Retina International

We're #hiring a new Office Administrator in Dublin, County Dublin. Apply today or share this post with your network.

We're #hiring a new Office Administrator in Dublin, County Dublin. Apply today or share this post with your network.

Retina International marks the 18th edition of Rare Disease Day which unites over 70 national partners across 100 countries to raise awareness and drive policy change for the estimated 300 million people living with a rare disease worldwide. This campaign initiated by patients in 2008, ensures that rare diseases remain a global priority, mobilising patient communities, researchers, policymakers, healthcare professionals, and industry leaders. #RareDiseaseDay2025 #Research #Innovation #Care #Treatment #RetinaInternational #Genetics

🩺 🚗 👀 Are you a physician who wants to make your patients aware of the latest recommendations on driving and vision, but you're not entirely sure you know them all? 📽️ Update your knowledge in less than 3 minutes with the ERN-EYE video , produced following the European Directive 2006/126/CE. In the frame of Rare Disease Day, the European Reference Network ERN-EYE has launched a short and lively video to help physicians better advise their patients suffering from visual impairments about their fitness to drive. With this video, clinicians will be able to update their knowledge quickly . This project was produced according to the European rules (Directive 2006/126/CE) with the help of a patient representative as well as experts of the network. 🔗 More info on www.ern-eye.eu

Retina International are today marking Rare Disease Day 2025. Over 70% affected are children and 70% of diseases have a genetic component. Many with a ten year wait for diagnosis and only 5% have available treatments. We must fight for research, innovation care & treatment now more than ever #RareDiseaseDay2025 #Research #Innovation #Care #Treatment #RetinaInternational #Genetics https://lnkd.in/e76yAESx

On 25 February 2025, the 39th EURORDIS Round Table of Companies (ERTC) Workshop in Brussels brought together patient advocates and industry leaders to discuss the added value of the rare disease patient community in shaping research, development and access pathways. Key discussion topics included: ✅ Accelerating clinical trials – Strategies to improve trial design, recruitment, and outcomes for rare disease patients ✅ Public-private partnerships – Breaking down barriers to foster patient-driven research and funding collaborations ✅ Strengthening healthcare systems – Strengthening European healthcare systems for equitable patient access ✅ Advancing equity in newborn screening – Addressing systemic gaps and the potential of genetic screening 🎯 So, what’s next? Today’s conversations reaffirmed that rare disease research and policy are paving the way to a more competitive Europe, but that patient involvement is essential in realising the maximum impact of innovation across all members states. A huge thank you to all our speakers, panelists, and participants for making this an insightful and action-oriented workshop! Learn more about the ERTC and the ways in which EURORDIS engages with the corporate health sector: https://lnkd.in/e_UjxkV5 #ERTC #RareDiseases #PatientDrivenInnovation #HealthEquity

We’re #hiring a postdoc role. Please share it among your friends and colleagues who might be interested. #postdoc #hiring #researchjobs #eyehealth #retina #irishjobs #jobfairy #optometry #ophthalmology #psychology #socialscience

Retina International Youth Council Presents Mental Health – The Rare Eye Disease Perspective When: Friday, February 21st 2025 Where: Zoom email info@retina-international.org Why: To Mark Rare Disease Day 2025 The Retina International Youth Council will present a multistakeholder webinar to discuss the impact of rare eye disease on the mental health of those living with the disease and their families. The webinar will include the policy, innovator, psychotherapy and the patient perspective. To register please email info@retina-international.org Marina Leite BrandãoHelena MollaghanMatt Johnson Caroline Wernert-Iberg EURORDIS-Rare Diseases EuropeERN-EYE #RareEyeDisease #MentalHealth #Policy #PatientPerspective