How I Make Full-Time Work, Work for Me
photo of people working at desk

After finishing undergrad, I immediately enrolled in a 2-year master's program. I finally began working my first full-time job after being a student my entire life, only to be diagnosed with multiple sclerosis 1 month later. As much as I didn’t want my diagnosis to affect my performance, it was inevitable. Between going to doctor appointments, adjusting to new medications, and implementing lifestyle changes, I was spread thin. 

The onset of my MS was swift and harsh, with two flares hospitalizing me within a few months. Eventually, I had to recognize my limits and take short-term disability leave for 2 months. Returning to work, I was eager to overcompensate for my time off. However, the rigid 9-to-5 schedule clashed with the unpredictable nature of my MS. Unlike student life, I couldn't simply adjust my workload as needed; my time now belonged to my team.

Once I began to truly understand my MS triggers and symptoms, I was able to navigate my new responsibilities. This knowledge empowered me to advocate for myself and create a working environment that addressed my needs. Here's what worked for me:

Remote work: Being fully remote, with the added benefit of unlimited PTO, proved to be a game-changer. It allowed me the flexibility to manage my health alongside my work commitments.

Embrace flexibility: Within my 9-5, I found ways to adapt. Short naps, strategically timed breaks, and working outside of core hours when fatigue hit all became essential tools in my workday.

Communication: Open communication with HR was crucial. I discussed accommodations like an ergonomic chair to ease muscle pain and established a clear process for requesting time off.

Know your rights: Educating myself on employee rights and employer obligations regarding disability was empowering. Understanding the legalities helped me navigate conversations and advocate for myself confidently.

Living with MS has its challenges – emotional, physical, mental, and financial. But working full-time with MS is absolutely possible! The key is to prioritize your well-being, discover what works for you, and don't be afraid to ask for the support you need. By taking control and creating a work environment that fosters understanding, you can thrive with MS, both personally and professionally.

 

Photo Credit: Choreograph / Getty Images

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Reem Khatib

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