Rare Cancer Research Foundation’s Post

On this Rare Cancer Day, We’re announcing that we will be launching the first patient-powered data commons! Anyone with a rare cancer will soon be able to donate their medical records and sequencing data to a secure online platform. RCRF’s Pattern Data Commons will: -Allow patients to consent to RCRF collecting their medical records and sequencing data through a secure online portal -Match patients’ data with ongoing RCRF research projects and enable patients to choose how their data helps researchers study rare cancers -Share the de-identified and harmonized data with the research community to accelerate discovery and progress We encourage people with rare cancers to #DonateYourData through this patient-powered initiative which aims to accelerate discovery of new treatments and ensure patients are at the center of research. Sign up to be alerted when the Pattern Data Commons launches at https://lnkd.in/ehGeByrV. Learn more about the Rare Cancer Research Foundation at rarecancer.org

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