HSE Research and Development

📢 Update: HSE National Policy for Consent in Health and Social Care Research V2.0 We are pleased to announce the publication of Version 2.0 of the HSE National Policy for Consent in Health and Social Care Research addressing the age of consent for young people, aged 16-17 years old. This revision ensures alignment with clinical trials legislation and acknowledges the autonomy of young people to participate in health and social care research. 🔍 What’s Changed? 🔹Recognising "Young People": The Policy now defines individuals aged 16 and 17 years old as “young people” who are capable of independently consenting to participate in research and to the processing of their personal data. Parental involvement is still encouraged but not needed. 🔹Changed Definition of “Child”: The Policy now defines a child as person under 16 years old. Parental consent is still required for their participation in health and social research. 🔹New Definition of “Minor”: The Policy now defines a minor as a person under the age of 18 years. 🔹Respecting Autonomy: Young people lacking capacity should be supported where possible to fully exercise their right to provide a valid consent. The same principles related to adults lacking capacity should be applied to research involving young people. 🔹Valid Consent in Special Circumstances: Where prospective participants are acutely unwell or involves vulnerable groups, the process for obtaining consent should be carefully considered. Researchers should ensure consent is freely given, is not given under duress. This now includes young people who are providing their consent for themselves. These changes were developed through consultation with stakeholders, including the HSE R&D Patient and Public Involvement (PPI) Advisory Group, the HSE National Policy for Consent in Health and Social Care Research Implementation Steering Group, Tusla - Child and Family Agency, the Department of Children, Equality, Disability, Integration and Youth, the Department of Health - Ireland and Chairs, the Health Research Consent Declaration Committee (HRCDC), the National Office of Clinical Audit (NOCA), the National Disability Authority, experts in areas of areas of medicine, nursing, health and social care professions, and the fields of paediatrics, mental health, quality improvement, law, data protection, genetics/ genomics and medicine for the elderly and psychiatry, researchers and representative from Research Ethics Committees. Please visit our website: https://lnkd.in/eFKT9STN or the direct link is available from the HSE National Central Repository: https://lnkd.in/ehDXZxeA Please note if using the URL for use on your own website, the HSE National Central Repository URL must be used: https://lnkd.in/ehDXZxeA

Healthcare professionals, take your practice to the next level with the HSE eLibrary resources 2025! Here's what you gain access to: 📚 Evidence-based journals and research 🔍 Clinical decision-support tools 🎓 Online learning resources for continuous development 📜 Latest guidelines to enhance patient outcomes 📢 Available to all HSE staff. Take the first step toward informed decision-making and better patient care. 👉 Explore the resources today: https://bit.ly/4205cul Together, let’s power evidence-based care and professional growth. #HSELibraries #HealthCareProfessionals #EvidenceBasedMedicine #HealthcareInnovation

🌟 New to the HSE Library? 🌟 As healthcare professionals, you deserve easy access to the resources that help you deliver the best care. If you're looking to register for your HSE Library account, we’ve created a quick video guide to walk you through the process. 📹 Watch the tutorial now and get started: https://lnkd.in/eiSzCEjQ Start making the most of the HSE Library today! https://hselibrary.ie/ #HSELibrary #HealthcareProfessionals #IrishHealthcare #MedicalResources #HSE #HealthSector #research #openaccess

📢 Update: HSE National Policy for Consent in Health and Social Care Research V2.0 We are pleased to announce the publication of Version 2.0 of the HSE National Policy for Consent in Health and Social Care Research addressing the age of consent for young people, aged 16-17 years old. This revision ensures alignment with clinical trials legislation and acknowledges the autonomy of young people to participate in health and social care research. 🔍 What’s Changed? 🔹Recognising "Young People": The Policy now defines individuals aged 16 and 17 years old as “young people” who are capable of independently consenting to participate in research and to the processing of their personal data. Parental involvement is still encouraged but not needed. 🔹Changed Definition of “Child”: The Policy now defines a child as person under 16 years old. Parental consent is still required for their participation in health and social research. 🔹New Definition of “Minor”: The Policy now defines a minor as a person under the age of 18 years. 🔹Respecting Autonomy: Young people lacking capacity should be supported where possible to fully exercise their right to provide a valid consent. The same principles related to adults lacking capacity should be applied to research involving young people. 🔹Valid Consent in Special Circumstances: Where prospective participants are acutely unwell or involves vulnerable groups, the process for obtaining consent should be carefully considered. Researchers should ensure consent is freely given, is not given under duress. This now includes young people who are providing their consent for themselves. These changes were developed through consultation with stakeholders, including the HSE R&D Patient and Public Involvement (PPI) Advisory Group, the HSE National Policy for Consent in Health and Social Care Research Implementation Steering Group, Tusla - Child and Family Agency, the Department of Children, Equality, Disability, Integration and Youth, the Department of Health - Ireland and Chairs, the Health Research Consent Declaration Committee (HRCDC), the National Office of Clinical Audit (NOCA), the National Disability Authority, experts in areas of areas of medicine, nursing, health and social care professions, and the fields of paediatrics, mental health, quality improvement, law, data protection, genetics/ genomics and medicine for the elderly and psychiatry, researchers and representative from Research Ethics Committees. Please visit our website: https://lnkd.in/eFKT9STN or the direct link is available from the HSE National Central Repository: https://lnkd.in/ehDXZxeA Please note if using the URL for use on your own website, the HSE National Central Repository URL must be used: https://lnkd.in/ehDXZxeA

Keep Up-to-Date with the Latest Healthcare Resources This Winter! ❄️ The winter season is upon us, but that doesn't mean your professional development has to take a break! The HSE Library's Winter 2024 newsletter is packed with valuable resources and information for healthcare professionals across all disciplines. In this issue, explore: 🏆 HSE Open Access Awards (p. 2) 🏥 University Hospital Kerry Re-opens (p. 3) 🌍 Developments in the West (p. 4) 📚 Library Ireland Week (p. 5–6) 📑 Research Bulletins: A Current Awareness Project (p. 7) 🎁 The Gift of Giving in OLH Navan (p. 8) 🎓 Internship in SLRON (p. 9) Download your copy of the Winter 2024 newsletter today and make the most of your professional development this season: https://bit.ly/4iOSLYk #hselibrary #HSE #newsletter #healthcare

I've extended the age range for my research! Young people up to the age of 24, who are non-speaking, sometimes speaking or communicate differently and their supporters can now take part. I'm asking them to tell me about making a support agreement under the Assisted Decision-Making (Capacity) Act. They can be at any stage of the process with the support agreement - just starting, underway or fully registered. If you have questions or are interested in taking part, you should contact Clíona at cliona.debhailis@universityofgalway.ie or on 086-0081153 (call or text). Irish Research Council - becoming Research Ireland #LoveIrishResearch

In 2024, HSE Research & Development achieved significant progress in advancing the HSE National Electronic Research Management System (NERMS), designed to help organisations to streamline research governance and ethics processes. Through extensive consultation with Research Ethics Committees (RECs), and researchers, we worked together to create a system tailored to the needs of those conducting research in or with the HSE and HSE funded organisations. NERMS aims to provide researchers with a single platform to facilitate all required research approvals, aligning with the HSE National Framework for Governance, Management, and Support of Health Research (RGMS Framework).   A major milestone this year was the development of functionality to facilitate the online submission of the research ethics standardised application form and the end to end management of REC processes. The pilot commenced in the HSE Dublin and Midlands region's Reference REC, marking a significant step towards modernising the research approvals process and improving consistency and efficiency in managing ethics workflows.   Looking ahead to 2025, we will work in expanding the functionality of NERMS and will support additional HSE regions and HSE funded services to adopt the system, building on the progress made this year. This will further strengthen its role in creating a more integrated and reliable research system, supporting research participation and collaboration across the HSE and its funded organisations.

Join Us for Digital for Care 2025 Transforming Healthcare with Data Standards including SNOMED CT 📅 Date: January 15, 2025 📍 Location: The Gibson Hotel, Point Square, North Wall, Dublin D01 X2P2 💡 Theme: Transforming Healthcare with Data Standards Are you ready to explore the future of healthcare through data? At the #DigitalForCare - 2025 Transforming Healthcare with Data Standards including SNOMED CT conference, we’ll bring together leading international experts in Data Standards and leaders from HSE, HIQA , Department for Health to harness the power of new technologies, digital, data, and data standards to transform how health & social care services are planned to be delivered for our population. Speakers include: Ian Green, Customer Relations Lead, Europe and Global Clinical Engagement Lead at SNOMED International Damien McCallion, Chief Technology and Transformation Officer, Deputy CEO, HSE Derek Tierney, Head of Health Infrastructure, Department of Health Muiris O'Connor, Assistant Secretary at Department of Health Colm Henry, Chief Clinical Officer at Health Service Executive Greene Richard, Professor of Clinical Obstetrics, UCC. Director - National Perinatal Epidemiology Centre. Rachel Dunscombe, openEHR, Digital Futures, Academic, Government Policy Advisor 🔍 What You Can Expect: ✅ Keynote addresses on the critical need for data standardisation ✅ Panels exploring AI, digital health tools, and patient-centric solutions ✅ Insights into regional and global data ecosystems 💬 Who Should Attend: Healthcare professionals, policymakers, tech leaders, and anyone passionate about transforming care with data-driven solutions. Seats are limited, so secure yours now! Register here: https://bit.ly/4a58JK6 Let’s shape the future of healthcare together. Don’t forget to join the conversation using #Data4Care

✨ Celebrating a Decade of Excellence! The HSE Library Open Access Awards 2024 marked 10 incredible years of recognising outstanding healthcare research. Missed the event? Explore all entries and the award-winning Open Access abstracts here: https://bit.ly/3VpbLCC Let’s continue to champion #OpenAccess and groundbreaking innovation in healthcare. A huge thanks to all our contributors for their dedication and vision. 🩺📚 #HSEOAAwards24 #hseresearch #irishhealthrepository #OAIreland #healthcareprofessionals #hse #loveirishresearch

In 2024, HSE Research & Development achieved significant progress in advancing the HSE National Electronic Research Management System (NERMS), designed to help organisations to streamline research governance and ethics processes. Through extensive consultation with Research Ethics Committees (RECs), and researchers, we worked together to create a system tailored to the needs of those conducting research in or with the HSE and HSE funded organisations. NERMS aims to provide researchers with a single platform to facilitate all required research approvals, aligning with the HSE National Framework for Governance, Management, and Support of Health Research (RGMS Framework).   A major milestone this year was the development of functionality to facilitate the online submission of the research ethics standardised application form and the end to end management of REC processes. The pilot commenced in the HSE Dublin and Midlands region's Reference REC, marking a significant step towards modernising the research approvals process and improving consistency and efficiency in managing ethics workflows.   Looking ahead to 2025, we will work in expanding the functionality of NERMS and will support additional HSE regions and HSE funded services to adopt the system, building on the progress made this year. This will further strengthen its role in creating a more integrated and reliable research system, supporting research participation and collaboration across the HSE and its funded organisations.