Pickles Group’s Post

In case you missed the first part of our newest blog series 'Navigating Diagnosis to Recovery', take a look at our previous post on our socials or our website! This series features Mrs. Jill McNeely, a retired breast nurse navigator. In this episode, we dive into the crucial role of a nurse navigator in your breast cancer journey—from diagnosis to treatment and recovery. Learn where to find these vital healthcare professionals, what to expect from their support, and steps to take if you don't have one. ✨ Jill also shares invaluable tips and resources for navigating your diagnosis: 1️⃣ Get a written copy of your pathology report 2️⃣ Ensure you have contact info for your nurse navigator and your doctor’s primary nurse 3️⃣ Research wisely—stick to trusted sources 4️⃣ Find support groups that resonate with you. Visit the resources section on our website to learn more!

Breaking down barriers and facilitating access to personalized medicine at the point of care is key to better patient outcomes. As part of this effort, our community conducted a preliminary landscape mapping to better understand the roles, challenges, and support needs of the healthcare professionals (HCPs) involved in the patient pathway. By raising awareness of these hurdles, we’re one step closer to enabling effective, scalable solutions that support healthcare professionals on the frontlines of precision medicine. At first, we're zooming in on the critical roles nurses and pathologists play in delivering personalized care at key stages of the patient pathway. The carrousel below walks us through the pathway and compares current vs. ideal roles, shedding light on the existing gaps and the opportunities to enhance their impact. Share these insights with your colleagues and network and reach out today (through DM or here: https://lnkd.in/eDMBPfru) if you wish to collaborate on this project! #LCAM #precisionmedicine #precisiononcology #patientoutcomes #personlizedmedicine #oncologynurses #pathologists

Your Health Companion in Peritoneal Mesothelioma collects real time longitudinal Patient Reported Outcomes as part of the Digital Assessment Xchange (DAX) research platform. This links to national clinical datasets to support regulatory and reimbursement appraisals. #rwe #medicalaffairs #lungcancer #mesothelioma #HTA #cancerresearch #marketaccess #digitalgealth #heor #patientadvocacy #patientresearch Oliver Webb Vivienne Law Lee Wemyss William Dolben

Introducing our new online course: Effective Management of Dysphagia in Stroke Patients! Unlock essential skills with our latest training designed for healthcare providers. Dysphagia, or swallowing dysfunction, affects the majority of stroke survivors in the US and poses significant challenges to their recovery and quality of life. With this, let us make a profound impact on your practice and your patients' lives. Enroll now and transform care outcomes! Click on our link to learn more. #HealthcareTraining #DysphagiaManagement #MedicalEducation #HealthcareProfessionals

🌟 Exploring Challenges & Opportunities in Pediatric Clinical Trials 🌟 Pediatric clinical trials are at the forefront of innovation in healthcare, but they also come with unique challenges. At Zanteris, we're diving deep into these complexities to pave the way for a healthier future for our youngest patients. 🚀 Challenges: From ethical considerations to limited patient populations and age-related variability, pediatric trials demand meticulous attention and strategic solutions. 🌈 Opportunities: Despite the hurdles, there are abundant opportunities for innovation. From advanced modeling techniques to real-world evidence and patient advocacy, we're reshaping the landscape of pediatric research. As we navigate these challenges and seize opportunities, our commitment to pediatric healthcare remains unwavering. Together, let's redefine the narrative and build a brighter future for our children. 📚 References: Dive deeper into the world of pediatric clinical trials with our lastest insight: https://lnkd.in/d3Biyyqm. Join the conversation and let's drive pediatric research forward ! #PediatricClinicalTrials #HealthcareInnovation #PatientAdvocacy #Zanteris #Research #PediatricHealthcare #Unlockclinicalexcellence

Here is a resource designed for nurse navigators to use with their patients and caregivers to help them navigate Myelodysplastic Syndromes (MDS) https://lnkd.in/eKPxfxBq

Thrilled to read the long-awaited study demonstrating the positive impact of the CF R.I.S.E. Transition program had on clinical outcomes in adolescents and young adults (AYA) with Cystic Fibrosis (CF). Congratulations to Katherine Melton and team for finally tackling the question I received from countless Center Directors and conference booth visitors for the nearly 8 years I worked on the program. While we had compelling qualitative and quantitative data from the pilot program, clinical outcomes were never studied. During my tenure I was fortunate to attend advisory board meetings, speak with care teams during program trainings and coaching calls and work closely with the Transition Advisory Council (TAC) to develop additional tools and resources. I completely agree with the authors’ findings that successful transition from pediatric to adult care, much like many other aspects of health care, is influenced by individual factors, including behavioral, emotional, and social determinants of health. What I would also underscore is the role of external support system, which was a unique feature of the CF R.I.S.E. program. The program was designed to be implemented by teams in clinic, and the tools encouraged *some* parent participation (Responsibilities Checklists), while empowering AYA to educate and advocate for themselves. I believe that the program’s success and any associated improved clinical outcomes all ultimately come down to the multi-disciplinary care teams who embraced CF R.I.S.E. and integrated it into their clinic flow. The singular common denominator among the clinicians that I worked with was their conviction that knowledge is power, and demonstrated by their commitment to improving their patients' lives by giving them the information and skills to take responsibility for their health care. https://lnkd.in/gJV8s7h3

【Advancing Pediatric Hemodialysis Care through the Novel Intervention in Children's Healthcare (NICH) Program】 Full article: https://lnkd.in/gDz_J5Fg (Authored by Jessica Williams, et al., from Lucille Packard Children’s Hospital Stanford (USA), etc.) Studies continually show that there are social determinants of health, such as structural racism, housing quality, and employment opportunities, which prevent successful outcomes for patients with end-stage kidney disease (#ESKD) on hemodialysis. Therefore, it is important to uncover how to best support families despite these barriers, restoring equity and advancing patient care. This retrospective cohort study reviews patients with ESKD on hemodialysis involved in Novel Intervention in Children's Health (#NICH) to explore if NICH serves as a liaison between the patients and multidisciplinary medical team and to explore if NICH helps patients better manage the challenges of end-stage kidney disease. #Pediatric_Hemodialysis #Healthcare_Disparities

Hot off the presses! Development of the pediatric narcolepsy patient-reported outcomes scale (PN-PROs) Let's continue the progress to patient directed care... #communicationmatters #patientslead #physicianspartner https://lnkd.in/eCuGyUdG

📅 ONS Congress Abstract Submissions Due September 26 📅 Small changes can make a big impact. Most ONS Congress abstract submissions are from nurses sharing process and care improvements from their day-to-day clinical work. Share what you’re doing to improve cancer care. If it's working for you, it could help your nursing peers, too. Submit an abstract and make a difference today. Abstract submissions for the 2025 ONS Congress in Denver, CO, are due September 26. What are you waiting for? https://lnkd.in/ewNGfTKP