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Sleep Consortium, Inc.

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Why join the DREAMS Portal? Here’s what Dr. Anne Marie Morse, the director of the pediatric sleep medicine and child neurology programs at Geisinger Medical Center, has to say. “We want to be able to augment the knowledge and awareness around central disorders of hypersomnolence, so that we're able to do things like reduce the time to diagnosis. Currently, it is about eight to 10 years for most individuals who experience this disorder, and sadly, there's up to a third of individuals who may be experiencing a delay in diagnosis of almost two decades, and women were unfortunately more likely to suffer that consequence. This, many times, results in an increased burden of living with these conditions, many times resulting in misdiagnoses and even the potential of developing true medical comorbidity, meaning having other disorders just because of the fact that we in medicine have failed to be able to recognize the right diagnosis. By participating in an effort like this, helps us to understand that lived experience and not just stop at improving our knowledge and awareness but also creates the potential of accelerating the opportunity to identify new therapeutic interventions that can be transformative for individuals who are living with these conditions.” Your medical history is real world data. Your data will improve care. Join the DREAMS portal by registering at https://lnkd.in/guepwmKU. #DREAMSportal #BeCounted #CDoH #centraldisordersofhypersomnolence #idiopathichypersomnia #KleineLevinSyndrome #narcolepsy #cataplexy #sleeprelateddisorders #idiopathichypersomnolence #hypersomnolence #sleepconsortium

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