💫 What an inspiring gathering at our "𝗔𝗰𝗵𝗶𝗲𝘃𝗶𝗻𝗴 𝗘𝗾𝘂𝗶𝘁𝘆 𝗶𝗻 𝗔𝗰𝗰𝗲𝘀𝘀 𝘁𝗼 𝗖𝗮𝗿𝗲 𝗮𝗻𝗱 𝗧𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁 𝗳𝗼𝗿 𝘁𝗵𝗲 𝗔𝗹𝗽𝗵𝗮-𝟭 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝗶𝗻 𝗘𝘂𝗿𝗼𝗽𝗲: 𝗕𝘂𝗶𝗹𝗱𝗶𝗻𝗴 𝗮 𝗥𝗼𝗮𝗱𝗺𝗮𝗽 𝘁𝗼 𝟮𝟬𝟯𝟬" event in #Brussels!
The day was filled with impactful discussions and collaborative efforts aimed at shaping the future of diagnosis, care, and treatment access for the #Alpha1 community in #Europe.
💡 We kicked off with a keynote presentation by Valentina Bottarelli from EURORDIS-Rare Diseases Europe who highlighted the essential role of patient involvement in regulatory discussions and the importance of including patient voices in policy-making.
🌐 A key highlight was the overview of the #access landscape across Europe, led by our Board member, Frank Willersinn which shed light on the disparities and challenges facing the Alpha-1 community.
🗣️ Two insightful panels followed, exploring major barriers to access across Europe and addressing the unmet needs of individuals with Alpha-1, with valuable insights from experts and patient advocates. Special thanks to the Alpha-1 experts and panelists for their significant contributions: 𝗗𝗿 Marc Miravitlles, 𝗣𝗿𝗼𝗳 𝗗𝗮𝘃𝗶𝗱 𝗣𝗮𝗿𝗿, 𝗗𝗿 Ilaria Ferrarotti, 𝗣𝗿𝗼𝗳 Henedina Antunes, MD, PhD, Knut Skaar, Ron Ewals, Fernanda A., and Karen O'Hara. 🛠️ Breakout sessions concluded the day, with a focus on building a #Roadmap to overcome inequities in access to care and treatment, bringing everyone together to craft actionable solutions for the Alpha-1 community.
The energy and commitment in the room were remarkable, reinforcing the power of community-driven action to achieve equitable access to care and treatment for all. 💪
A heartfelt thank you to our speakers, panelists, and participants for their dedication to driving positive change. Together, we are laying the groundwork for a brighter, more equitable future for the Alpha-1 community. 💙
🔔 Stay tuned for updates on the outcomes of this important gathering!
https://lnkd.in/ddnv6KZG
#Alpha1 #HealthcareEquity #PatientAdvocacy #AccessToCare #CommunityBuilding #Roadmap2030
🤝 Alpha1 Österreich-Verein 🇦🇹 (Austria) Alpha-1 plus 🇧🇪 (Belgium) Alpha-1 Deutschland 🇩🇪 (Germany) Alpha-1 Foundation Ireland 🇮🇪 (Ireland) Associazione Nazionale Alfa 1 AT ODV 🇮🇹 (Italy) Longfonds 🇳🇱 (Netherlands) Alfa-1 Norden 🇩🇰 🇳🇴 🇸🇪 (Denmark, Norden, Sweden) Associação Alfa1 de Portugal 🇵🇹 (Portugal) Asociatia Alfasim 🇷🇴 (Romania) Alfa-1 España 🇪🇸 (Spain) Lovexair Foundation 🇪🇸 (Spain) Alpha 1 Verein Schweiz 🇨🇭 (Switzerland) Alpha-1 UK 🇬🇧 (UK)
🙌 Grifols CSL Takeda KAMADA and Mereo BioPharma
Head of Marketing & Sales
3moI signed up. Looking forward to it.