Child Neurology Foundation’s Post

Our epilepsy researchers 👨⚕️ might have the best ideas that could end up improving or even saving the lives of people with an epilepsy. But - they are human too and often don’t have the confidence to or just don’t know the right way to go about getting the right people on board, getting the funding (it’s SO expensive), etc., etc., and this either holds things up or stops things from happening at all So, M. Scott Perry 🤩, epileptologist, neuroscientist, and boss of the PERC/Pediatric Epilepsy Research Consortium explains how the organisation can save the day by providing researchers with support and guidance; reducing the number of missed opportunities re treatments for people with an epilepsy! Check it ouuuut here: 📹 YouTube https://lnkd.in/dkiHBFdx 🎧 Podcast https://lnkd.in/dcj6nE3H (or just type in Epilepsy Sparks Insights) 🔗 Transcript & more about Scott https://lnkd.in/dQPHNUqZ

Did you know that, contrary to common misconceptions, not all seizures result in loss of consciousness? While it is true that some patients may experience unconsciousness during a seizure, there are various seizure types with diverse symptoms. Educating ourselves about epilepsy can help break stigmas and provide better care for those affected. Separating the myths from facts about epilepsy is crucial to understanding and supporting young patients living with this condition. Tune in here as Dr. Syndi Seinfeld, Medical Director, Epilepsy Program-Pediatric Neurology at Joe DiMaggio Children's Hospital, shares valuable insights and debunks a few common misconceptions. For more information, visit JDCH.com/Epilepsy. #EpilepsyAwareness #NationalEpilepsyAwarenessMonth #EpilepsyAwarenessMonth #JDCH #JDCHKids

November is National Epilepsy Awareness Month (NEAM), and the call to action is "Share Your Purple Power.” This year’s theme celebrates the unwavering strength, resilience, and courage of epilepsy warriors, alongside their families, caregivers, and advocates.   This NEAM, we are focusing on four key themes to increase awareness and support the epilepsy community:    Belonging - creating a supportive and inclusive community Strength - celebrating the resilience of those impacted by epilepsy Change - driving progress through education and advocacy Impact - making a meaningful difference by raising awareness and breaking down stigma   To learn more about Epilepsy and find out how you can support the Epilepsy Foundation’s mission, visit www.epilepsy.com.   #medicaldevice #healthcare #medtech #criticalcare #innovation #neurology #NEAM #epilepsy

🌟 Raising Awareness About Epilepsy 🌟 This month, Clinova stands in solidarity with those affected by epilepsy, a neurological disorder marked by recurrent, unprovoked seizures. It's more than just a medical condition; it's a daily challenge for approximately 50 million people worldwide. Epilepsy doesn't discriminate – it can touch anyone, regardless of age, race, or background. Yet, despite its prevalence, epilepsy is often surrounded by misconceptions and stigma. At Clinova, we recognize the critical need for continued research and improved treatments. We are committed to contributing to the advancement of epilepsy care, understanding its complexities, and exploring new therapeutic avenues. Let's join hands in spreading awareness, supporting research, and fostering a world where every individual with epilepsy receives the care and understanding they deserve. #EpilepsyAwareness #Clinova #HealthcareInnovation #Neurology #Research #clinicaTrials

🧠 Champion Brain Health! Be the Advocate for Change! 🌍 What if we could raise awareness and transform the way society perceives brain health? The European Academy of Neurology is offering this incredible opportunity with the Advocacy Training for Neurology and Brain Health, starting in March 2025. Brain health is more than just a medical concern—it’s a global priority. From reducing stigma to influencing policies, this program equips professionals to become changemakers in their field. During my time in the program, I discovered that advocacy is about more than just raising awareness. It’s about communicating effectively with people, understanding systems, and overcoming barriers to create meaningful, lasting solutions. Advocacy gives a voice to those who need it most, ensuring that brain health is prioritized in public health strategies. By sharing knowledge and collaborating globally, we can inspire impactful changes that improve the lives of patients, strengthen communities, and transform healthcare systems. By joining this program, you’ll not only earn a certification but also become part of a dynamic network of advocates dedicated to promoting health equity and advancing care standards worldwide. 🧠 Applications are open! Take action, make an impact, and help shape the future of neurology and brain health. 🧠 Apply today: https://lnkd.in/esYBjNBW Let’s work together to create a healthier, more equitable future. The time to act is now! #BrainHealthAdvocacy #NeurologyLeadership #GlobalHealth #EAN #Neurology #PublicHealth

🧠🌱 The connection between our gut and brain health is becoming clearer every day. Leading research is now showing how the microbiome plays a crucial role in neurodegenerative diseases like Parkinson’s and Alzheimer’s, particularly for those predisposed to these conditions. This video explores the fascinating relationship between our gut ecosystem and brain function, and why early prevention must prioritise gut health among other critical factors. If you're passionate about exploring cutting-edge approaches to brain health, visit us at www.cogmission.co.uk where our work focuses on the prevention of cognitive decline. #GutHealth #Microbiome #BrainHealth #Parkinsons #Alzheimers #Prevention #FunctionalMedicine

We’re proud to partner with the Child Neurology Foundation to conduct a survey to understand caregivers’ experiences on their journey in child neurology. Results will be shared with advocates and health care providers, so they are better able serve families. Caregivers of children with neurologic conditions can complete the brief survey through May 3rd at: https://bit.ly/3UkGGA7 #Caregivers #Neurology #Survey #ChildNeurology

Incredible Breakthrough in Epilepsy Treatment! Meet Oran Knowlson, the UK teenager who has become the world's first person to receive a groundbreaking brain implant aimed at controlling seizures. His neurostimulator, nestled beneath his skull, has reduced his daytime seizures by an astounding 80%! Oran's transformation has been nothing short of remarkable—his mother Justine describes him as happier, chattier, and enjoying a vastly improved quality of life. "The future looks hopeful," she says, "which I wouldn't have imagined saying six months ago." Dr. Martin Tisdall, leading the surgical team at Great Ormond Street Hospital for Children NHS Foundation Trust in London, reflects on Oran's journey: "Epilepsy completely changed their lives, and now to see Oran riding a horse and regaining his independence is truly astounding." This milestone not only brings hope to Oran and his family but also paves the way for future advancements in epilepsy treatment worldwide. Let's celebrate this incredible leap forward in medical innovation and the resilience of the human spirit! Mediworld Middle East #EpilepsyTreatment #BrainImplant #Neurostimulator #MedicalBreakthrough #SeizureControl #NeuroscienceAdvances #PediatricNeurosurgery #GreatOrmondStreet #HealthcareInnovation #MedicalResearch #NeurologicalHealth #PatientCare #QualityOfLife #InnovativeMedicine #MedicalTechnology #GlobalHealth #HopefulFuture #TeenHealth #NeuroscienceDiscovery #SeizureManagement #BrainHealth #UKHealthcare #ChildhoodEpilepsy #NeurologyNews #MedicalMiracle #EmpoweringPatients #BrainScience #HealthProgress #MedicalAchievement

November is Epilepsy Awareness Month, a time to increase understanding and support for those living with epilepsy. At Noran Neurology, we are dedicated to raising awareness and providing the best care for our patients.   Epilepsy affects millions worldwide, yet it is often misunderstood. This month, let's come together to share stories, educate ourselves and others, and break the stigma surrounding this condition. Whether you're a patient, caregiver, or ally, your voice matters. Join us in spreading awareness, promoting research, and advocating for better treatments and support systems. Let's shine a light on epilepsy and work towards a future where everyone affected by it can live their fullest lives.   To learn more about epilepsy care at Noran Neurology, visit our website at https://lnkd.in/gjWxfmYv  #EpilepsyAwarenessMonth #NoranNeurology #EndEpilepsy 

WARNING: What you should know about SUDEP!!! Today is Purple Day for Epilepsy Awareness - a day dedicated to increasing awareness about epilepsy. In honor of today, our Neurology consultant and epilepsy specialist, Prof. Chinekwu Anyanwu, MD, FAES gave a lecture about SUDEP. SUDEP stands for Sudden Unexplained Death in Epilepsy, It is important to know that every individual living with epilepsy is at risk of SUDEP. Watch the informative video to learn more. Every Thursday, from 8:00 AM - 2:00 PM, we run a free epilepsy clinic where we provide free medications, consultations, and counseling for people living with epilepsy. If you or someone you know is living with epilepsy, visit us this Thursday for expert care and management. For more information, call our 24/7 customer service at 07047000011 & 07047000014. ROW Foundation INTERNATIONAL BUREAU FOR EPILEPSY International League Against Epilepsy Epilepsy Foundation WEST ATLANTIC BRAIN AND STROKE FOUNDATION ...exceptional people providing exceptional healthcare. #regionshealthcare #epilepsyawareness #epilepsy #epilepsyeeducation #sudep #epilepsysurvivor #survivor #linkedin