When the game is on the line it takes TEAMWORK! Last week while attending the annual Global Genes Advocacy Summit I met Myra, a Rare Mom, Caregiver and Advocate who recently came across mejo. She told me how mejo has helped her with all the things related to her son, Wesley's rare disease and care. While she was at the conference her husband and her brother stepped in and took Wesley to a few appointments. "The appointments went smoothly even though I wasn’t there to join in and add my two cents, they were already in his mejo." As someone who has spent years navigating healthcare and works everyday to building tools for families caring for medically complex loved ones, I’ve seen firsthand the power of teamwork. Caring for someone with a rare or complex condition is an everyday job—one that often requires coordinating with multiple caregivers, specialists, and therapists. Each person plays a vital role, and without effective collaboration, critical information can easily fall through the cracks. That’s why we built mejo—to ensure that everyone on the caregiving team has a shared understanding of the care journey. From doctors and specialists to family members and friends, teamwork is at the heart of providing the best care. The ability to share health updates, communicate effectively, and store critical medical details all in one place can make an immense difference. Our mission at mejo is to simplify care coordination so families can focus on what matters most—their loved one. This blog post beautifully highlights the importance of everyone working together. We believe in empowering families to build a strong, unified team through technology. Because when it comes to caregiving, teamwork truly does make the dream work. Let’s continue building those bridges and working together to lighten the load for families everywhere. #TeamMejo #CaregiverSupport #FamilyFirst
New blog: Teamwork makes the dream work. Written by: Myra Holland Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out day to day on our own. Any given day with Wes may seem routine, but we never know how it will go. Most days I stay with him and take him through stretches, medications, and his favorite activity – watching Bluey. Often times, this is the only moment he gets to sit up and see the world from a new perspective as he struggles to breathe upright for long periods of time. Daily routines can vary though there are certain things which must stay the same and this is where mejo comes in. I began using mejo to compile Wesley’s daily routine, medications, therapies, and more to post in one concise page on the fridge. More recently, I used mejo to fill in Jake and Nate for the multiple appointments Wesley had when I was traveling to a rare disease conference. It came in handy for referencing everything from recent progress in OT to current medication doses (they change every month if not every few weeks due to the intractable nature of his epilepsy). The appointments went smoothly even though I wasn’t there to join in and add my two cents, they were already in his mejo. I plan to take mejo printouts everywhere now. It replaced our normal handwritten paper covered in scribbles and scratch outs. Now one lives in his diaper bag, one for doctors appointments, and one for caregivers on the rare night out. Read more about Myra, Jake and Wesley's journey: https://lnkd.in/dVPeiGzU #raredisease #caregiver #seizures #healthtech #pediatrics #careonepagers
Making a Difference at Locumsmart. Collaborating to share VMS insights and strategies, educating our healthcare members, promoting an organization I am passionate about, and building relationships along the way.
2moRyan D. Sheedy it was wonderful to meet you in person last week. Keep doing amazing things!