Rare Disease Research Partners’ Post

We're just moments away from our Keynote Plenary. Head over to Salon 3 to experience "Innovations in Clinical Research: Broadening Clinical Trial Methods, Endpoints and Goals." #ASCP2024

Thank you Nadia Niemeryanski for sharing your experience in the panel: "The role of decentralized clinical trials and digitallization: bridging the gap in modern clinical research" as part of clinical trials Nexus Conference 🔝✔️ #decentralizedclinicaltrials #dct #GsapCRO #digitalization

🎓 Proud to have attended the "Critical Appraisal of Clinical Trial Study Designs" webinar by IVPN Clinical Research on May 20, 2024. Key insights: In-depth understanding of various clinical trial designs. Techniques to evaluate the strengths and limitations of studies. Methods to enhance the quality and reliability of clinical research. Thanks to Osama Tabbara and Nagham ramzy for their valuable expertise! #ClinicalResearch #ClinicalTrials #MedicalResearch #IVPN

Are you ready for clinical trials in 2030? Join CTTI’s Summer Starling, DrPH, MPH and Florence Healthcare’s Catherine Gregor tomorrow at Research Revolution Global Summit 2024 to explore cutting-edge updates in clinical trials frameworks! Essential topics, including CDISC’s eISF Reference Model for streamlined trial documentation and CTTI’s strategic roadmap for research in 2030, will be covered. This session will provide key insights into how clinical trials documentation is evolving and what steps you need to take to ensure compliance and innovation in your practices. Don’t miss this chance to future-proof your work! #ResearchRevolution #TransformingTrials2030

Q: How can I assess the feasibility of my clinical trial? A: Feasibility consultations are available from the Office of Clinical Research. Our team works with URMC researchers to enhance the decision-making process of study teams as you prepare to move forward with a trial. Learn more on our Feasibility Services page: https://lnkd.in/eCEwv3ND #URochesterResearch #ResearchHelpFAQs

Looking forward to National Organization of Research Development Professionals (NORDP) in Bellevue ! It’s going to be a long flight but I am excited to learn and meet people in research in the US as well as share more about BMJ Impact Analytics #NORDP2024 #researchimpact #researchadministration #realworldimpact #policyimpact #regulatoryimpact #clinicalimpact #researchlibraires #healthimpact #medicalimpact

💡 New ECRIN Publication 💡 We are proud to have participated in the publication of this article: "Mapping of Data-Sharing Repositories for Paediatric Clinical Research - A Rapid Review" in Data, published by MDPI. 📰 This paper explores the landscape of data-sharing repositories for paediatric clinical trial data, highlighting the need for targeted initiatives to promote awareness and establish common standards. Get all the details here: https://lnkd.in/eYsT_Gsj 👀 #Paediatric #DataSharing #ScientificPublication

Society of Clinical Research Associates (SOCRA) and Society for Clinical Research Sites (SCRS) conferences are on the same days this year. There aren't that many conferences with meaningful site content so it kinda sucks that two of the big guys are competing for attendees. Isn't this something that we could work together on? There's still plenty to go around and it would be good for everyone. #clinicaltrials #clinicalresearch

Today is #ClinicalTrialsDay! Join us as we celebrate the #TrailblazersAmongUs who help make clinical research not only possible, but successful. How have clinical trials impacted you? #CTD2024 ACRP - Association of Clinical Research Professionals