Happy New Year from all of us at Hydrocephalus Canada! As we step into a new year, we reflect on the incredible strength, resilience, and determination within our community. Every individual living with hydrocephalus and spina bifida, every caregiver, every healthcare professional, and every supporter inspires us daily with their courage and unwavering hope. This year, let’s continue to move forward together—breaking barriers, fostering understanding, and building a world where every person impacted can thrive. We are here for you, standing alongside you, and advocating with you every step of the way. May 2025 be a year of growth, connection, and positive change. Together, we are stronger. Together, we are unstoppable. With gratitude and hope, Hydrocephalus Canada
Hydrocephalus Canada (formerly SB&H Ontario)
Non-profit Organization Management
Toronto, ON 373 followers
Championing spina bifida and hydrocephalus communities.
About us
As Hydrocephalus Canada celebrates 50 years of service (formerly SB&H), we continue to be committed to making a positive difference in the lives of those impacted by the complex neurological conditions of spina bifida and/or hydrocephalus. HC was incorporated as a registered charity in 1973 and is governed by a volunteer board of directors. The organization supports those with spina bifida and/or hydrocephalus and their families with the challenges brought on by these serious, disabling conditions. HC has grown to provide a comprehensive and essential range of services for parents, families, youth and adults with sb/h. Our programs are rooted in the principles of self-help and personal support. We also serve the broader community which includes: parents who receive pre-natal diagnosis of sb/h; extended family members; all women of child-bearing age about the benefits of folic acid in the prevention of neural tube defects; and a wide spectrum of professionals in the social services, medical, health and education fields. HC receives minimal government funding and generates the majority of its operating revenue through a myriad of fundraising efforts. The strength of the organization is a vital network of dedicated volunteers. For further information please contact HC at info@hydrocephalus.ca
- Website
-
http://www.hydrocephalus.ca
External link for Hydrocephalus Canada (formerly SB&H Ontario)
- Industry
- Non-profit Organization Management
- Company size
- 2-10 employees
- Headquarters
- Toronto, ON
- Type
- Nonprofit
- Founded
- 1973
- Specialties
- charity, hydrocephalus, spina bifida, support, information, fundraising, and awareness
Locations
-
Primary
16 Four Seasons Place
Suite 111
Toronto, ON M9B 6E5, CA
Employees at Hydrocephalus Canada (formerly SB&H Ontario)
-
Shauna Beaudoin
Director, Programs & Information at Hydrocephalus Canada (formerly SB&H Ontario)
-
Kristine Dorward
Corporate & Business Development Consultant
-
Ryan Mcgrade
Manager, Commercial Banking Finance l MBA Candidate, DeGroote School of Business
-
Adriana Cinapri
Looking to branch out & explore other career options- See resume for details
Updates
-
Make a difference with a one-time gift! 💙 Donate before Dec 31 to support Canadians with hydrocephalus & spina bifida and receive a charitable tax credit. For example, a $200 donation can give you $75+ back in tax savings! Every dollar funds research, programs, and hope. ➡️Donate today https://ow.ly/Vyah50UgUoG] #HydrocephalusCanada #SpinaBifidaCanada
-
🌟 A heartfelt thank you to the incredible foundations supporting Hydrocephalus Canada! Your generosity and dedication empower us to make a lasting impact in the lives of individuals and families impacted by hydrocephalus and spina bifida. Together, we’re creating a brighter future. 💙✨ #Gratitude #ThankYou #SupportingFoundations #HydrocephalusCanada #CommunityImpact @rexallcarenetwork @integrafoundation @sickkidsfoundation @thecatheinemaxwellmeighenfoundation @georgelunanfoundation #alice&murraymaritlandfoundation #garybluesteincharitablefoundation
-
🌟🎄 The holiday season is here, and our hearts are brimming with gratitude for your unwavering support! May your days be filled with joy, peace, and the warmth of togetherness. From all of us at Hydrocephalus Canada, Happy Holidays! ❤️✨ #SeasonOfGiving #HappyHolidays #Gratitude #CommunityCare #hydrocephaluscanada #spinabifidacanada #nonprofitlove #snowflake
-
🎄✨ Happy Holidays from Hydrocephalus Canada! ✨🎄 Our office will be closed from December 24th at noon and will reopen on January 2nd at 9:00 AM. If you need to reach us during this time, please email us at info@hydrocephalus.ca, and we’ll get back to you as soon as possible. Wishing you and your loved ones a joyful and peaceful holiday season! Thank you for being part of our community. ❤️ #HappyHolidays #SeasonOfJoy #HydrocephalusCanada #SpinabifidaCanada
-
🌟 A heartfelt thank you to Postmedia for your steadfast support of Hydrocephalus Canada! Your generosity helps create awareness and drive meaningful change for individuals, families and healthcare workers impacted by hydrocephalus and spina bifida across the country. Together, we’re making an impact nationwide! 💙✨ #Gratitude #CreatingAwareness #ThankYou #PostmediaSupport #HydrocephalusCanada @postmedia #postmedia @nationalpost #nationalpost Gillian Akai
-
The holiday season often brings increased social interactions and family gatherings, which can be both joyful and challenging for individuals living with hydrocephalus or spina bifida. Managing health needs, addressing questions about your condition, and coping with the fear of missing out (FOMO) can create additional stress. By setting boundaries and focusing on meaningful connections, you can navigate these pressures with confidence and ease. Challenges: 💠Feeling the need to explain or manage medical conditions in family or social settings. 💠Fear of missing out (FOMO) or feeling excluded due to mobility or health limitations. Ways to Make It Better: 💠Share your needs with family and event organizers beforehand to ensure accommodations are met. 💠Practice short explanations about your condition to avoid awkward or repetitive conversations. 💠Focus on meaningful connections through smaller gatherings or virtual celebrations.
-
🌟 A sincere thank you to Niagara Parks for your incredible support of Hydrocephalus Canada throughout the year! Your partnership has been instrumental in making our events memorable and a success, helping us raise awareness and provide vital resources to individuals and families across the country. Together, we’re making a lasting impact! 💙✨ #Gratitude #ThankYou #NiagaraParksSupport #HydrocephalusCanada #CreatingAwareness #EventSuccess @Niagaraparks https://lnkd.in/gQyFNUQ7 Niagara Parks Commission
-
The festive season is filled with bright lights, loud music, and bustling crowds, which can be overwhelming for individuals with hydrocephalus or spina bifida. These sensory triggers may cause discomfort, headaches, or fatigue, making it challenging to fully enjoy holiday activities. With thoughtful planning and tools to minimize sensory input, you can create a more comfortable and enjoyable holiday experience. Challenges: 💠Bright lights, loud noises, and crowded gatherings can trigger sensory sensitivities or headaches, especially for those with hydrocephalus. Ways to Make It Better: 💠Identify quiet spaces at events to take breaks if needed. 💠Bring noise-canceling headphones, sunglasses, or other tools to minimize sensory triggers. 💠Avoid overly crowded or stimulating environments when possible.
-
Always great to be part of such an important and impactful roundtable. Happy holidays everyone.
Our members got "Festive" for our Fall Members meeting today! We had some great roundtable conversations on the value of registries and how a national population-level neurological health survey could help lay the groundwork for greater coordination in patient registries. Are you a neurological health charity seeking to amplify your voice in your work to further your goals of improved coordination of care? Consider joining NHCC and see the difference a coalition makes! Hydrocephalus Canada (formerly SB&H Ontario) Dystonia Medical Research Foundation FragileX Canada Canadian Epilepsy Alliance