Osteogenesis Imperfecta Foundation

#GivingTuesday is on December 3! There are so many different ways you can support the OI Foundation's mission to improve the quality of life for those living with OI through research, education, awareness and mutual support on Giving Tuesday! Learn more at https://lnkd.in/g9zNeBkB

Today we celebrate OI Foundation CEO Tracy Hart on her 17th anniversary with the Osteogenesis Imperfecta Foundation! Her leadership, support, and dedication to the OI community has helped shape the organization into what it has become today, and we can't wait to see what the future holds!

NEW! OIF Winter Spirit Wear! Support the OI Foundation by ordering your Unbreakable Spirit® long sleeve, crew neck sweatshirt, or hoodie today! Great for gifts and keeping warm this holiday season! Order yours today at https://lnkd.in/gCPUhSwa

The November issue of the OIF E-Newsletter is here! Read about updates from the OIF, OI research, upcoming events, and more at https://lnkd.in/gAeubeAq.

Tomorrow (Thursday, Nov 7)! Please join us for our a RBD TeleECHO Clinic Series session at 3:00PM ET. This session will focus on Ollier Disease/Maffucci Syndrome and will be led by Dr. Nara Sobreira, MD. Learn more and register to attend at https://lnkd.in/dEJS_fy4.

The Rare Bone Disease Alliance is excited to announce the fourth Rare Bone Disease Alliance Scientific Symposium on November 21, 2024. In this series, researchers and expert speakers explore developments in rare bone diseases that are at various stages of treatment innovation and understanding of natural history. It is intended for researchers and clinicians interested in rare bone diseases. Developing therapies for rare bone diseases present unique challenges requiring multiple steps, from identifying cellular pathways and targets to conducting clinical trials in diverse and challenging patient populations. In this “deep dive” into FOP, you’ll hear about an important N of 1 study known as The Resilient Patient Project that brought to light a potential new therapy for FOP which has recently been granted Orphan Drug Designation. You’ll also hear about a project that in the preclinical phase was funded in part by the International FOP Association and then progressed to a phase 2 clinical trial funded through a variety of innovative avenues. Learn more and register today at https://lnkd.in/gHdPA3-t

Recording Now Available! Medical Management of Bone Fragility in Adults with OI Osteogenesis Imperfecta TeleECHO Clinic Series Speaker: Eric Orwoll, MD Oregon Health & Science University https://lnkd.in/g9Zre7cA

Save the Date! Upcoming OIF Regional Conferences OIF Regional Conferences are one-day events held across the country that include sessions and discussions on understanding and living with OI. These events are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Past OIF Regional Conferences have included sessions on medical and orthopedic treatments, pulmonary health, dental health, pain management, and more. We hope to see you at an upcoming OIF Regional Conference! Atlanta, Georgia – February 22, 2025 Denver, Colorado – May 3, 2025 Portland, Oregon – Fall 2025 Learn more about upcoming OIF Conferences and events at www.oif.org/events.

Today is the LAST DAY to apply for the OIF Michael Geisman Fellowship Grant. Learn more and apply today at https://lnkd.in/gtA5VRiq

Connect with OI Community Members in Your Region! The OIF launched the Regional Support Group Program to help foster a sense of community and provide a space for sharing, educating, and socializing among OI community members in specific regions. JOIN US! Each group typically meets on the same day/week of each or every other month, providing a consistent opportunity for you to connect with your OI community. Learn more and view upcoming meetings at https://lnkd.in/gaPwEmiP