mejo’s Post

New blog: Teamwork makes the dream work. Written by: Myra Holland Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out day to day on our own. Any given day with Wes may seem routine, but we never know how it will go. Most days I stay with him and take him through stretches, medications, and his favorite activity – watching Bluey. Often times, this is the only moment he gets to sit up and see the world from a new perspective as he struggles to breathe upright for long periods of time. Daily routines can vary though there are certain things which must stay the same and this is where mejo comes in. I began using mejo to compile Wesley’s daily routine, medications, therapies, and more to post in one concise page on the fridge. More recently, I used mejo to fill in Jake and Nate for the multiple appointments Wesley had when I was traveling to a rare disease conference. It came in handy for referencing everything from recent progress in OT to current medication doses (they change every month if not every few weeks due to the intractable nature of his epilepsy). The appointments went smoothly even though I wasn’t there to join in and add my two cents, they were already in his mejo. I plan to take mejo printouts everywhere now. It replaced our normal handwritten paper covered in scribbles and scratch outs. Now one lives in his diaper bag, one for doctors appointments, and one for caregivers on the rare night out. Read more about Myra, Jake and Wesley's journey: https://lnkd.in/dVPeiGzU #raredisease #caregiver #seizures #healthtech #pediatrics #careonepagers

Teamwork makes the dream work.

Teamwork makes the dream work.

mymejo.com

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