ISDEsophagus’ Post

New paper published 📘 #openaccess Orphanet Journal of Rare Diseases👇 https://lnkd.in/dGp24rdm In this work (DOI: 10.1186/s13023-024-03161-6), we showed that the number of patients living with an IRD varied between Portuguese regions. 🇵🇹 Using data from national statistics (PORDATA), we observed differences in socioeconomic characteristics between regions. Multiple targeted vision aid and rehabilitation strategies can be developed to ensure that all IRD patients are granted full clinical and socioeconomic support. 🔍 This study can be an example to be replicated in other countries. 🌍 This design allows us to understand which socioeconomic inequalities are present in addition to the visual inequalities already known about these patients. ⚠️ Many thanks to all my co-authors for their invaluable help! ❤️ João Pedro Marques, Cristina Moreira dos Santos, Maria Luisa Coutinho Santos, Sara Vaz-Pereira, José Costa, Pedro Arede, Raquel Félix, Sara Geada, Nuno Gouveia, Rui Silva, Margarida Baptista, Miguel Lume, Ricardo Parreira, Célia Azevedo Soares MD PhD, Maria João Menéres, Carolina Lemos and João Melo Beirão.

The GPA is a long-term project that seeks both to drive continuous improvement in the understanding of psoriasis and uncover how it affects both the individual and society at large. Our mission is to provide the common benchmark on the burden of psoriasis in all countries and regions throughout the world. The GPA leverages existing data from publications and registries; where gaps are identified additional studies will be commissioned. The vision of the GPA is to become the leading epidemiological resource globally on psoriasis. https://lnkd.in/eD__Br2i

Tuberculosis Introduction : Tuberculosis is an infectious disease usually caused by Mycobacterium tuberculosis (MTB) bacteria. TB is the ninth leading cause of death worldwide and the leading cause from a single infectious agent, ranking above HIV/AIDS. Over 33% of TB deaths occur in the African Region. HOW TB SPREADS: TB bacteria spread through the air from one person to another. When a person with TB disease of the lungs or throat coughs, speaks, or sings, TB bacteria can get into the air. People nearby may breathe in these bacteria and become infected. SIGNS AND SYMPTOMS: Symptoms of TB disease  depend on where in the body the TB bacteria are growing. TB bacteria usually grow in the lungs (pulmonary TB). TB disease in the lungs may cause symptoms such as a bad cough that lasts 3 weeks or longer pain in the chest coughing up blood or sputum (phlegm from deep inside the lungs) PREVENTION If you’re traveling to a place where TB is common, avoid spending a lot of time in crowded places with sick people.  If you have a latent infection, take all your medication so it doesn’t become active and contagious. Tom Coleman Dr. Donald Ibe Ofili, PhD, MSc, IFBA CP Dr Talkmore Maruta African Society for Laboratory Medicine (ASLM) Nonye Umahi

Attention #raredisease researchers - participate in the EJP RD Survey! EJP RD are thrilled to announce the launch of their survey aimed at assessing the knowledge and impact of Rare Diseases research (data) resources and tools provided by the European Joint Programme on Rare Diseases (EJP RD). As a member of the Rare Diseases research community, your input is invaluable. This survey will help us understand how well we have addressed the gaps in rare diseases research and guide our future efforts in data processing and service provision. Why Should You Participate? • Share your insights and challenges in the field of rare diseases research. • Influence the direction of EJP RD’s resources and tools. • Contribute to the upcoming European Rare Diseases Research Alliance partnership. Take the Survey Now! 👉 https://bit.ly/3SdDAML #RareDiseases #Research #EJPRD #Survey #DataScience #HealthcareInnovation

Yetena Weg in collaboration with Ethiopian Society of Internal Medicine presents you: Updates on Approach and Management of Glomerular Diseases By Dr. Nebiyu Getachew (Nephrologist, Assistant Professor of Internal Medicine) 🗓 Date: Apr 27, 2024 🕔 Time: 05:00 PM - 07:00 PM (Ethiopian Time)                  ✨✨✨ 2 CEU Points ✨✨✨ 👉 Click here https://lnkd.in/e-Vf5eSV and REGISTER NOW ! 📩 After registering, you will receive a confirmation email containing information about joining the webinar. #CME   #YetenaWeg   #ESIM

Check out this fascinating interview with Dr. Farha Ramzan on the effects of Kawakawa on inflammation, diabetes, and the gut microbiome. Looking forward to hearing more as this meaningful research continues to unfold. Stay tuned! #Kawakawa #Inflammation #Diabetes #GutHealth #Research

We are excited to share the International Society on Thrombosis and Haemostasis (ISTH) 2024-2028 Strategic Plan. Read our editorial in the June issue of Journal of Thrombosis and Haemostasis (JTH) to learn more about ISTH's plans to continue to shape the future of #thrombosis and #hemostasis globally. Flora peyvandi Pantep Angchaisuksiri https://lnkd.in/eJa4Gpvz

📍 Prof. Dr. Henry Völzke, University of Medicine Greifswald, the Coordinator of the EUthyroid2 project, participated as a speaker at the 46th European Thyroid Association Annual Meeting, at the IGN Meeting, September 7, in Athens, Greece. 📍Prof. Dr. Völzke presented the EUthyroid2 project and highlighted that: 📌the first EUthyroid project drew attention to the situation in Europe, emphasising that up to 50% of the region's newborns are at risk of iodine deficiency. 📌the EUthyroid2 project aims to increase awareness of iodine-related health risks, especially in adolescents and young women to ensure the prevention of iodine deficiency in Europe and beyond. He gave an overview of the interventions that will be conducted in: 📌the educational setting (in the UK, Slovenia, the Republic of Cyprus, Pakistan, and Bangladesh) 📌the healthcare setting (in the UK, Pakistan, Bangladesh, Norway, and Poland). #EUthyroid2 #ETA #IGNMeeting #HenryVölzke #iodine #nutrition #HaDEA

#mdpicompounds #openaccess Glad to share excellent work published in Compounds MDPI. 📍 Title: Polyphenols in Health and Disease: Gut Microbiota, Bioaccessibility, and Bioavailability 📍 Authors: Joaquim Bié, Bruno Sepodes, Pedro C. B. Fernandes and Maria H. L. Ribeiro 📍 More information about the paper can be found here: https://lnkd.in/grnQ3dBE 📢 All publications in the Special Issue "Feature Papers in Compounds (2022–2023)" are at the following link: https://lnkd.in/eTVzDtkn

📢 Participate in the EJP RD Survey! 🌍 https://lnkd.in/epr8W4pW We are sharing the launch of a survey to assess the knowledge and impact of Rare Disease (RD) research (data) resources and tools provided by the European Joint Programme on Rare Diseases (EJP RD). 🧬🔬   As a member of the RD research community, your input is invaluable. This survey will help the EJP RD understand how well they have addressed the gaps in rare disease research and guide future data processing and service provision efforts.   Why Should You Participate? - Share your insights and challenges in the field of rare diseases research. - Influence the direction of EJP RD’s resources and tools. - Contribute to the upcoming European Rare Diseases Research Alliance (ERDERA) partnership.   Take the Survey Now! 👉 https://lnkd.in/epr8W4pW Together, let’s advance the field of rare diseases research! 🚀 #RareDiseases #Research #EJPRD #Survey #DataScience #HealthcareInnovation