Lennox-Gastaut Syndrome (LGS) Foundation

Theo’s journey with LGS began at just 4 months old with his first seizure. Since then, his family has faced countless challenges, but their love and resilience keep them moving forward. “My advice to other caregivers is to keep getting up and doing your best,” says Theo’s mom. “And on the hard days, be kind to yourself. Lean on the LGS community—they understand.” This #GivingSeason, help families like Theo’s and help us work toward brighter futures. Together, we can #ElevateHope and #TransformLives. 💜 Donate today: https://lnkd.in/eC7ayntx #LennoxGastautSyndrome #Epilepsy

🌟 Remembering Matthew: A Story of Love, Loss, and Hope 🌟 Matthew’s journey was one of immense love, resilience, and joy despite the challenges of living with LGS. He brought light to everyone around him with his love for chocolate milkshakes, music, and his fearless karaoke performances. Matthew passed away just three days shy of his 18th birthday due to SUDEP, leaving behind a legacy of unconditional love and a reminder to cherish every moment. At the LGS Foundation, we walk alongside families like Matthew’s, offering bereavement support and resources to honor their loved ones and navigate finding new meaning in life after loss. 🌟 Learn more about our impact at https://ow.ly/Jrou50UpbCJ #ElevateHope #TransformLives #LennoxGastautSyndrome #GivingSeason

Charles Sr. is dad to Little Charles, who lives with Lennox-Gastaut Syndrome (LGS). His journey is one of love, resilience, and determination. Diagnosed at just 18 months, Little Charles has faced seizures, brain surgery, mobility challenges, and more. Despite it all, he inspires everyone around him with his humor and strength. Charles Sr. has dedicated himself to caring for his son and raising funds for the Elevate Patient Assistance Program, which helps families like his afford critical medical equipment not covered by insurance. 💜 Join Charles in making a difference for families impacted by LGS: https://ow.ly/uQCF50Ul4fy Together, we can elevate hope and transform lives. #ElevateHope #TransformLives #LennoxGastautSyndrome #GivingSeason

"This assistance impacted my loved one by giving him a comfortable and supportive chair to sit in during the day. It also allows him to be at eye level with his siblings, which is so important for him cognitively. My son is non-ambulatory and doesn’t have head control so this chair provides full support which is needed as he has daily seizures despite medications and a special diet. I want you to know how thankful and appreciative I am for providing this supportive chair to my son. Insurance denied him for many important pieces of equipment despite trying to appeal them and it’s been very discouraging. This chair has made a huge difference in his daily life. " - Lauren, Mom to Paxton 🔗 Your support allows us to help more families through our Elevate Patient Assistance Program! Please give today at https://ow.ly/KLXj50Ukc7x 🔗 #ElevateHope #TransformLives #LennoxGastautSyndrome #GivingSeason

🌟 We've invested over $1.8M in cutting-edge LGS Research since 2008! 🌟 Every dollar you give fuels discoveries that bring hope to LGS families. As one LGS Caregiver shared: “When you support medical research, you are helping researchers build the future of medicine and unlock clues behind LGS.” Join us in creating a brighter future for the LGS community and accelerating patient-led research by making a gift today! 🔗https://lnkd.in/eW2YtzeC Together, we can make a difference. 💜 #LennoxGastautSyndrome #ElevateHope #GivingSeason #Thankful

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center for all! 💜 Keep a seizure diary to track seizures along with other important details, such as changes in your diet, schedules for all medications, sleep patterns, and more. This diary can be a valuable resource when discussing your condition with your neurologist and may help to identify potential seizure triggers. Seizure Tracker is a free and user-friendly online tool that allows you to record this information and generate printable reports and graphs to share with your healthcare team. 👉 Learn more about keeping a seizure diary here https://ow.ly/37bn50UiXOe #LennoxGastautSyndrome #SeizureSafety #Seizures #Epilepsy

Nyla’s journey with LGS has been filled with challenges, from daily seizures to adapting every aspect of life to keep her safe. Despite it all, she shines with strength and joy, finding happiness in playing with toys, splashing in water, and spinning on her tiptoes. Her mom shares, “Every day, Nyla teaches me that strength and beauty exist even in the hardest moments. She is a gift, and I am so grateful for her.” Help support families like Nyla’s as they navigate the challenges of LGS. 💜 https://lnkd.in/eC7ayntx #LennoxGastautSyndrome #GivingSeason #ElevateHope #TransformLives

Attending the AES Annual Meeting in #LosAngeles? Visit us at Booth N2148 in the Exhibit Hall! Learn more about our work, resources, and commitment to supporting families and advancing LGS research. We’d love to connect with you! 💜 #LennoxGastautSyndrome #Epilepsy #AES2024

“I am excited by the prospect of contributing to LGS research in a manner that can ultimately lead to improved treatments for patients.” – Colleen Carpenter, PhD, Grant Recipient Through our Cure LGS 365 Grants Program, the LGS Foundation funds groundbreaking scientific research - like the work of Stanford researchers who discovered a new region in the brain responsible for starting and stopping seizures. Together, we’re paving the way for better treatments and brighter futures for those living with LGS. Learn more about the impact we're making at https://ow.ly/2pM250UkuyY 💜 #LennoxGastautSyndrome #Research #GivingSeason

We are thrilled to be a part of this important work on sleep. Come see the posters if you’re at AES. 👇🏼