Personalized Medicine Coalition’s Post

🌍✨ Celebrating International Clinical Trials Day! ✨🌍 On May 20th, we honor the vital role clinical trials play in advancing medical research and improving global health. This day marks the anniversary of the first clinical trial conducted by James Lind in 1747, which laid the foundation for modern clinical research. Clinical trials are essential for developing new treatments, improving existing therapies, and ensuring patient safety. They are the bridge between scientific discovery and real-world medical practice. Without the dedication of researchers, healthcare professionals, and especially the brave participants, medical advancements would not be possible. Here's why clinical trials matter: 🔬 Innovation: They drive the development of new and more effective treatments. 💊 Safety: Rigorous testing ensures that new therapies are safe for patient use. 📊 Data: Provide critical data that leads to evidence-based medical practices. 👥 Participation: Volunteers help bring new treatments to those who need them most. A heartfelt thank you to everyone involved in clinical trials: Researchers: Your relentless pursuit of knowledge saves lives. Healthcare professionals: Your dedication ensures trials are conducted ethically and safely. Participants: Your courage and altruism make new treatments possible. Let's continue to support and participate in clinical trials to pave the way for a healthier future for all. #ClinicalTrialsDay #MedicalResearch #Innovation #GlobalHealth #ClinicalTrials #HealthcareHeroes #ResearchAndDevelopment

𝐈𝐦𝐚𝐠𝐢𝐧𝐞 𝐚 𝐰𝐨𝐫𝐥𝐝 𝐰𝐡𝐞𝐫𝐞 𝐜𝐡𝐢𝐥𝐝𝐫𝐞𝐧 𝐟𝐚𝐜𝐞 𝐡𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞 𝐰𝐢𝐭𝐡 𝐜𝐮𝐫𝐢𝐨𝐬𝐢𝐭𝐲 𝐢𝐧𝐬𝐭𝐞𝐚𝐝 𝐨𝐟 𝐟𝐞𝐚𝐫. 𝐗𝐩𝐥𝐨𝐫𝐨 𝐢𝐬 𝐦𝐚𝐤𝐢𝐧𝐠 𝐭𝐡𝐢𝐬 𝐚 𝐫𝐞𝐚𝐥𝐢𝐭𝐲. A compelling six-month study at one of the UK's leading children's hospitals has illuminated the profound benefits of informed care: children who used #Xploro showed a significant decrease in anxiety and a remarkable increase in knowledge and satisfaction around their medical procedures. Championed by Professor Lucy Bray of Edge Hill University, these findings published in the JMIR Publications highlight a breakthrough in compassionate, child-centric healthcare. Discover the full scope of our clinically validated approach on our research page: https://lnkd.in/gnFmDWvs

Amazing achievement for a major organization, indicating the future of guideline development

I believe passionately that the patient is waiting for a diagnosis of their medical needs, and then treatment, and for the most ravaging diseases - hoping/praying for a cure. Much focus in LinkedIn forums is on the transformative impact that AI will have on every aspect of drug discovery and development, on the evolution of diagnostics, and the transformation of patient care. AI is a toolset; precision medicine is the overarching architecture that brings it all together for the patient, their carers, family, friends, and community. I'd like you to please read our paper on the promise of precision medicine and what you can do to help bring this about.

In 2022, we released pivotal research revealing that 64.4% aNSCLC do not receive optimal precision medicine treatment. To address these practice gaps, the Precision Medicine Practice Gaps Forum was established, consisting of an interdisciplinary group of precision medicine experts to address the economic, policy, and operational barriers currently preventing patient access to precision medicine. The Forum’s Recommendations Paper has now been released, which provides industry and policy makers with clear economic guidance and actionable strategies to overcome the challenges obstructing the advancement of precision medicine. Denny Van Liew, Life Sciences Senior Advisor, Red Nucleus, and co-chair of The Forum shares his insights on the Forum’s findings and emphasizes the power of collaborative efforts in advancing patient care. As Denny states, “Precision medicine holds the promise of delivering the right treatment to every patient at the right time. We’re not just talking; we’re committed to driving change.” Download the full paper here: https://lnkd.in/e7FnGF49 #PrecisionMedicine #HealthcareInnovation #BetterTestingBetterTreatment Amy Gorman Brenda Yanak Cecilia Schott Dawn Cardeiro, MS Daryl Pritchard Professor Gerardine Doyle Kamala K Maddali DVM PhD Mark Lawler Pranil Chandra Sarah Hersey Sibylle Lenz Terri Conneran Peter Keeling Susanne Munksted

Tranquil Celebrates Clinical Trials Day! Today, we honor the incredible advancements in medical research made possible through clinical trials. We extend our heartfelt gratitude to the dedicated researchers, healthcare professionals, and, most importantly, the participants who contribute to the discovery of groundbreaking treatments and cures. Your commitment and effort drive the future of medicine! #ClinicalTrialsDay #Trailblazers2024 #ClinicalTrials #ClinicalResearch

Today we are excited to launch our first Research Strategy 2023-27! At Austin Health, research is embedded into how we deliver clinical care. It is an essential part of what allows us to provide outstanding patient care across a broad range of specialties and community medicine. Research is fundamental to helping us advance the treatment we can provide, and our Research Strategy directly aligns with our guiding principle ‘Research activities that improve patient outcomes.’ Professor James Best, Director Research says, “Research is a fundamental part of delivering on our strategic outcomes and achieving the purpose and vision of Austin Health. Our Research Strategy not only supports our commitment to our purpose of ‘Helping people live healthy, productive and fulfilled lives,’ but also aligns with our vision of ‘Shaping the future through exceptional care, discovery and learning’. “The goal of research in a healthcare setting is to improve patient care. Our Research Strategy includes 12 Strategic Action Points that will collectively support an enhanced contribution to improved patient care through research,” he adds. Read more https://bit.ly/3wO6dsm

To help patients and families make informed decisions about participating in clinical research, the MRCT Center of Brigham and Women's Hospital and Harvard University, along with patient advocates and research professionals, has created a plain-language Clinical Research Glossary. This resource, available for free download, features 167 definitions complete with images and related resources, all rigorously reviewed by the public to set a global standard. You can find many terms implemented in Cure Mito glossary: https://lnkd.in/evRe3Mu9 Learn more about the glossary here: https://lnkd.in/ezmvngCp #leighsyndrome #mitochondrialdisease

Today we share Anne Wilson’s enlightening conversation with Professor David Putrino. We need dedicated research on bedbound patients – so often they are excluded from research because it is viewed as "too hard" to involve them, which is not the case. Making reasonable accommodations for bed- and house-bound patients to participate in research is, in fact, good and ethical research practice. In addition, we need comprehensive educational resources to share the knowledge of some of the physicians and clinicians who have experience in treating these patients, so that more clinicians can come to understand how to manage the care of these individuals. Too many patients living in this situation are viewed as "too difficult" and many clinicians don't even know where to begin. Skilled education can help here and can provide many clinicians with a roadmap of ways to improve quality of life for these individuals who are living in very tough conditions. Professor David Putrino, Director of Rehabilitation Innovation at Icahn School of Medicine at Mount Sinai Listen here: https://vist.ly/3a6f8

Unsustainable levels of burnout and intention to leave among primary care physicians (PCPs) are widely recognised – but responses haven’t yet addressed the excessive job demands that underpin these trends and contribute to the time scarcity that PCPs experience day-to-day. This time scarcity is problematic for patients too. This paper explores how time constrained PCPs identify and address patient safety issues and high-risk situations in five types of patient care episodes: high-risk social situations, high-risk medication regimens requiring patient education, high acuity conditions requiring immediate workup or treatment, interactions of physical and mental health, and investigating more subtle clinical suspicions. PCPs detailed how taking extra time during these visits changed their clinical management. The findings make clear the importance of ensuring sufficient slack in scheduling to enable PCPs to respond to patient care episodes that are time sensitive, time intensive or require flexibility. Well-designed jobs that provide sufficient time during appointments matter for patients and providers. https://lnkd.in/gM5eNATT Such a pleasure to work with Shannon Satterwhite, Michelle-Linh Nguyen, Vlad Honcharov, MPH & Urmimala Sarkar MD MPH and thanks to The Commonwealth Fund for their support for my time during my Harkness Fellowship