McGrath Foundation’s Post

The Atlanta insurance community is uniting with Insure the Cure to support the Cystic Fibrosis Foundation, Georgia Chapter. Insure the Cure was formed in 2011 to support research and support those with cystic fibrosis, a life-threatening genetic disease that primarily affects the lungs and digestive system and limits the ability to breathe over time. While tremendous progress has been made, there is still no cure. Over the last decade, the insurance community has raised over $3.3 million and made an astounding impact in CF research and care. The industry has banded together agencies, companies, brokers, and re-insurers who on most days are fierce competitors, but have united to find a cure for the 40,000 people nationwide living with CF. We know no pace is fast enough when you or your loved one are waiting for a lifesaving breakthrough. Thanks to our efforts over the last decade, there has been unprecedented momentum in CF research and care, but we are not done yet. The vision of Insure the Cure is a CURE for every person with cystic fibrosis and a life free from the burden of this disease. You have the opportunity to be part of ending this disease. Please consider donating to our fundraising efforts. https://lnkd.in/gprtPpWh #cff #insurethecure #greatstridesATL #ioausa

"Everything is deemed 'not medically necessary' somehow," Emily tells Ariana in today's interviews, and sadly, this story isn't unique. On Day 4 of #EBAwarenessWeek, we dive into the frustrating reality that many people with Epidermolysis Bullosa (EB) face when it comes to insurance coverage for vital wound care and medical supplies. 💜 debra of America's Wound Care Distrbution Program bridges these gaps in coverage, sending critical wound care supplies to thousands of families nationwide at zero cost to them. This essential program ensures that those with EB have access to the supplies they need to manage their condition, even when insurance falls short. 👉 But we can't do it alone. Your tax-deductible donation will help keep this essential program running. Join us at https://bit.ly/3UsDnX8

Harsh reality of the challenges patients and families go through in rare disease. Gene therapies make a lot of news about the high price, but what requires equal attention is the lack of support and coverage for medical supplies as this video highlights. debra of America #cellandgene #genetherapies Cell & Gene at ZS

Hello my LinkedIn community, I do not post asking for help on this platform often this is for my cousin's son who needs dire help today. William needs help with a transplant for his diagnosis of complete bone marrow failure. Please share in your community and together our comminuities can help him survive. The post below is from his mom, my cousin Nicole. This is my son William, he is currently on the waiting list for a transplant—a procedure that will quite literally save his life. Time is of the essence, as every passing day puts more strain on his fragile body. At just 13, William has faced more adversity than most of us will in a lifetime. Diagnosed with Total Bone Marrow Failure Acute Aplastic Anemia his daily life is marked by hospital visits, treatments, and managing the effects of a failed bone marrow. Despite it all, his spirit remains unbroken. His smile lights up every room, his laughter is contagious, and his determination inspires everyone who meets him. Transplants are life-saving, but they also come with immense financial and emotional burdens. Between pre-transplant care, the surgery itself, post-operative medications, and ongoing follow-ups, the costs quickly add up to hundreds of thousands of dollars. Insurance covers some of these expenses, but not nearly enough, We can’t do this alone, but together, we can give William the future he deserves. By donating to his transplant fund, you’re not just contributing to a medical procedure—you’re giving him the chance to run, play, learn, and live a full life. https://lnkd.in/g6fXFurv All donations are recognized by the IRS as a tax credit ❤️ great for businesses who may need a tax break!

Close to 40,000 children and adults in the United States have been diagnosed and are living with Cystic Fibrosis (CF) today. The average lung transplant and follow-up care can cost more than $1.4 million. Thanks to improved health insurance coverage, few patients are required to pay this amount, but insurance does not cover everything. The Children’s Organ Transplant Association (COTA) works with patients of any age facing life-saving transplants as a result of cystic fibrosis to raise funds for transplant-related expenses. Do you know someone with CF who could benefit from COTA’s assistance? #cysticfibrosis #CF #CFAwarenessMonth #donatelife #transplantfundraising #transplant

My 36-year-old son, Corbb O'Connor, is facing an unimaginable battle. He has Chronic Kidney Disease linked to his blindness, and his kidneys are now functioning at only 13% of normal. Very soon, he will need to start dialysis. There is no cure for this condition other than a transplant. Corbb is on "The List," along with over 100,000 others, waiting for a deceased donor kidney, a process that can take up to five years. But he doesn't have that kind of time. Living donor kidneys not only last longer but also provide a much better quality of life. Unfortunately, dialysis, while life-sustaining, severely restricts daily life and is not a long-term solution. We are reaching out to friends, friends of friends, and even strangers, hoping that someone out there might be willing to get tested to donate a kidney to Corbb. The process involves virtually no out-of-pocket cost for testing and if you choose to donate, Corbb's insurance will cover the costs. You can learn more here: mayoclinic.org/livingdonor A kidney from a living donor could change Corbb's life forever. While people can live long, healthy lives with just one kidney, we know this is a significant request. If you feel moved to help, please get tested. Or the one thing everyone can easily do to make a tremendous difference is to share this post with your network. Every share increases the chances of finding the right donor and gives Corbb a fighting chance. My own dermatologist received a new kidney from a stranger in Michigan. "She saved my life," he told me. Please, help us spread the word and consider getting tested. Your kindness could be the miracle we’ve been praying for. Thank you for your support. Kevin Learn more and get tested: mayoclinic.org/livingdonor ­­#KidneyDonation #DonorNeeded #SaveALife #OrganDonation #KidneyTransplant

Imagine having a fatal disease that robs you the ability to walk, speak, swallow and eventually breathe. Imagine knowing that this disease has no known cause nor cure. This is ALS. Due to the rapid progression of ALS, the needs of someone living with the disease evolve quickly over a short period of time. Often times insurance does not cover medical equipment, so The ALS Association utilizes a loan pool that allows people to access equipment at no charge. Caregivers often need a break, so The ALS Association pays for skilled home care workers to give those caregivers time. The ALS Association also provides augmentative communication devices that are critical when someone's ability to speak has been compromised. I will be running in the SuperHero 5K/10K on May 18th, an event designed to raise funds in support of those living with ALS. We can support those living with ALS while spreading awareness of the urgency to find treatments that will lead to a cure. We would love for you to donate and/or walk/run with our team:

How does Bermuda Cancer and Health Centre offer cancer services with no co-pay? The answer is our community. With donations from fundraising, volunteers, event participants’ registration fees, sponsors, corporate matching gifts, tribute funds, or commemorative tiles, our community makes equal access possible. Thanks to the generosity of our community, we provide our clinical services - diagnostic imaging and radiation therapy - without charging a co-pay, regardless of your health insurance status. Why? Early detection can often mean the difference between life and death. At Bermuda Cancer and Health Centre, cost is not a barrier to accessing a potentially life-saving screening or treatment. Our mission is to provide the highest standard of early detection, treatment, support, care and education for cancer and other diseases to all; offering services without a co-pay is one way we’re bringing our mission to fruition. Visit chc.bm to learn more about our Equal Access Fund, which subsidises our costs. #BermudaCancer #EqualAccessFund #NoCoPay #EarlyDetectionSavesLives

The Heart and Circulatory Disease Network, which includes Arrhythmia Alliance and other charities, has come together, with supporting clinicians, to agree clear recommendations to create meaningful change in preventing cardiovascular disease (CVD), saving lives and costs to the NHS. Read about the key challenges and recommendations to improve CVD prevention in our latest news article: https://loom.ly/wgHzrF4 #CVD #CardiovascularDisease #NHS #UKCharities

Important information from the National Association of Free and Charitable Clinics (NAFC) regarding an increase in patients seeking care at free and charitable clinics across the country following the unwinding of pandemic Medicaid. In NC, with the concurrent unwinding and expansion, we’re seeing fluctuations in patient counts at member clinics, with many also seeing an influx of new patients. We expect that trend to continue with over 700,000 projected to remain uninsured after Medicaid expansion in NC.