The final conference of the IPDD theme - on The power of scattering and imaging in understanding and treating disease - is today. We have a full house here in Forum Medicum, and a schedule packed with powerful talks! Karin Lindkvist Vito Foderà Martin Bech Raminta Venskutonytė Anna Stradner
LINXS Institute of advanced Neutron and X-ray Science’s Post
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Learn more about the importance of data sharing in the rare disease space, and join the GA4GH Rare Disease Community if you want to make an impact!
🔔NEW GUEST BLOG POST: Uncovering and overcoming common data sharing challenges in the Rare Disease landscape “In this blog post, we provide an overview of the different organisations that presented at April Connect, and how they are working to connect the siloed pieces of the rare disease puzzle and promote effective data sharing.” Read the news story here: https://hubs.li/Q02Dlk3z0
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Professor of Vascular Surgery; Honorary Consultant Vascular Surgeon. University of Leicester & NIHR BRC
1st day in Paris Vascular Insights 2024...this was the opening talk for the conference in the "Clash of the Titans" section. How to treat aorto-iliac disease (?). Well... unless we randomise to EVOCC, we will never find out. Follow @evocc_trial on X.
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Professor of Vascular Surgery; Honorary Consultant Vascular Surgeon. University of Leicester & NIHR BRC
1st day in Paris Vascular Insights 2024...this was the opening talk for the conference in the "Clash of the Titans" section. How to treat aorto-iliac disease (?). Well... unless we randomise to EVOCC, we will never find out. Follow @evocc_trial on X.
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Give our latest episode on patient involvement a listen! 🧬
In today's episode, our guests discuss the importance of patient involvement when shaping rare condition research, to ensure research really addresses the issues that matter most to those affected 🎙️ Listen to the episode via this link: https://ow.ly/VLwH50UkJlZ Melanie Dixon, Jo Balfour, Cure DHDDS, Cambridge Rare Disease Network (CamRARE)
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🔔NEW GUEST BLOG POST: Uncovering and overcoming common data sharing challenges in the Rare Disease landscape “In this blog post, we provide an overview of the different organisations that presented at April Connect, and how they are working to connect the siloed pieces of the rare disease puzzle and promote effective data sharing.” Read the news story here: https://hubs.li/Q02Dlk3z0
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FDA’s Rare Disease Innovation Hub has plans for 2025. Check out the Hub’s Strategic Agenda – now available online: https://lnkd.in/g-PPK9x4
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Sr. Manager Business Development and Client Management at CTI Clinical Trial and Consulting Services
It's great to see Rare Disease research getting this attention. A couple of key takeaways from my review: 1. The need for Community in Rare Disease research is crucial. The ability to put patients first in the trial is a must, and creating a collaborative network for the families and researchers will hopefully continue to enhance our abilities to move these medicines forward. 2. The RISE workshops seem like an awesome opportunity to innovate together. I'm particularly interested in the first workshop where the discussion will be around trial design. Looking forward to seeing how this impacts Rare Disease research and more importantly the patients!
FDA’s Rare Disease Innovation Hub has plans for 2025. Check out the Hub’s Strategic Agenda – now available online: https://lnkd.in/g-PPK9x4
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Today is World Thyroid Day! Check out the session on 'The Role of IR in Thyroid Disease' in the CIRSE Library. ➡️ https://t.ly/4mSMZ #worldthyroidday #interventionalradiology
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An Introduction to the Aperta NSE PTA Balloon Technology: A New Tool for Treating Peripheral Arterial Disease International thought leader Craig Walker, MD, discusses the new scoring technology Aperta NSE PTA, describing its features and the potential benefits based upon his early use and the unique features of the technology. https://okt.to/lfSUPD
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Dry Eye Disease (DED) is a multifaceted condition that requires a multifaceted approach. From personalized treatment plans to the latest diagnostic tools, this course covers it all! https://lnkd.in/gUR9cq7D
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