurological disorder that affects the nerve cells in the brain and spinal cord that control voluntary muscle movement such as walking, swallowing and breathing. You might have heard of ALS in light of the 2014 #IceBucketChallenge, which has resulted in several life prolonging medications for ALS patients. Since her diagnosis, she has moved in with me so that I can be her caretaker alongside the professionals. This is a very physically and emotionally demanding role that I am delighted to do - being her caretaker is fulfilling God's work. I truly stand by that. I bring this up because the ALS Association hosts annual walks in different cities around the United States to raise money for ALS research and resources as well as spread awareness of this awful disease. In honor of my mothers everyday battle, I created a team, named Tammy's Tenacity, for the Fort Worth ALS Walk to Defeat ALS event happening on October 19th, 2024. As team captain, it is my role to cultivate a team and fundraise for further ALS research and resources. So, I am taking a leap of faith to ask my connections and/or their organizations to humbly donate to my team, Tammy's Tenacity. Your donation, big or small, greatly improves the life of ALS patients and their caretakers. Let's find a CURE! 🙏 To make a donation to my team, use the link below and search the team name "Tammy's Tenacity". Select a team member (you can select me, Sarah Salas) to make a one-time donation to. Each donation will receive a LinkedIn accreditation post from me, personally. 😊 #ALS #LouGehrigsDisease #AmyotrophicLateralSclerosis #ALSawareness #FindACure #ALScaretaker #Fundraising #Donations https://lnkd.in/g9s49CDc

Alzheimer’s isn’t stopping, and neither are we. This year, I’m participating in the Walk to End Alzheimer’s, a cause close to my heart. The resilience and courage of those affected by this devastating disease inspire me every day to take action. By walking, I’m not just raising funds; I’m helping to support the critical work of the Alzheimer’s Association. They provide 24/7 care and support for families facing Alzheimer’s and other dementias, and they’re at the forefront of research to find a cure. But I can’t do this alone. I need your support to make a real impact. Here’s how you can help: Donate: Your contributions fund essential care, support, and research efforts. Register: Join me as a participant and start your own fundraising efforts. Share: Spread the word about this important cause and encourage others to get involved. Together, we can bring hope to millions and work towards a future free from Alzheimer’s. Please consider supporting my walk by making a donation or joining me in this cause. Your support means the world to those impacted by Alzheimer’s. Let’s make a difference together. Support my walk here https://lnkd.in/gFS_b9NE #WalkToEndAlzheimers #EndAlz #AlzheimersAwareness #JoinTheFight #Community #Hope

#huntingtonsdisease Part 13 As I have said in previous posts, I have been #raisingawareness of #huntingtonsdisease throughout Australia (and some globally) for the past couple of years or so, through talking of my family's experience with Huntington's disease. I have been going alone with this so I could be free to research and work without restrictions from any organisations or persons. I needed to speak for those I have lost to this disease. Raise awareness of this disease for my family. Educate those who knew nothing or little of the disease, and encourage existing families with the disease to not make the same mistakes as previous generations in ignoring it as best they can, seriously consider testing and to think of longer term consequences in any decision. Huntington's disease has no cure. It is genetic, rare, a neurological disease which all children born to a parent/parents who are at risk, tested positive or diagnosed with having inherited the disease, are also at risk, with a 50% chance of inheriting it. That is a very big percentage. In my research, I have learned how families are still struggling with the knowledge and diagnosis of this disease. I have learned of the still intact secrecy within the family unit. In other words, the stigma of yesteryear is still there today, and while some families are making changes in hope it will end in present generation, there are many who continue just hoping that cure will be found soon. What I am now asking for, is help in the way of raising money for further research into Huntington's disease. I am asking #you, if you can possibly consider making a donation towards this cruel disease, it would be very much appreciated. I am supplying a link here, which will take you directly to the website to make donations. You will need to specify you want your money to go to Huntington's disease research, to ensure it goes to that. You will be asked for your name and contact details for taxable purposes. And, If you like, you can make the donation on my behalf. Huntington's Disease Network of Australia (HDNA) have provided me with this link, and I personally, have made a donation to ensure it all goes through as I wanted it to. So, I know it will do for you. I am not in a habit of asking people to make a donation, but this is important to me. As I have said in a previous post, I am not a movie star or a celebrity, so I am unable to reach the people as they can, to gain bigger audiences in hope of big donations, but I hope I can make some kind of impression this way. I have approached government in any way I could. Basically, I have possibly made a nuisance of myself, because my family suffered. I have suffered. And I do not want future generations to suffer as we have, and all other families presently dealing with this disease. With thanks, Kathy Langley https://lnkd.in/gjuRs4NF DONATION LINK

🚴♂️🌞 We need your help! Our team is taking on the Race the Sun challenge to raise £1,900 for Action Medical Research, a charity that’s transforming children’s lives through groundbreaking medical research. Imagine being part of a cure, a breakthrough, or a new treatment that could save a child’s life. That’s what Action Medical Research does every day—but they need our support to keep going. We’re pushing our limits in this intense challenge, but we can’t cross the finish line alone. Your donation, no matter the size, will directly fund research that can prevent premature births, treat rare diseases and give every child a fighting chance. Please donate today and help us hit our target. Together, we can fuel the next life-saving discovery. Be the reason a child gets to live a healthier, brighter future. Click here to donate https://lnkd.in/edWPgEpV #RaceTheSun #DonateNow #ActionMedicalResearch #ForTheKids #EveryPoundCounts