SDG AdvoHealth’s Post

I am so excited to share our recent paper, "Caring for Family Members of People With Substance Use Disorder: Practical Strategies" in the AAFP FPM Journal. Patients may suffer due to their family member's substance use disorder but hesitate to discuss it because of stigma and shame. Primary care physicians can help. Strategies to address issues for family members of patients with substance use disorder - Familiarize ourselves - Mitigate against bias - Practice in a non-judgemental way - Welcome - Screen - Utilize community sources - Discuss action items Sonoda K, Gelberg L. Caring for Family Members of People With Substance Use Disorder: Practical Strategies. Fam Pract Manag. 2024;31(6):26-29. Link: https://lnkd.in/gzBfC6Sq

⏰ 22 days left ! And we have reached 87% of our objective! 🙏 A warm thank you to all our donors ! It is still time to support the creation of AssoMarfans videos to encourage physical activity in children with Marfan syndrome and related disorders! https://lnkd.in/enj_uhPE 🎯 Exercise and a personalized training program in children and young adults significantly enhances Quality Of Life and cardiovascular/muscular metrics in patients with Marfan syndrome and related disorders, without affecting aortic root diameter. https://lnkd.in/epQvpEz9 @Steve Jouini Olivier Milleron Guillaume Jondeau #GreaterParisUniversityHospitals - #APHP 🎯 There is a significant positive association of physical health score with cardiopulmonary fitness. Physical activity and specific rehabilitation programs should be a major educational objective for in children with congenital heart disease. Greater awareness among all professionals involved in the care of children with Marfan syndrome, Loeys-Dietz syndrome and related disorders and their families must be developed. https://lnkd.in/dGy6PXut Yves Dulac, @Thomas Edouard, Fernanda Bajanca, #CHUToulouse 🎯 Recommendations on exercise, recreational, and competitive sports participation https://lnkd.in/dvEBSfYi VASCERN, European Reference Network on Rare Multisystemic Vascular Diseases ❤️ Patients with Marfan, Loeys-Dietz and related syndromes continue to face many morbidities, including the sequelae of multiple surgeries as well as musculoskeletal impairments that clearly have an impact on daily activities and their overall Quality of Life. Children and adults with Marfan syndrome and related syndromes very frequently complain of chronic fatigue and a lack of physical endurance. Excessive flexibility of the body's supporting tissues (connective tissues) and a muscle deficit could be at the origin of these symptoms due to increased stress on the skeleton. The muscle mass deficit, already present in young children and adolescents, worsens in adulthood. This muscle deficit could also explain, at least in part, a bone mass deficit observed in child and adult patients.

Due to overprotective parenting, societal and economic shifts, and technological progress, many young adults today are experiencing what is known as “Failure to Launch” syndrome. Although not a formal diagnosis, this term describes young adults who struggle or fail to transition into adulthood. Our goal is to help you overcome ‘Failure to Launch’ syndrome and achieve your full potential. Upon beginning treatment, we’ll provide a full diagnosis and develop a comprehensive treatment plan tailored to your specific needs. We can help you set treatment goals, create a plan for success, and address any underlying conditions contributing to the failure to launch. Connect with us: 📱800-566-2516 📧 consult@nextlevelra.com #nextlevelrecoverassociates #behavioralhealthmarketing #behavioralhealth #contentcreation #recovery #sobertransport #intervention #mentalhealth #soberliving #recoverycoach #sobercompanion #sobermovement #recoveryassociate #recoverycompanion

🌍 World PANS/PANDAS Awareness Day: Shining a Light on Neuroimmune Disorders 🌍 Today, we raise awareness for World PANS/PANDAS Awareness Day. PANS and PANDAS are serious neuroimmune conditions that cause sudden onset of OCD, anxiety, tics, and behavioral changes in children. Early diagnosis and treatment are critical for improving outcomes. Let’s spread awareness, support families, and advocate for more research to ensure every child receives the care they deserve. 💚 Share this post! #WorldPANSPANDASDay #PANSAwareness #PANDASAwareness #SupportKids #HealthcareStaffing #TheGenesisGroupInc #NeuroimmuneDisorders #MentalHealthMatters

Today, on Epilepsy Awareness Day, let's unite in raising awareness and support for those living with epilepsy. Let's work together to educate, advocate, and break the stigma surrounding this neurological disorder. Together, we can make a difference and create a more inclusive and supportive environment for all individuals affected by epilepsy. #hidocdr #EpilepsyAwareness #SupportAndAdvocate

🌟Cloves Syndrome Awareness Day - August 3rd🌟 Today, we raise awareness for CLOVES Syndrome, a rare overgrowth disorder. Let’s support those affected, promote research, and spread understanding. #ClovesSyndrome #AwarenessDay #SupportAndResearch #RareDiseaseAwareness #mpllabs

Deepen your understanding of Fetal Alcohol Spectrum Disorder (FASD)! Join our 1-day introductory course to gain essential insights into FASD, an often-misunderstood disability. This course will: 🔹 Clarify common misconceptions. 🔹 Explore the causes and impacts of FASD. 🔹 Teach effective support strategies. 🔹 Emphasize respect and dignity in your approach. Learn how to engage thoughtfully with individuals affected by FASD. 🔗 Register by Nov 14. https://lnkd.in/g7Maurd3 #FASD #DisabilityAwareness #ProfessionalDevelopment

Do you experience challenges such as nerve issues, headaches, back pain, arthritis, joint pain, rheumatism, tiredness, and paralysis? Or perhaps you are a parent of a child with autism or cerebral palsy? Start your journey to wellness with Kunga Therapy today. Our team of professionals is ready to support you. #GenuineKungaTherapyUg #GenuineWellnessStartsHere

🎗️Join us for our upcoming webinar: Patient and Family Empowerment to Optimize Quality of Life featuring Dr. Susan D. Block, National Leader in the Development of the Field of Palliative Medicine at Harvard Medical School. 🩵 Register here: https://lnkd.in/dWT4m8ZW ➡️ We will explore some of the issues that arise at different stages of the cancer trajectory to identify challenges and potential resources for patients and families to promote the highest possible quality of life for the patient and family. ➡️ Program goals: · Help participants support loved ones through active conversation and shared decision-making throughout the course of illness. · Provide information about supportive care options (e.g., mental health, young adult needs, parenting support, symptom management, and palliative care) to empower patients and family members to advocate for the care they want. · Actively engage family members in addressing their caregiving needs and concerns.

Let's take a moment to spread kindness, especially to those living with vestibular disorders. These conditions can be challenging and isolating, so here are some reminders to show kindness to yourself and others: 💖 Be Kind to Yourself: If you’re navigating a vestibular disorder, remember to give yourself grace. It’s okay to have tough days; prioritize self-care and listen to your body. 🤝 Support One Another: Reach out to friends or loved ones with vestibular disorders. A simple message of understanding or offering to spend time together can mean the world. 🗣️ Raise Awareness: Share information about vestibular disorders in your community. Educating others fosters understanding and support, creating a more inclusive environment. Today, let’s commit to being kinder to ourselves and each other. Small acts of kindness can make a big difference! #WorldKindnessDay #VestibularDisorders #KindnessMatters