Happy #RareDiseaseDay! Raise awareness for rare diseases, like osteogenesis imperfecta (OI), by sharing this post! Learn more about OI and the programs of the OI Foundation at www.oif.org.
Osteogenesis Imperfecta Foundation
Non-profit Organizations
Gaithersburg, Maryland 869 followers
Mission: to improve the quality of life for people affected by OI through research, education, awareness, & support.
About us
The Osteogenesis Imperfecta Foundation (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation's mission is to improve the quality of life for individuals affected by OI through research, education, awareness, and mutual support.
- Website
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www.oif.org
External link for Osteogenesis Imperfecta Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Gaithersburg, Maryland
- Type
- Nonprofit
- Founded
- 1970
Locations
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Primary
Get directions
656 Quince Orchard Rd
650
Gaithersburg, Maryland 20878, US
Employees at Osteogenesis Imperfecta Foundation
Updates
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Congratulations to the recipients of the Francis Glorieux Research Fellowship! We look forward to following Dr. Ezgi Aydin (Hospital for Special Surgery) and Dr. Joseph Petruccelli (Hôpitaux Shriners pour enfants - Canada) as they move important OI research forward! https://lnkd.in/g3F2T9bJ
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Register Today for the next Rare Bone Disease TeleECHO Clinic Series session: Thursday, March 6, 2025 | 3:00 PM ET. Filaminopathies Stephen Robertson, FRACP FRSNZ Register today at https://lnkd.in/gy6GyhmP
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What a wonderful day! Thank you to everyone who joined us for the OIF Regional Conference in Atlanta, GA!
Thank you to all the OI community members for making the OIF Atlanta Regional Meeting a wonderful success! A huge shout out to Dr. Jill Flanagan and the staff of Children’s Healthcare of Atlanta for being our hosts and providing such great information to the attendees! #OIF #ChildrensHealthcareofAtlanta #OIFRegionalMeeting
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Osteogenesis Imperfecta Foundation reposted this
Did you know that the IMPACT Survey can help enable better diagnosis, management and care, and to support availability of potential future treatments for OI? That is also why it is so important to participate in the Rare Disease Day campaign, to raise awareness for the need for better treatments and care everywhere and for everyone. To learn #MoreThanYouCanImagine about the IMPACT survey: https://lnkd.in/dcBvTq7z #OICanBeMore
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#RareDiseaseDay is this Friday. February 28, 2025! Show your support by sharing this photo on your page!
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The DC Fine Wines Online Auction is Open! Bid on incredible items including theater tickets, winery tours, tickets to the spy museum, infield box tickets to a Washington Nationals game, and more! Bid now at https://lnkd.in/gV_XQSTD
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Register Today for the next Rare Bone Disease TeleECHO Clinic Series session: Thursday, March 6, 2025 | 3:00 PM ET. Filaminopathies Stephen Robertson, FRACP FRSNZ Register today at https://lnkd.in/gy6GyhmP
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The February issue of the OIF E-Newsletter is here! Read updates from the OI Foundation, information about Impact Grants and the Edward D Cranston College Scholarship, upcoming OIF events, OI registry news, and more at https://lnkd.in/grXyy9Jw.
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TODAY! Register for the next OI TeleECHO Clinic Series session: Wednesday, February 12, 2025 | 3:00 PM ET. Physical Rehabilitation and Mobility in the Treatment of OI Oliver Semler, MD Register today at https://lnkd.in/g8BHTuNF
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