Nathalie McNeil’s Post

In today’s landscape, fostering inclusive teams is the key to success! Let’s advance clinical research together! #EDI #InclusiveTeams #ClinicalResearch #DiversityInHealthcare N2 Canada IMPaCT Trials

When we engage with the community about clinical trials, we find the pain points that prevent access, participation and a good experience, AND we co-create solutions that could just make the difference to recruitment, retention, and more of the Australian population represented in and benefitting from research. The powerhouse of a consumer group we brought together as ConViCTioN (Consumer Voices in Clinical Trials in NSW) have been an absolute pleasure to engage and work with, alongside the project partners. The resources ConViCTioN have so far created to improve awareness of clinical trials - by consumers, for consumers - are just the start of what could be possible if properly funded. Seed funding has given us a start, but ConViCTioN want to (and can) do so much more. The plans are there for leveraging what has been created and bringing them to the community. This is a consumer group diverse in experience, age, cultural background, metro and regional locations, health and community interests interests. It’s NSW based but provides a model for what should be possible nationally. AccessCR Pty Ltd, Health Consumers NSW and Sydney Health Partners are open to conversations about sustainably supporting ConViCTioN to continue and make sure community and consumers are partners in initiatives to improve the awareness, access, experience, do-ability and relevance of clinical trials in Australia. https://lnkd.in/g_QDCKBs #healthconsumer #patientvoice #patientengagement #clinicaltrials #research #equitableaccess #awareness #ConViCTioN #CCReW Mark Butler Australian Government Department of Health and Aged Care National Health and Medical Research Council (NHMRC) NSW Medical Research NSW Agency for Clinical Innovation NSW Health Dr Bernadette Aliprandi-Costa Medicines Australia CT:IQ Australian Clinical Trials Alliance Australian Commission on Safety and Quality in Health Care AHRA Association of Australian Medical Research Institutes (AAMRI)

Over the last 2 years the members of Consumer Voices in Clinical Trials NSW (ConVICTioN) have worked tirelessly with Janelle Bowden, Joan Torony, Angela Todd, Anthony Brown, Alex Stephens and I to create resources for consumers about clinical trials in NSW. Successful recruitment of consumers is a major challenge for clinical trials, with anecdotal evidence indicating 60% of trials in Australia recruit the target number of consumers they are seeking and only 20% meet their recruitment timeline. The resources developed by ConVICTioN can be used to educate consumers and communities about clinical trials. It has been a joy to work alongside a team of passionate consumers who want to educate consumers and communities about clinical trials Grace White, Brian F Dalton, Vanessa Yenson (PhD), Brad Rossiter OAM, Garth Hungerford, David Napier, ♥️Nadine El-Kabbout🧠, co-chaired by Sonia Dixon and Kate Rycroft with funding from the Clinical Innovation and Research Division, NSW Ministry of Health Tara Dimopoulos-Bick Anne O'Neill Jean-Frederic Levesque Kim Sutherland Please share these resources for consumers, co-designed by consumers for consumers through your networks. We are also looking for further funding to continue the work of this network and create a clinical trials consumer champions program, so please message me or Janelle Bowden if you want to explore possibilities https://lnkd.in/grTBPF8f #Nothing about us without us #Clinical trials #Consumers in clinical trials

Please read the latest issue of HACC Yeah®! News for the latest updates of how HACC is positively impacting our communities: https://lnkd.in/eraaYPr2 #HACCyeah

As the election draws to a close, I want to take a moment to reflect on the campaign and how it has really energised me! All I have thought about is what I want for the future and what I can see other pharmacists wanting, based on conversations and my own experiences in the different sectors! I have been clear to focus on the fact that we need leadership. An inclusive leadership, representative of our workforce and with the knowledge and confidence to advocate for us. To do this we need to develop specific skills such as negotiating, mentorship and critical thinking. We need to work to remove barriers that can impact some groups more than others. The agenda for inclusion needs to be high. For the sake of the profession and the patients we serve! We also need to make the Royal Pharmaceutical Society work for us and in a way that allows the membership to feel valued. We need to trust the organisation and understand the benefits of being a part of such a prestigious name. Voting closes tomorrow afternoon, I hope you can take the time to fill your ballot! 🗳️ vote here https://lnkd.in/eDkGUGn8 Access my profile and letters here; https://lnkd.in/eFHN9iAs PDA questions and answers; https://lnkd.in/eQHvNGcr #pharmacy #rpsboardelections #pda #npa #rps #leadership #englishpharmacyboard

We are so excited to announce that we are officially launching the Health Equity Community Collaborative (HECC). We are a movement of community health leaders, public health researchers, healthcare providers and health equity advocates committed to cultivating belonging, healing and shared power within our shared community. Our goals are to share resources, best practices and expertise across issue areas, sectors and geographies, along with reimagining policy and directing more resources to community health. In October 2020, community leaders and health advocates came together to establish the Vaccine Equity Cooperative (VEC) to address the converging health crises of the COVID-19 pandemic. While we have had some incredible wins, the work must continue. Thank you for all your feedback – from meetings, to surveys, to working groups, webinars and more – about how we should move forward. No one person, organization, philanthropist, institution or community can eradicate health inequities alone, and we want to co-create this next phase alongside you. Myself and the core partners remain committed to building the biggest tent so that we all can learn, serve, heal and benefit in a caring community. With this in mind, please join our upcoming HECC Virtual Community Gathering Launch Event on Tuesday, August 6th at 2pm ET / 11am PT to learn more about the HECC and how you can co-create alongside us. And in the meantime, FILL OUT THIS SURVEY. We want to continue hearing from you – listening, learning, supporting and growing our community of 8,000+. We envision a future in which life-affirming opportunities and life-extending resources are abundant, shared and accessible so we collectively experience and participate in our healing, longevity, shared power and well-being. We hope you will join us in this vision and help us get there. For more information on the newly launched HECC, please visit https://lnkd.in/eZs4FNJi 

#Programmes 🧩 Engaging in policy dialogues serves as a powerful instrument to enhance comprehension, forge consensus, and elevate the quality of policy results. 💬 Did you know EPD has empowered #CivilSociety as agents for change through policy dialogues in the #SouthernNeighborhood? 🔋 The remarkable successes achieved in EPD's joint 'Med Dialogue for Rights and Equality' project were made possible thanks to the collaborative efforts of our: 🫂 Project partners: Particip GmbH and Deutsche Gesellschaft für Internationale Zusammenarbeit (GIZ) GmbH. ⚡ Donor: European Commission. Discover more impactful democracy programmes ➡️ https://bit.ly/3NyAaBS

Diversity of thought, experience and expertise is critical to ensuring good governance and effective decision-making. Our latest report, Action For Equality in Wales and Northern Ireland: The time is now set out to establish benchmark data for diversity across health and care services in Wales and Northern Ireland. The report found that although some progress had been made, it was important to ensure this diversity and inclusion was fully embedded. Read the report 👉 https://bit.ly/3VyhJ4T Our deputy network chair, Tracie Jolliff, shares her thoughts. 👇 #ActionForEquality

A step in the right direction

🌟 Breaking Barriers, Building Bridges: Championing Diversity in Clinical Trials! Join us in reshaping the future of healthcare through inclusive research practices. Together, let's ensure equitable representation and empower underrepresented communities in clinical trials. #DiversityInResearch #HealthcareEquity #InclusiveTrials #ClinicalInnovation 🌍💉 https://lnkd.in/dy_TSH3m