The Healthonauts

#Now hiring! Looking for a Junior Consultant / Consultant for our team. Thanks for sharing!

#Now hiring! Looking for a Junior Consultant / Consultant for our team. Thanks for sharing!

For the past nine months, I joined The Healthonauts as a working student, witnessing its development and growth over the past year firsthand. This experience, while finishing my bachelor´s degree in psychology was both challenging and rewarding, but -without a doubt- has left a lasting mark on my professional development and personal growth. Countless coffees from my Healthonauts mug ☕ , a few visits to our office, a team event, a business trip as well as many PowerPoint slides, Excel sheets , and scientific papers later – this chapter sadly comes to an end. Now fully focusing on the next part of my journey, medical school 👩⚕️ , I am taking with me a wealth of memories, insights and skills. To wrap up, here are some of my takeaways from the past months: 💡 Understanding the pharmaceutical industry: I gained valuable insights into the complex processes behind drug development, clinical trials and the broader pharmaceutical landscape. This perspective has broadened my awareness of the critical need for and potential of innovation in healthcare, valuable for my medical studies and future work. 💡 Learning “business language”: In my early weeks, meetings were filled with unfamiliar terms and abbreviations that felt like an entirely new language. But thanks to google and my colleagues, terms like “KPI”, “MoA”, “strategic imperatives” and “EoB” quickly became part of my vocabulary. 💡 Diving deep into diseases- both common and rare: From widespread diseases to ultra-rare, unsolved conditions – I experienced a broad spectrum. What stood out to me: the close collaboration with patients and patient organizations, HCPs, pharmaceutical companies, and researchers I encountered during my time. Understanding diseases and their embracing challenges from various perspectives gave unique insights and gave me a holistic impression of challenges and caveats in healthcare. Not to mention the awareness for rare diseases and the unique challenges they embrace. 💡 Experiencing an inspiring team dynamic: I had the privilege of working alongside a highly motivated, forward-thinking team. Their expertise, energy, and support made this experience truly remarkable. I will miss our weekly coffee chats and the inspiring work within the team. I look back on a chapter filled with meaningful work, professional development, and enduring inspiration. Thank you to my colleagues for this chapter within my journey! Dr. Carsten von Blohn Natalie Koster Louise von Stechow Ramona Henkel Julia Brennecke

Viel los gerade im Land - da kann man leicht den Überblick verlieren. Wir haben deshalb aufgeschrieben, wo zentrale Herausforderungen im Bereich der Seltenen Erkrankungen liegen und vor allem auch, wie Lösungen aussehen können: https://lnkd.in/esN__TBR Denn klar ist: Hier gibt es viel zu tun! Notwendig ist eine ressortübergreifende Strategie im Umgang mit Seltenen Erkrankungen, die auf vier zentrale Handlungsfelder fokussiert: 🔸 Bessere #Versorgung durch Ausbau und Finanzierung spezialisierter Zentren sowie die Einführung standardisierter Patientenpfade 🔸 Förderung von #Forschung und #Arzneimittelentwicklung durch innovative Finanzierungsmodelle und beschleunigte Zulassungsverfahren 🔸 #Digitalisierung und #Datennutzung durch ein Nationales Patientenregister und die Integration Seltener Erkrankungen in digitale Gesundheitslösungen 🔸 Verbesserte #Früherkennung durch die Erweiterung des Neugeborenen-Screenings und stärkere Sensibilisierung in der medizinischen #Ausbildung Unsere Überzeugung: Ein solidarisches Gesundheitssystem, das diese Maßnahmen umsetzt, verbessert nicht nur die Lebensqualitä der Betroffenen, sondern erschließt auch Innovationspotenziale für die Medizin insgesamt und den Wirtschaftsstandort Deutschland. Gemeinsam können wir viel erreichen! Mehr als vier Millionen Menschen sind dringend darauf angewiesen. Wir laden herzlich ein, mit uns darüber ins Gespräch zu kommen. #Gesundheitspolitik #SelteneErkrankungen #rarediseases #seltensindviele #Gesundheitsversorgung

Right in time for the beginning of winter in Germany, we want to shine spotlight on a rare disease that is often referred to as Snowflake disease. No two patients experience the exact same symptoms: we are talking about Myasthenia Gravis. As a chronic antibody-mediated autoimmune disease it affects synaptic transmission at the neuromuscular junction, leading to fatigable muscle weakness. For more information on prevalence, symptoms, causes and treatment, see our slide show below. But what does living with Myasthenia Gravis mean for those affected? Life with MG is a constant balancing act. The physical symptoms can be debilitating, but the psychological and emotional impacts are equally profound. Many patients experience: ❗ Reduced Quality of Life: Studies show significantly lower QoL in MG patients compared to the general population. ❗ Stigma and Misunderstanding: As an invisible illness, MG can lead to a lack of empathy or awareness from others. ❗ Unpredictability: The fluctuating nature of the disease makes it hard to plan daily activities, adding stress to already challenging lives5. At The Healthonauts, we are committed to drive awareness, innovation and understanding for rare diseases like Myasthenia Gravis. By working together with patients, caregivers, healthcare professionals and pharmaceutical companies, we strive to pave the way for better treatment options to improve the lives of those affected. #RareDisease #Awareness #PatientAdvocacy

The state of men's health is in a crisis. That's why The Healthonauts 🧔♀️ 🧔♂️ support Movember, the health charity addressing some of the biggest health issues faced by men: ❗ prostate cancer ❗ testicular cancer ❗ mental health and suicide prevention. Some facts about men's health, as pointed out by https://lnkd.in/ezsKT_4f: 👉 Gender is one of the strongest and most consistent predictors of health and life expectancy. On average, across the world, men die 6 years earlier than women. 👉 75% of suicides are by men. 👉 The impact of prostate and testicular cancer on lives is huge. Worldwide, prostate cancer is the second most common cancer in men worldwide. Early diagnosis is key! So, gentlemen, please - attend to your health checkup appointments. And ladies - stand by your men and make sure they see their HCPs regularly. #movember #menshealth #support

The correct diagnose is a challenge and patients experience a diagnostic odyssey? 🤯   Sounds like a rare disease, but we are really talking about functional gastrointestinal (GI) disorders such as Irritable Bowel Syndrome (IBS) and Functional Dyspepsia.   To support the Gastro-Liga's awareness Gastrointestinal Health Day on Nov 2nd, here are some facts and figures:   💡 Functional gastrointestinal (GI) disorders affect around 10-20% of people worldwide, making them relevant public health issues.   💡 Functional GI disorders don’t show clear structural abnormalities in standard tests, making them harder to identify. Symptoms like abdominal pain, bloating or altered bowel habits often overlap with other conditions, requiring a series of exclusionary tests for diagnosis.   💡 As “invisible illnesses,” they are frequently misunderstood or stigmatized by both healthcare professionals and the general public, further limiting the quality of life of patients.   Sources and further information: https://lnkd.in/ey5qSK76   #GastrointestinalHealth #DigestiveHealth #IBSAwareness #FunctionalDyspepsia #MagenDarmTag

Still having trust issues? - Well, you should have - as soon as patient data are concerned. We would like to share with you an interesting read from Deloitte's UK Centre for Health Solutions . Here are some key topics: 👉 Governing #patient #data goes beyond just ensuring data protection. It hinges on cultivating public trust throughout the data lifecycle. 👉 As healthcare grows increasingly data-driven, particularly with #AI and digital tools, data governance must prioritize transparency, privacy, and accountability. Building this trust is essential to secure public support for data-sharing practices, which enable advancements in research, personalized care, and operational improvements. 👉 Addressing data governance ensures that healthcare innovations can thrive within a framework that respects #patientrights and ethical standards. Link to full article in the first comment.

🦓 Needle in the Haystack – How We Can Improve Patient Finding for Rare Disease 🦓 🔶 40 years after the US Orphan Drug Act, around 90% of rare diseases still lack treatment, and diagnosis is often slow and cumbersome. 🔶 To improve the process of drug development in rare diseases and bring new treatments to patients, patient-finding strategies are key. 🔶 While one might think that the unmet need of a rare disease automatically drives demand for a new experimental or approved treatment, the reality is often quite different. 🔶 In a recent article in RARE Revolution Magazine, The Healthonauts' Louise von Stechow explored strategies to improve rare disease patient finding: 🦓 Assemble the Puzzle Pieces: Improved disease understanding through comprehensive genetic characterization, clear and holistic symptom descriptions, and patient journey mapping. 🦓 Uncover Hidden Patterns: Innovative methods such as advanced genetic profiling and artificial intelligence to identify rare disease variants and phenotypic matches (for example, based on facial features). 🦓 Learn from the Experts: Integrating patient and caregiver experiences and patient advocacy into patient-finding strategies. 🧡 Read the full article here: https://lnkd.in/e2f9Gkud #raredisease #orphandrugs #drugdevelopment

#Now hiring! Looking for a Junior Consultant / Consultant for our team. Thanks for sharing!