International Journal of Population Data Science (IJPDS)’s Post

𝐀𝐫𝐞 𝐏𝐞𝐫𝐬𝐨𝐧𝐬 𝐰𝐢𝐭𝐡 𝐃𝐢𝐬𝐚𝐛𝐢𝐥𝐢𝐭𝐢𝐞𝐬 𝐋𝐞𝐟𝐭 𝐁𝐞𝐡𝐢𝐧𝐝? 𝐀𝐧 𝐢𝐧𝐧𝐨𝐯𝐚𝐭𝐢𝐯𝐞 𝐝𝐚𝐭𝐚𝐛𝐚𝐬𝐞 𝐩𝐫𝐨𝐯𝐢𝐝𝐞𝐬 𝐝𝐢𝐬𝐚𝐛𝐢𝐥𝐢𝐭𝐲 𝐬𝐭𝐚𝐭𝐢𝐬𝐭𝐢𝐜𝐬 𝐭𝐨 𝐟𝐢𝐧𝐝 𝐨𝐮𝐭 A new Disability Statistics – Estimates Database (DS-E Database) has been created by an international research team from Colombia, India, South Africa, Switzerland, and the USA. The Disability Data Initiative, or DDI, is an international and interdisciplinary research programme that provides analyses of disability data to help advance the rights of persons with disabilities and sustainable human development for all. Taking advantage of data from household surveys and population censuses with an internationally comparable short set of questions on disability, the DDI has produced statistics for 40 countries and 6,584 subnational locations. It includes disability statistics with vital information about education, personal activities, health, standards of living, economic insecurity and poverty for people living with a disability, and has revealed that about one in six adults have some type of disability. Given the complexity of defining and measuring disability, the DS-E Database uses different methods to breakdown the adult population into subgroups based on disability severity and type, allowing for deeper analysis on subgroups of the adult population based on sex, rural/urban residence and age groups as well as areas within countries. The current study, published in the International Journal of Population Data Science (IJPDS), revealed that for certain indicators, inequalities between persons with and without disabilities are consistently experienced across and within countries. This is particularly evident in areas like education and poverty. Overall, results suggest that persons with disabilities seem to be ‘left behind’ and that national and local policymakers must prioritise disability-inclusive approaches to address disparities both within and across countries. There are only five years left to achieve the 2030 Sustainable Development Agenda, which pledges to “leave no one behind”. Sustainable Development Goal (SDG) 10 states that “inequality within and among countries is a persistent cause for concern.” While the achievement of the 17 SDGs needs to be monitored for persons with disabilities, the lack of...   𝐂𝐨𝐧𝐭𝐢𝐧𝐮𝐞 𝐑𝐞𝐚𝐝𝐢𝐧𝐠 https://lnkd.in/dStpxUXK or 𝐂𝐥𝐢𝐜𝐤 𝐡𝐞𝐫𝐞 𝐭𝐨 𝐯𝐢𝐞𝐰 𝐭𝐡𝐞 𝐟𝐮𝐥𝐥 𝐚𝐫𝐭𝐢𝐜𝐥𝐞 https://lnkd.in/dr7cq9zQ Carpenter, B., Kamalakannan, S., Patchaiappan, K., Theiss, K., Yap, J., Hanass-Hancock, J., Murthy, G., Pinilla-Roncancio, M., Rivas Velarde, M. and Mitra, S. (2024) “Data Resource Profile: The Disability Statistics -- Estimates Database (DS-E Database). An innovative database of internationally comparable statistics on disability inequalities”, International Journal of Population Data Science, 8(6). doi: 10.23889/ijpds.v8i6.2478. #DisabilityData

A recent report by Ariana Aboulafia, Miranda Bogen, and Bonnielin Swenor titled "To Reduce Disability Bias in Technology, Start With Disability Data," published by the Center for Democracy & Technology (CDT), discusses the challenges and solutions for mitigating disability bias in technology through improved disability data collection. The report emphasizes the importance of accurate, inclusive, and respectful data practices to reduce discriminatory impacts on people with disabilities, particularly in contexts such as employment, benefits, and healthcare, where technology is increasingly used. Three Key Takeaways: 1. Importance of Inclusive Data Collection: The report highlights that disability data must be collected in all demographic contexts where other data is gathered, such as age, race, and gender. This approach ensures that disabled individuals are adequately represented in data sets used to develop and train technologies, which can otherwise perpetuate bias. 2. Challenges with Current Disability Data: The report identifies significant problems with existing disability data sets, including non-inclusiveness, under-inclusiveness, and inaccuracies. These issues often stem from varying definitions of disability and exclusionary data collection practices, leading to biased outcomes in algorithmic systems. 3. Recommendations for Disability Data Justice: The report outlines seven key recommendations to promote disability data justice, including the need to include disabled people in the creation and auditing of technologies, center disabled leaders in policy-making, and ensure that data collection methods are accessible to all individuals with disabilities.

👏🏾👏🏾👏🏾🏆 I think these are great suggestions. ************************** I used to teach… I taught children with disabilities. I specialized in students with moderate disabilities in social, emotional, and/or behavioral abilities (ex: autism requiring one on one support all day during school hours, behavioral challenges accompanied by ADHD, learning disabilities, cognitive delay and/or personal life challenges) I have a Masters Degree in the subject. I apply those learnings to my current work delivering corporate Human Resources analytics to mid-level and executive leaders (I experience it like data science with organizational psychology). ************************* One of the first things I learned in graduate school was that any strategies that are necessary for children with disabilities are beneficial for children who are not disabled. Applied to the idea of inclusion in the adult workplace: that’s a win-win solution for everybody. ✨

Disability affects us all, do you follow these tips to make your content inclusive, accessible and representative? With awareness comes learning that becomes practice even for me. Jamie Shields 💜 #DisabledAndProud #DisabilityAwareness #Inclusion #DEIJ #RepresentationMatters #InternationalEducation

🎙 NEW EPISODE OUT NOW - DISABILITY ADVOCACY 🎙 In this episode of 'FARSIGHT Chats,' guest host Eric Harris of Disability Rights California and guests Elizabeth Campos, Kenna Chic, Dr. Gabrielle Ficchi, delve into Disability Advocacy. The discussion centers on societal biases, intersectionality, and the necessity for inclusive policies impacting the Disabled community. Personal insights from the guests highlight misconceptions about disabilities and emphasize advocacy's role in education and workplaces. This episode stresses the importance of comprehensive allyship, addressing visible and invisible disabilities, and recognizing privilege. Encouraging schools and corporations to consult with organizations led by disabled individuals, the conversation seeks to address and rectify microaggressions. It calls for ongoing dialogues, urging all listeners—especially non-disabled ones—to reflect on their perspectives. Key topics discussed include: DISABILITY AWARENESS: Many disabilities, both visible and invisible, are misunderstood. The episode addresses the stereotypes and biases that exist, such as the assumption that disabilities are primarily physical or visible. WORKPLACE CHALLENGES: The conversation highlights the lack of advocacy and accommodations for people with disabilities, particularly around mental health, pay-equity, and workplace inclusion. INTERSECTIONALITY: The speakers emphasize the intersections between disability and other identities such as race, gender, and socioeconomic status. These compounded challenges often lead to additional discrimination. ADVOCACY & EDUCATION: The need for policies that ensure inclusivity in education and employment is stressed, along with the importance of allies in creating accessible environments. LANGUAGE: A significant part of the conversation focuses on the language used to describe disabilities, with an emphasis on eliminating outdated, offensive terms and embracing identity-affirming language. EPISODE LINK: https://lnkd.in/ebRvi9jP SUBSCRIBE: https://lnkd.in/eFzcqUN6 APPLE PODCASTS | https://lnkd.in/ePi3pudR SPOTIFY | https://lnkd.in/eg6R_UQM #FARSIGHTChats TEAM Executive Producer & Host | Farah Bala, PCC Associate Producer | Tatiana Hernandez-Mitchell Edit Team | Tim Cynova, SPHR, Andrew Guidone, Shubhra Prakash, Shetal Shah Music | Konsonant Music + Post Art Work | Diana Alexander Additional Contributors | Max S.

🎙 NEW EPISODE OUT NOW - DISABILITY ADVOCACY 🎙 In this episode of 'FARSIGHT Chats,' guest host Eric Harris of Disability Rights California and guests Elizabeth Campos, Kenna Chic, Dr. Gabrielle Ficchi, delve into Disability Advocacy. The discussion centers on societal biases, intersectionality, and the necessity for inclusive policies impacting the Disabled community. Personal insights from the guests highlight misconceptions about disabilities and emphasize advocacy's role in education and workplaces. This episode stresses the importance of comprehensive allyship, addressing visible and invisible disabilities, and recognizing privilege. Encouraging schools and corporations to consult with organizations led by disabled individuals, the conversation seeks to address and rectify microaggressions. It calls for ongoing dialogues, urging all listeners—especially non-disabled ones—to reflect on their perspectives. Key topics discussed include: DISABILITY AWARENESS: Many disabilities, both visible and invisible, are misunderstood. The episode addresses the stereotypes and biases that exist, such as the assumption that disabilities are primarily physical or visible. WORKPLACE CHALLENGES: The conversation highlights the lack of advocacy and accommodations for people with disabilities, particularly around mental health, pay-equity, and workplace inclusion. INTERSECTIONALITY: The speakers emphasize the intersections between disability and other identities such as race, gender, and socioeconomic status. These compounded challenges often lead to additional discrimination. ADVOCACY & EDUCATION: The need for policies that ensure inclusivity in education and employment is stressed, along with the importance of allies in creating accessible environments. LANGUAGE: A significant part of the conversation focuses on the language used to describe disabilities, with an emphasis on eliminating outdated, offensive terms and embracing identity-affirming language. EPISODE LINK: https://lnkd.in/ebRvi9jP SUBSCRIBE: https://lnkd.in/eFzcqUN6 APPLE PODCASTS | https://lnkd.in/ePi3pudR SPOTIFY | https://lnkd.in/eg6R_UQM #FARSIGHTChats TEAM Executive Producer & Host | Farah Bala, PCC Associate Producer | Tatiana Hernandez-Mitchell Edit Team | Tim Cynova, SPHR, Andrew Guidone, Shubhra Prakash, Shetal Shah Music | Konsonant Music + Post Art Work | Diana Alexander Additional Contributors | Max S.

Is your marketing disability inclusive? Brilliant tips from Jamie Shields in this post!

“How do I create marketing that is inclusive and representative of Disability?” I get asked this a lot. It can be hard to represent something that is visible for some and non-visible for others. How exactly do we capture the diversity of Disability? How do we create Disability representation in marketing? And how do we make it inclusive? 1. Represent physical Disability, not just wheelchair users. While it's great to represent wheelchair users, we need to remember that there is a whole diverse community of Disabled people out there. 2. Show people using stimming tools/devices in the workplace. Let's normalize and reduce the stigma of using stimming tools/devices in the workplace. 3. Show people utilizing workplace adjustments/accommodations. There are so many adjustments/accommodations to choose from: screen readers, large monitors, elevated desks, ergonomic chairs, adapted keyboards, etc. 4. Show off your sensory rooms/quiet spaces and accessible working spaces. 5. Showcase the diversity of Disability. Disabled people are not just white. 6. Spotlight your Disability groups/networks/employee resource groups. Hold live events and share the work you are doing internally. 7. Share news about your latest Disability policies, partnerships, awards, accreditations, commitments or actions you're taking to create an inclusive equitable workplace. 8. Use actual images of your employees where you can. Stock images are so overdone, and everyone tends to use the same. Be authentic. 9. Attend Disability events, job fairs, charity events, and share with your network. Go beyond corporate responsibility and support local grassroots work. 10. For the love of inclusion, make your content accessible. Add alt text and image descriptions to images. Add captions and audio descriptions to videos. Don't overuse or replace words with emojis. Write in clear, jargon-free language. Use capital letters for each new word in your hashtags. Make accessibility part of your marketing team's process, not an afterthought. These are only some tips to get you started. Be creative, be innovative. And please be accessible. Image Description: The background is filled with outlines of stick people, whilst some are solid colours, representing visible and non-visible Disabilities. A text box with a purple trim reads “If you're only representing Disability at certain times of the year, (Disability Pride Month, IDPWD etc..), then you’re missing the point of representation.” #WednesdayWisdom #DisabilityInclusion #DiversityAndInclusion #Marketing

Each year DRNC sends out a survey asking North Carolina’s disability community to tell us about the legal issues that are important to you. This year, we received responses from all 100 counties in North Carolina! DRNC extends our deepest gratitude to everyone who took time out of their busy schedules to complete our annual survey. We especially appreciate the effort that went into the 373 individual responses to our open-ended questions. You generously shared your stories of struggle, challenge, and hope. You stressed the desperate needs for improvement and suggested how we could bring about change together. Your voice is powerful. DRNC is committed to using the information you provided to advocate for stronger protections, better access to services, and greater inclusion for all. We recognize the importance of raising public awareness about the realities of living with a disability and your feedback reinforces and inspires us to maintain our laser focus on fighting for the legal rights of disabled people in NC. What you shared with us matters. We read each and every response. Systems change can take a long time, and we understand how frustrating it is to wait for help. Almost all of DRNC’s staff, board, and advisory council members are disabled and/or family members of disabled people. We know first-hand the challenges of living in a society rife with ableism and we are deeply committed to this work. Recent data shows that one in three North Carolinians identify as having a disability. Disability is not a fringe issue; in fact, most people throughout the course of their lifetime will experience disability. It is critical we keep educating legislators, other policy makers, and community members of where NC’s systems fall far short for the disability community. Together, we have power!  DRNC is the only statewide organization in North Carolina dedicated to advancing and defending the legal rights of people with all types of disabilities, of all ages, across the entire state. As we move forward, we will keep you informed about the ways in which your feedback is being used to effect change. Please stay in touch with us! Read our summary of the target responses. DRNC 2025 Targets – Feedback Survey Results https://lnkd.in/ef26ZBbP Stay up to date with our work by signing up for our newsletter Sign up for E-News https://lnkd.in/geCMH7m8 To learn more about DRNC, read this report we prepared for the NC General Assembly about our work, and share with your family, friends and networks. https://lnkd.in/enCZnhh9 #DisabilityRights #Survey #ThankYou  

This month is Disability Pride Month. As part of my work, I focus on raising awareness of the homebound population. There tends to be a great deal of in-fighting within the disabled community on who has it worse between invisible and visible disabilities. These types of conversations lack nuance and are harmful. Having my invisible disability become visible for me meant that I was more easily marked as a target. Using a wheelchair does not mean that you are automatically believed either. Rather than dwell endlessly on comparisons and who has it worse, I believe that raising awareness of the needs and value provided by a specific disability group is crucial. In several campaigns internationally for the homebound and bedbound due to ME/CFS, it has become standard for loved ones to place a pair of shoes for the "missing person" to show how many people are missing from society. We need to talk about why you don't see "missing people" commonly on LinkedIn--a professional platform. I am very used to seeing bedbound pictures and videos of friends on Facebook and TikTok and meeting with bedbound women via Zoom, friends who are highly productive but stuck in bed due to spinal leaks or other disabilities. In reviewing a report from 2007, I found numbers on employment rates by disability type. People with no disability were employed at 78.4%, people with any disability were employed at 38.2%, people with sensory disabilities (e.g. hearing or vision loss) were the most likely disabled category to be employed at 46.9%, and people with disabilities causing them to be homebound were employed at the lowest rate of 16.9%. I have learned that people associate level of disability and mobility with level of competency. Part of the struggle in securing a remote job when you are bedbound or homebound is that communicating competently on the phone means that you are not believed as to your level of disability and in needing the accommodation of a fully remote job. When you do work from home and are bedbound, then it's a struggle finding home health care. If you work, you will likely not be believed that you need self-care or around-the-house support. One home health care worker told me that she had taken care of homebound people with leaks many times before but that they were not like me as the others with a spinal leak were in pain. In healthcare, I have been told that I am not disabled as I am not on disability benefits, thus I was required to go to the office in person. When I again repeated that I physically could not, I was fired. Ignorance regarding the homebound population and our career capabilities as well as poor access to healthcare causing preventable health conditions are all problems that need to be addressed holistically. With spinal leaks being a major cause for people being homebound and this being a fixable injury, I focus on improvement in care in this area along with greater awareness of the homebound workforce. #BedboundPopulation